Families up and down the country turn to Scope for support in times of need. The information and support we provide can make all the difference, you can help us be there for every family by fundraising with us. With your help, we can be there for every family who contacts us.
Jenny found out her son Harry had cerebral palsy and didn’t understand his condition or how to support him. Here she explains how calling the Scope Helpline was the moment everything changed and how vital your support will be to families like hers.
Two years ago, my son Harry – who was five years old at the time – was diagnosed with cerebral palsy.
He’d been complaining of tiredness and pains in his legs. A physio told me he was a typical boy, being lazy. But I knew there was more to it.
Harry would also keep falling over, his feet turned inwards and there was other behaviour I couldn’t understand. Even the slightest change to his routine would result in a meltdown.
“I thought I’d broken my baby”
I had to fight to get an appointment with a consultant. When finally we saw him we talked for only a few minutes. He told us that Harry had cerebral palsy.
I asked, ‘what is it?’ and ‘how did it happen?’ He said I must have fallen during the pregnancy, which scarred Harry’s brain. That was that. We left without any leaflets or explanations.
I hadn’t fallen whilst I was pregnant, I knew I hadn’t. But, even with this in my mind, I burst into tears. I thought I’d broken my baby.
Finding the support that we needed
I’m so thankful I found Scope’s helpline number. Straight away, I realised I was talking to people who understood. I could finally see a future because they could help me understand Harry’s needs and how to give him the help that he needs.
Scope have been an amazing support ever since that first emotional phone call I made. They understand cerebral palsy and they understand Harry. That’s invaluable to me.
With Scope’s help, we’ve adapted to Harry’s needs and so has everyone in his life. Harry is doing really well at school and we are looking forward to what the future will bring.
It isn’t just Harry’s life that’s better, it’s the whole family’s.