Thousands of families are expected to turn to Scope for support this Christmas, which is why we’re asking you to donate to our Light up Christmas appeal. With your help we can be there for every family who contacts us.
Jenny found out her son Harry had cerebral palsy just before Christmas. She didn’t understand his condition or how to support him. Here she explains how calling the Scope Helpline was the moment everything changed and how vital your support will be to families like hers.
Two years ago, my son Harry – who was five years old at the time – was diagnosed with cerebral palsy.
Harry had been complaining of tiredness and pains in his legs. A physio told me he was a typical boy, being lazy. But I knew there was more to it.
Harry would also keep falling over, his feet turned inwards and there was other behaviour I couldn’t understand – he would have a meltdown if there was the slightest change in his routine.
“I thought I’d broken my baby”
I had to fight to get an appointment with a consultant. When finally we saw him we talked for only a few minutes. He told us that Harry had cerebral palsy.
I asked, ‘what is it?’ and ‘how did it happen?’ He said I must have fallen during the pregnancy, scarring Harry’s brain . We left without any leaflets or explanations.
The information given to Jenny was incorrect. For help or information about disability please get in touch by phoning 0808 800 3333 or emailing firstname.lastname@example.org.
Even though I knew I hadn’t fallen, I burst into tears. I thought I’d broken my baby.
When Christmas came, we were still in shock. Usually we’d spend the day with my mum, but instead we stayed at home on our own. It wasn’t nice.
We’d bought Harry a bike for Christmas and he didn’t want to go on it. Looking back now, I realise it wasn’t the right present, because of the pains in his legs. But we’d bought it before we understood what Harry was going through.
Calling Scope’s helpline
I’m so thankful I found Scope’s helpline number. Jackie – a Scope Information Support Worker with 17 years experience – called me back the same day.
Straight away, I realised I was talking to someone who understood. I could see a future, because Jackie could help me understand Harry’s needs and how to help him.
Ever since the day of that first emotional phone call, Jackie has been an amazing support. She understands cerebral palsy and she understands Harry. That’s invaluable to me.
With her help, we’ve adapted to Harry’s needs and so has everyone in his life. Harry is doing really well at school and we are starting to think ahead to when he moves on to secondary school.
It isn’t just Harry’s life that’s better, it’s the whole family’s. And this year, we’re really looking forward to Christmas!
We want to be there for every single family that contacts our information and support services this Christmas.
Please give as generously as you can and light up Christmas – and the future – for a disabled child and their family.
For help or information about disability please get in touch by phoning 0808 800 3333 or emailing email@example.com.