6 things everyone should know about Cerebral Palsy

Today is World Cerebral Palsy Day. Yesterday we asked you “what should everyone know about Cerebral Palsy?”.  Thank you to everyone who sent us a message, you can read more of the messages on Facebook.

Here are our favourites:

Cerebral Palsy does not define a person

Young adult using a wheelchair and man talking
Jamie wants to be an actor when he leaves college.
  • “People with cerebral palsy are exactly that. People. Just like everybody else. They love, laugh, cry and live. Just like everybody else. My four year old daughter is not defined by her CP. We are bringing her up so that SHE will define IT.” – Ellen on Facebook
  • “CP is a part of [my daughter] but she is and will not ever be defined by it.” – Cheryl on Facebook
  • “CP is a condition that needs attention but it’s not the person. If people could just spend some time to get to know him their lives would be enriched, as ours have been.” – Robyn on Facebook
  • “My son lives with CP, but it does not define him.” – Mrboosmum on the blog

Cerebral Palsy is not an illness

  • “People do not ‘suffer with CP’ as the Daily Mail would put it. It is not an illness.” – Catherine on Facebook
  • “It’s not a disease and you can’t catch it!” – Kerryanne on Facebook
  • “They should know that you can’t catch CP and that people with CP do – contrary to popular belief – have pride in their appearances.” – Rachel on Facebook
  • “You can’t catch cerebral palsy, you can talk to me x” – Lesley on Facebook

Talk to a person with Cerebral Palsy the same as you would to anyone else

  • “Just because the body might not work, don’t think that the brain don’t work either!” – Suzanne on Facebook
  • “People should respect you, it’s not our fault we have it.” – Deborah on Facebook
  • “Just because someone has CP, it doesn’t mean they are deaf or don’t understand what you say. Speak directly to someone, not about them, and not to their carer as if they aren’t present.” – Nadine on the blog

Cerebral Palsy affects people differently

  • “Each child is individual and should be treated as such. CP is a label but affects all differently xx” – Michele on Facebook
  • “Every disability is different and affects each individual person in a unique way this does not affect the way this person thinks and has they have the same feelings and thoughts as any other person.” – Juliette on Facebook
  • “Cerebral palsy can affect people differently my daughter has cerebral palsy but you wouldn’t know to look at her but she still has difficulties, people need to see past the disability my daughter is amazing and a true inspiration as are many children with CP.” – Chloe on Facebook
  • “People with cerebral palsy aren’t necessarily in a wheelchair and you can’t tell whether they have it just because they can walk.” – Victoria on Facebook
  • “It affects everyone differently and it impacts on the whole family , still wouldn’t be without her- every achievement brings a smile!” – Daniele on Facebook
  • “Even two people with the same clinical diagnosis can have very different challenges and opportunities.” – Mrbooksmum on the blog

People with Cerebral Palsy achieve things

Man with cerebral palsy piloting a plane
Nathan has cerebral palsy and is a qualified pilot.
  • “My son has quadraplegic CP and is in a wheelchair. This however has not stopped him climbing mountains, canoeing down rivers and raising money for his school. He goes to football, cricket, the theatre and lots of other events. Disability does not stop you achieving your dreams, it just changes the way you get there.” – Debby on the blog
  • “My daughter was born 23 years ago, and after a difficult birth, and 3 months down the line we were told she had cerebral palsy.  At 18 months she walked, she went to nursery, she went to primary, then secondary, then college, then university, and passed with honours. After taking a little longer, this summer she got a teaching job and moved to Birmingham with her supporting boyfriend who works at P.G.A golf. We are very happy and proud of our daughter. And thank you Scope.” – Marcella on Facebook
  • “Everyday I am humbled and privileged to be here to tell the tale, we all have individual journeys and challenges to face, but I for one am very proud of the progress myself and my family have made over the years!” – Liz on Facebook
  • “I’ve got Cerebral Palsy and I live an independent life. I work part time, I cook and I’ve been married to my husband for three years. My left side doesn’t work but I make the most out of life and try to keep smiling.” – Tracy on Facebook

People with Cerebral Palsy are loved

Girl with parents baking a cake
Molly with her parents.
  • “My little boy has CP and I wouldn’t change him for the world!” – Shelly on Facebook
  • “My son is 15 months old and was diagnosed with CP the day after his 1st birthday. Since then we’ve had another diagnosis of Semilobar Holoprosencephaly which means he should be a lot worse than he is, but he a super star!!! He can’t sit or crawl but he loves a good old wriggle. He babbles like mad and laughs like a drain! He makes everyone around him smile and I’m so glad he’s mine x” – Samantha on Facebook
  • “Hi there, my son is now nince, and only a year ago was finally diagnosed with unilateral hemiplegic CP , he also just recently was diagnosed with ASD. He lets nothing get him down, he does have learning disabilities but he is the most loving boy I could have asked god for.” – David on Facebook
  • “My son is 6.5 and has quad CP, visually impaired, gastro fed & seizures. He faces challenges on a daily basis that most of us never encounter in a lifetime but through it all he continues to give us the most amazing smiles. He’s truly special and the world would be much duller without him in it xx” – Kerry on Facebook

Do you agree? Did we miss something? Let us know in the comments below.

At Scope our wide range of services and activities are on offer to all disabled people. However, our history is based around cerebral palsy and we retain a particular specialism in this area. Scope offers home visits for parents of children newly diagnosed with cerebral palsy and lots of detailed information about the condition.

10 thoughts on “6 things everyone should know about Cerebral Palsy”

  1. Some of the most inspirational people I have ever met have been people with CP, people with CP can achieve, can be happy, can lead full and active lives, they are just people like you and me, they just happen to have CP and sometimes need extra support with things. All people, regardless of disability, sexual orientation, age, gender, skin colour deserve to be treated equally and with respect. If everyone tried to remember this the world would be a better place.

  2. Positive images and words about people in married to a lady with cp we have two children she is a mum a wife daughter sister person in her own right

  3. My 4 year old daughter has cp, she was born at 30 weeks and had quiet a struggle in the first couple of weeks life. She was then diagnosed with cp at the age of one. She cant sit very well on her own,she cant stand, she cant walk…… but every ‘can’t’ there are ten ‘can’s’…. she can crawl in her own way,she can talk, she can laugh, she can play, she can draw, she can make friends and if you ever had the privilege of meet my girl…. you would know she can SMILE and she can make you smile.
    This little 4year old has made me the person I am today… she is my teacher in life. I’m so grateful call her my daughter! And I’m so proud to be her mum!

  4. I’ve met two people with CP recently and they are the most “normal people” I have ever met, determined, progressive, lovely fascinating people! both have been with us for scuba diving lessons and both love to be treat “normally” CP is part of them but they also don’t consider this to be a disability…..that’s just the way other people consider them

  5. A lot of people forget that children with CP grow up to be adults with CP. And some of these adults still need various services to help them function in the world but are often neglected because of the fact that they are no longer children.

  6. My husband has CP and I love my husband. I said yes, very, because I love him. You can’t help who you fall in love with! My Godmother asked me, before our wedding, if I was sure? I said yes, very, because I love him. You can’t help who you fall in love with! We’ve been married for nearly 8 years now and we love each other as much now as when we married. Sadly, because we met when we were approaching our 50’s, we have no children, which is a sadness to us both. At first glance, it may not be obvious that he has CP. In comparison to some, my hubby, having CP down his right side, has ‘got off lightly’! Get to know him and although my hubby won’t admit it, possibly, but comments when he was younger – spastic, peg leg, etc – still hurt. Well I’m here to protect him now and if I hear anyone DARE to call him names like that again, they’d better watch out!!!

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