This story is part of 30 Under 30.
Abbi was born with a genetic bone disease called osteogenesis imperfecta, also known as ‘OI’ or brittle bones. Following learning BSL, she has set up a YouTube channel where she covers popular music in BSL.
As part of 30 Under 30, she talks about losing her hearing, how she started her YouTube channel and recalls surgery she had to regain her hearing.
Both my mum and I have OI which, aside from making our bones fragile and prone to fracture, has also led us to develop a plethora of related disorders. We both underwent scoliosis fusion surgery as teenagers, we both have arthritis and limited mobility (although my mum walks, I now use a wheelchair), and we both have otosclerosis, a degenerative hearing impairment.
I began wearing hearing aids around the age of eight. Within six years, my hearing had deteriorated to what’s classed as a ‘severe’ loss. I could no longer hear male voices at all, even with powerful hearing aids, and survived life in the hearing community through lipreading, guesswork and a bunch of magnificently patient friends. I was a huge fan of music and played several instruments, even though I had no hearing in the lower frequencies and could only understand lyrics if I saw them written down.
My mum grew up in a world where disguising her disabilities made life easier, so when it came to teenage rebellion, I embraced my disabilities as much as possible. I spent a lot of time learning about sign language, deaf history and the deaf community, and eventually signed up for BSL evening classes at a local school. I even convinced mum to come along, too!
Songs and signing
To tie in with Adele performing at Glastonbury, Abbi has created a BSL cover of one of her most popular songs.
We had a wonderful BSL teacher, Jill Hipson, and after finishing our Level 1, Jill agreed to continue coaching me and a classmate through to Level 2.
As part of our study, Jill introduced us to sign song, which I instantly recognised as the perfect way to preserve the music I loved so much, even as my hearing continued to deteriorate. The first song I recorded – ‘Lucky’ by Britney Spears, of course – was clunky and awkward, but when I uploaded it to YouTube I received a huge amount of support, both from BSL users and from other learners like me. That was a huge source of encouragement to me, and a great way to broaden my understanding of the language.
I’d finally found a way to reconcile both my deaf and hearing worlds which, as a shy, anxious teenager in an increasingly unreliable body, was a massive boost to my confidence. My YouTube channel really took off just as my physical health declined. In hindsight, having such a positive experience of one disability really helped me in the transition to using a wheelchair full-time.
Since ‘Lucky’, I’ve recorded over 50 videos and gained 8,000 YouTube subscribers. I’m not fluent in BSL and I do make mistakes, especially as my hands don’t always work as well as I’d like, but the YouTube community has been incredibly supportive. Not only have I received lots of really helpful constructive criticism, I’ve also had some truly moving messages from both d/Deaf and hearing people all over the world and established genuine friendships. It’s incredible to think how the internet can facilitate such connections which, twenty years ago, would never have been possible.
An alternative way of experiencing the world
In 2011 and 2012, after much deliberation, I decided to undergo two risky but thankfully successful stapedectomy surgeries, which restored most of my hearing. Learning to hear again after ten years was fantastic, and actually fuelled my desire to keep recording sign songs – the more of the song I could hear, the more I wanted to sign!
I recently began to lose my hearing again. Despite having previously worn hearing aids every day for ten years, now that I’ve experienced the luxury of ‘real’ sound, I’ve found adjusting back to ‘hearing aid sound’ difficult. I wear my aids at work, but as soon as I leave the office, they go straight back into their box.
I consider myself incredibly privileged to have experienced both hearing and deafness; facing hearing loss as an adult, I’m taking my time figuring out what that means to me. Deafness doesn’t have to be a disability; for many, it’s simply an alternative way of experiencing the world. I hope my sign songs demonstrate how enriching and expressive that world can be.
Abbi is sharing her story as part of 30 Under 30. We are releasing one story a day throughout June from disabled people under 30 who are doing extraordinary things. Keep up to date with all of our new stories on our 30 under 30 page.