Why I’m determined to make the world a better place for my daughter

The start of 2017 was a dark time for Christie. Her daughter Elise had just been diagnosed with cerebral palsy and without any support or information, Christie felt really alone. A year later, with a new positive outlook, she is a force for change. In 2018 she’s determined to keep making the world a better place for her daughter. In this blog, she shares their journey.

My daughter Elise was born prematurely and it was the worst time of my life. The doctors didn’t think she was going to make it but she did. I remember the first time she opened her eyes. After a month of being in hospital, we got to take her home and I was so happy.

The doctors said there hadn’t been any brain injury but she wasn’t developing as expected. So, after lots of meetings and nine months of waiting, we finally got a diagnosis of cerebral palsy, just before Christmas 2016.

I felt really alone

It was really overwhelming. I didn’t have any experience of disability and I thought it meant her life was over before it had even begun. I thought she’d have no future. I tried to be cheerful for her but my heart was breaking.

I didn’t want people to come over because I didn’t want questions. The first time I took her out in her wheelchair, I cried. I felt like everybody was staring at her. I had days where I just wanted to give up and lock us both away from the world.

That’s when I found out about Scope.

Christie holding up Elise in front of their Christmas tree

I’d been missing all the positives

I wanted to do everything I could for Elise so I called Scope’s helpline because I didn’t know where to start. They gave me so much information. I found out about what was available to us and the different equipment we could use. All these things have helped make life easier. But most importantly, Scope gave me so much hope.

They completely changed my perception of disability. It’s been a whole new life to get used to and I was just focusing on the negatives. Scope helped me to focus on the positives. I’d been missing them all.

You’ve just got to change the goal posts. Elise waving was a massive thing for us and, with her physio, she’s really building her strength up. She’s just got her Peppa Pig wheelchair which she loves and it’s given her so much independence – maybe too much as I recently found out in Asda when she kept wheeling off!

Christie on the sofa with Elise on her lap

I’m determined to change the world for Elise

I still worry every day about Elise’s future. I worry about people’s attitudes, I worry that she’ll want to join in with things but she won’t be able to. The world puts up so many barriers and you don’t realise it until you’re in that world. And it is a different world.

I’ve been sharing our story this past year and I want to keep going.  I feel less alone knowing that there is a community out there and people who care, people who’ve been in this situation.

We’re in a much better place this Christmas but life is still much harder than it needs to be. There should be more support but there’s not and accessibility is a big problem. Just because you have this diagnosis, doesn’t mean you don’t deserve a chance.

This year I want to keep changing attitudes about disability, I want to make things more accessible, I want to give Elise everything she needs – I’m determined that nothing’s going to stop her!

I started a Facebook page called Elise Smashed It. I want everyone to see what an amazing little girl Elise is. I hope it raises awareness and changes perceptions about disability. I want to help other parents too and show them that there is hope. It might not be the life you were expecting, but it’s not the end – it’s just the start of a different life and you’re not alone.

These are my goals and that’s what I’m going to focus on this year. I hope you’ll join me.

Too often, disabled people and their families struggle to access the support and information they need. Attitudes towards disability can be a problem too.

Christie shares her story because she wants to change that. Please help by getting involved with our What I Need To Say campaign and following Christie and Elise’s journey on their page Elise Smashed It. 

2017: an award-winning year in the life of Scope helpline

In 2017, Scope helpline won the Helplines Partnership ‘Helpline Impact’ award. The award recognises “helplines that have contributed to the sector over the longer term in an amazing way and are an example to others”.

We’ve always been so proud of our helpline service, our dedicated team and the amazing difference this vital work makes to disabled people and their families. But it’s also wonderful to have this external recognition and to win such a prestigious award.

“This is possibly the most helpful advice-line I have ever encountered. Thank you.”

In 2017, the Scope helpline responded to 22,837 requests for information and support by telephone, email and via Scope’s online community and social media networks.

We have also supplied answers to over 1.3 million requests for help and information via our website. This has risen steadily over the years:

“[Scope helpline] was immensely helpful and gave me much greater confidence in dealing with DWP (Department of Work and Pensions) which I was very daunted with. Thank you so much.”

Funding the extra costs of disability

Unsurprisingly, the number one topic you ask about is benefits. We have added extra capacity through the Benefits Training Company answering questions in the online community.

To complement the work of our specialist advisors, our partnership with the charity Turn 2 Us offers an online benefits calculator and grants search tool. Since its launch in July 2015, thousands of you have used this free service to improve your finances, completing 15,000 benefits calculations and over 12,000 grants searches.

In 2017 so far, the calculations have identified over £1.5 million per week in unclaimed benefits. This can make a massive difference to the lives of disabled people and their families, as this customer explains:

“This service exceeded my expectations… The outcome gives…  approx £151 per week instead of £111 per week as originally assessed. I can’t praise the advisors enough.”

New information products

As well as responding to a wide range of enquiries, we have also produced lots of new online information in response to popular demand:

We have taken part in our first Facebook Live event on Universal Credit.

Becoming Disabled offers answers to the most frequently asked questions our helpline receives from people new to disability.

Our newly expanded equipment section in partnership with Which? is complemented by an occupational therapist in our online community.

We have also produced three information videos, which has been viewed nearly 100,000 times since they were launched:

“Just a note to say these films are absolutely excellent. Very clear and accessible. My son who has ASC (Autism Spectrum Condition) is currently undergoing a PIP assessment and I expect to go through the appeal process, so it’s really great to see this kind of resource being made available.”

 

For free, independent and impartial information and support on the issues that matter to disabled people and their families, contact Scope helpline on 0808 800 3333 or helpline@scope.org.uk.

Scope helpline receives no Government support: £9 can help pay for a call to the helpline.

Please support us if you can.

Tackling the additional energy costs faced by disabled people

Winter brings two certainties – lower temperatures and higher energy costs. This is particularly challenging for disabled people, who often consume more energy because of their impairment or condition.

In recent weeks, Ofgem – the energy regulator – and the Government have both announced short-term proposals to help tackle high energy costs. Whilst these are welcome, Scope is calling for more targeted reforms to support disabled people in the energy market.

Below we look at these changes in more detail and what they could mean for disabled people.

Disabled people’s experiences as energy consumers

Disabled people face a range of disability-related costs, amounting to an average of £550 a month, making it harder for disabled people to get into work, access education and training opportunities and participate in society fully.

Energy represents a significant type of extra cost for disabled people. In an independent inquiry into extra costs, The Extra Costs Commission, energy was the third most cited area of additional cost by disabled people.

Households with a disabled person spend on average over £3,000 a year on energy, compared to the £1,345 an average UK household spends. It is no surprise then that more than a quarter (29 per cent) of disabled people have struggled to pay their energy bills in the past year.

What changes have been announced?

In October, Ofgem announced a proposal to extend the Vulnerable Customer Safeguard Tariff. Currently, this limits the amount that  customers who are on a prepayment meter will pay for their energy bills. The extension would cover an additional one million customers who receive the Warm Homes Discount, which is a one-off discount for certain customers on their energy bills. This change would take effect from February 2018.

Ofgem has acknowledged that this approach will not support all groups with high energy costs, including many disabled people. It is considering what further steps it can take to support a wider pool of customers.

Alongside this, the Government has published its Draft Domestic Gas and Electricity (Tariff Cap) Bill. This would put an absolute cap on certain energy tariffs, including standard variable tariffs and default tariffs, which have variable prices that go up and down with the market.

The cap would be set by Ofgem and would be temporary in nature. It would last until the end of 2020, although it may be extended for a year on up to three occasions, depending on whether the market becomes more competitive.

The Business, Energy and Industrial Strategy Select Committee has been reviewing the Bill before it is introduced in Parliament. We have provided both written and oral evidence to the Committee, and we want to ensure that there is a clear process for evaluating how these changes will impact disabled people.

 What needs to change?

The proposed actions from Ofgem and the Government offer some short-term relief to some disabled people. However, long-term reforms are needed to specifically address the additional energy costs many disabled people face.

One area of focus needs to be on ensuring disabled people are accessing the support to which they are entitled. For instance, research by the Extra Costs Commission found that 40 per cent of disabled people were unfamiliar with the Warm Home Discount, meaning many individuals could be missing out on this support with their energy bills. We want Ofgem and energy suppliers to work together to increase awareness of these types of support.

We also believe the eligibility criteria for the Warm Home Discount is not as effectively targeted as it could be. We want the Government to review the criteria so that it captures a greater number of disabled people who face additional energy costs.

Over the past couple of weeks, we have been carrying out focus groups to deepen our understanding of the experiences of disabled people in the energy market. This will help us develop recommendations for tackling the additional energy costs faced by many disabled people, but it is clear that Government, Ofgem and energy suppliers all have a part to play.

Tell us about your experiences

Have you faced high energy costs because of your impairment or condition? If you would like to share your experiences, please contact: stories@scope.org.uk.

You can also visit Scope’s website for more information on support with your energy bills.

Smiiffy’s 7 tips for coping with isolation

Josh, popularly known as “Smiiffy”, is a rapper from Birmingham who is looking to challenge attitudes and raise awareness of mental health and disability. He did an Instagram Stories takeover for Scope on Friday, where he shared “What I Need To Say” posts throughout the day, and even wrote a special verse.

I have anxiety, depression and borderline personality disorder. I haven’t been in a good place in the past few months. My anxiety sometimes makes it difficult to be happy, even around my own family. It also means that it’s quite difficult to know what mood I’m going to be in for Christmas.

Josh sitting on a pub bench, looking into the camera

There are a lot of times I do feel isolated. I often find that I do it to myself because I prefer to be alone. I constantly feel alone in a crowd. Even if I’m surrounded by good friends, I feel alone. I sit alone for a while and think that I don’t fit in here. And I feel like I don’t fit in anywhere, which is really difficult sometimes.

Scope’s What I Want To Say campaign is important to me because I feel like Scope’s giving people the opportunity to have a voice and let me say what I genuinely need to say. Letting people know that they’re not alone, and that there are other people there who are wanting to listen to them is incredible.

As part of this campaign, I took over Scope’s Instagram on Friday 8 December, and am sharing my top tips for reducing isolation:

Smile

Whether it’s someone I know well, or a stranger in the street, one of my favourite things to do is just smile. I feel like if someone’s having the worst day, at least I’ve acknowledged them. Plus, it always makes me feel much better too!

A hug always helps

Hugs always make me feel good. Be it a friend, a boyfriend, a girlfriend, a cousin, a family member or whoever, it helps you forget about the loneliness, depression and anxiety you might be feeling for a while.

Social Media

Josh taking a selfie in front of a mirrorI always thought that I’d be lonely and I posted that on social media. That was the first time that I accepted my own mental health. Telling people how you feel on social media can help things improve.

I use it positively, to raise awareness and let people know that there is help out there. You can also be anonymous on social media and that can make it easier to talk about the fact that you’re struggling.

Find someone to talk to

For people that are lonely, there are a few community clubs and centres out there that are open for people on Christmas day. If people are alone, that’s definitely one thing that could help.

If you’ve got family around you but you’re still struggling, just trying to talk to people can help. In most families, there’s at least one person that understands, so if you can speak to that one person, then things can get easier. Just expressing your needs to somebody else will help in the long run, because they will find a way to help you through it.

Speak to organisations that can help

Josh (Smiiffy) wearing a Scope T-shirt

Scope have helped me massively. They’ve helped a lot of friends too. I’ve never really told anyone that I have Bilateral Perthes’ disease but through working with Scope and seeing the work they do, it made me feel confident enough to tweet about it. I feel motivated by Scope to raise awareness of invisible impairments, like mental health.

Do something you love

I think that a hobby, something you’re good at or enjoy, can help. When I started music, I wanted money, fame, popularity but then I released a song about when I was struggling called “Air I Breathe”. When I realised how many people it had impacted, I knew that was my calling.

Music has been hard because I don’t like the attention but I fought off my fears. If you have a talent and use it to create good things for yourself and inspire thousands of others, it can be life changing. I also like giving back to charity because as well as music, charity saved my life.

Smiiffy, a young disabled man, smiles by a microphone

Help raise awareness

Over the years thousands of people have messaged me and said positive things like “I love your music, you’ve saved my life” or “you’ve made me open up about my own mental health” which is incredible.

I want people to let people know that, if they’re struggling to talk or feel like they’re not going to be heard, speaking out about what you’re going through can really help.

Too often disabled people struggle to access the right emotional support, advice and information. As a result they feel like no one truly understands, leaving them disconnected and isolated from those around them. This is particularly heart-breaking at Christmas.

Please help us this Christmas by getting involved with our What I Need To Say campaign. Share the message, tell us your stories, and donate to Scope so we can be there for people who have nowhere else to turn.

Poor accessibility can lead to isolation, but this theatre company is changing that

Pippa works on Scope’s online community and is also an accessible theatre blogger. The festive season seems to be filled with activities but when they aren’t accessible, disabled people and families are often left out. This can be very isolating. For our What I Need to Say campaign, Pippa spoke to Erin, whose company DH Ensemble is leading the way in accessible theatre.  

Going to the theatre is an experience enjoyed and cherished by many families, especially during the festive season. However, like many other activities, theatres and shows often fail to be wholly inclusive of disabled people.

Although the accessibility of venues is improving, content isn’t always suitable for people with specific disabilities. However, one theatrical company with inclusivity at its heart is The DH Ensemble (previously called The Deaf & Hearing Ensemble). I talked to Erin Siobhan Hutchings about their new show.

Based on Erin’s own experiences of growing up with her deaf sister, ‘People of the Eye’ features Deaf and hearing cast members and uses stunning visuals to create an immersive experience for all.

Accessibility is a forethought, not an afterthought

Accessibility is built into the aesthetic, so deaf and hearing audiences can enjoy the show on an equal basis. For example, we use integrated sign-language as well as creative captioning, so whether you’re relying on that to access a performance or not, it brings so much more to your understanding of the world and the characters. I think that makes the work so much more interesting. It adds layers to the narrative and the way that you tell the story and connect with the audience.

Whilst the show was primarily designed with D/deaf and hearing audiences in mind, we also strive to ensure that venues where the show are performed are wheelchair-accessible. The production team also take precautions to ensure that audiences are aware of the visual effects beforehand, by sending out resources including descriptions of lighting effects and images of the projections used to those who request them.

Two women on a stage in front of the words '2 player mode'

Being excluded can be really isolating

The story is about myself and my sister growing up but it could easily be replaced with many other disabled people’s stories. The crux of the story is about families, relationships and isolation, and how important it is that we accept each other.

Deafness isn’t necessarily a disability that cuts you off physically or intellectually, but it’s isolation that can really affect people who have hearing loss. It’s that inability to communicate in a social situation that can be really isolating and that’s something that I noticed with my sister growing up.

We’ve tried to really show that in a way that puts the audience in that position, so some feedback we’ve had from audience members is that maybe a hearing person might not understand everything that happens in the play but that’s an important experience for them to have, they get some insight into that feeling of isolation themselves.

What I would really like people to take away is a little bit of empathy about the way that other people live their lives, and some idea about isolation and communication and how important that is. Then hopefully they’ll take that out with them into the world and influence the other spaces they go into.

Making theatre more accessible

It’s important that we’re all realistic about the diverse world that we live in. We’re a co-led deaf and hearing company and we strive to maintain that.

People understand that it may not be possible to make every single show accessible for everybody, but if you’re open to discovering what can make your work accessible, that’s a start. It’s better to ask people who really live the experience and get their feedback. I went to an interesting discussion with deaf and disabled artists recently where this was addressed.

Accessibility shouldn’t just be a tick-box exercise – put on a British Sign Language (BSL) interpreted show and do one relaxed performance and that’s it. That’s not really exploring the depth of how we can make sure our theatrical environment and all aspects of our society are welcoming for everybody, and that people can feel equal to everybody else.

As accessible theatre continues to slowly improve, it is the innovative work of companies such as The DH Ensemble that are really making strides in helping to address isolation and ensure that theatre really is becoming more inclusive for all.

The DH Ensemble is led by Jennifer K. Bates, Stephen Collins, Sophie Stone and Erin Siobhan Hutching. You can see People of the Eye in 2018:

  • 23 March Harlow Playhouse
  • 26 March Arlington Arts Centre
  • 7 April Nottingham Playhouse

Find out more about DH Ensemble and People of the Eye and get involved with our What I Need to Say Campaign.

I’m a disabled person and I’ve contributed to the economy for 43 years – the Chancellor’s comments feel personal

Graham is Scope’s Engagement and Participation Manager. As a disabled person himself, with three disabled children, he had a strong reaction to Philip Hammond’s comments about productivity and disabled people. In this blog, “after a full day to calm down and sleep on it”, he responds and shares some other reactions.

It’s not based on any evidence

Firstly, as Scope colleagues and many others have said on social media, this statement hugely undermines the Government’s commitment to getting one million disabled people into work.

This wasn’t an off-the-cuff remark by Mr Hammond during an after-dinner speech – it was made in a formal Parliamentary committee meeting and broadcast to the world. So, apart from the slap in the face to working disabled people, he is contradicting Government policy.

His statement is not based on any evidence that anyone knows of. I’m extremely pleased that Scope has called out both the Chancellor and the Prime Minister on this slight.

I’ve contributed to the UK economy for over 43 years

Secondly, it feels quite personal. I’ve had my impairment since I was  a child and have worked continuously (apart from study breaks) since age 17 when I joined a press agency in London as a trainee journalist.

I’ve since worked as mental health support worker, probation officer, supported housing officer, bookseller, policy wonk and project manager. During this time I haven’t avoided paying my income tax and have contributed to the UK’s economy for over 43 years. So being labelled as a problem for  productivity would be a joke if it wasn’t so serious.

I worry for the next generation of disabled people, including my son

Thirdly, I worry for the next generation of disabled people. My youngest son is leaving university in a year or so, and my daughter has worked and has paid taxes for several years.

Despite my professional and personal campaigning on the inclusion of disabled people for 20 years or more, it is very clear we have a whole lot more to do if senior politicians still see us as drains on the economy and uninvestable. We need to be seen as active, empowered citizens.

And in addition to this novel stance – being seen as non-productive – the framing of disabled people as inherently “vulnerable” is another barrier that needs dismantling. I’m confident that Scope will continue to challenge received and dated ideas that diminish disabled people, and really promote everyday equality in all its senses.

It’s not just me who’s outraged, here’s what other people have told Scope

Laura via email:Laura walking with her guide dog

“I am disgusted that a man in his position could say such a thing. We have enough issues to face daily without comments like that.

Every day I make a contribution to society along with so many others. These were very hurtful comments to read as I was getting up, getting ready and travelling to work!

I am pleased to see disabled people and organisations have pulled together today.”

 

Liam via Twitter:

“I just felt disappointed and confused, to be honest.Liam wearing radio headset, smiling at the camera

Aside from being derogatory, it was also a bizarre statement to make when the disability employment gap remains stagnant.”

 

 

Shona via Twitter:

“It’s just reinforcing what we already know, this government thinks disabled people are a problem.Shona in her wheelchair in front of a fence and a park

What is even scarier is the government knows they can get away with saying things like that because they’ve created a society that sees disabled people as lesser.”

 

If you want to read more reactions to the Chancellor’s damaging and inaccurate comments, check out Scope’s Twitter moment. 

Scope storytellers also shared their views in the media:

Scope has written to the Prime Minister asking her to clarify her position and called on the Chancellor to withdraw his comments. We’ve also explained why his comments are damaging and inaccurate.

What are your thoughts on the Chancellor’s comments. Share what you think on Twitter or Facebook using the #EverydayEquality.

Philip Hammond’s comments are deeply upsetting, but make me even more determined to fight injustice

Yesterday the Chancellor Philip Hammond suggested that a higher number of disabled people in the workforce has played a part in the “sluggish productivity in Britain’s economy”.

Helpline Facebook Live homepageDebbie, from Scope’s helpline, who works with thousands of disabled people and their families every year, has this to say about his comments:

I first saw Philip Hammond’s comments yesterday, after spending the day doing training with the Samaritans on how to deal with suicidal callers.

This training has become necessary for our helpline.

We deal with calls and queries from sick and disabled people in deep distress every day.

Many times, we’ve exercised our duty of care by alerting the authorities of serious welfare concerns.

We’ve called the police, we’ve called ambulances, and had many conversations with safeguarding teams at local authorities across the country.

To see such derogatory comments made in this day and age sparked an anger inside me and many of my Scope colleagues.

I’ve worked in front-line advice for 10 years, and the past four years has been the most challenging and difficult time I’ve ever known.

For me, these comments are a new and massive blow to disabled people.

Disabled people who have already ‘failed’ at being sick and/or disabled according to ESA (Employment Support Allowance) and PIP (Personal Independence Payments) assessments now stand accused of failing the economy too.

These are the same sick and disabled people who have been punished for the financial crisis through brutal cuts to social care and welfare benefits.

As a helpline, we’ve fielded queries from thousands of sick and disabled people affected by welfare reform, including some forced into work when they’re clearly not well enough or able to. Many have been forced into destitution and an uncertain future.

This is only going to get worse with Universal Credit, and we’re already seeing an increase in these types of queries.

I’ve spoken to many disabled workers who have gone through the DLA (Disability Living Allowance) to PIP transition, and have lost out.

It’s incredibly hard to be a productive employee when you’re going through the stress of appealing a benefits decision. But disabled people do it every day.

They turn up to work and are the best that they can be under extremely difficult circumstances.

Like the stress of losing your Motability car and being unable to get to work safely.

Or the stress you feel if you can’t pay your rent, or don’t have enough money to eat.

The in-work support available to disabled people, such as Access to Work, has also been cut and is very difficult to get.

Going through these horribly complex processes consumes you, exhausts you and affects every part of your life and your relationships with others.

The detriment to disabled people’s mental and physical well-being has been evident to us, and is far too common in our work.

I am human, my colleagues are human, we hurt and we feel. Some of us are parents to disabled children, or are disabled ourselves, and it’s sickening to hear such nastiness.

Despite the anger and devastation I feel about these comments, I’m even more determined to continue fighting for Everyday Equality. I know that my colleagues feel the same.

We’ve had blow after blow in recent years, and this for me was the final straw.

We will rise up and we will continue challenging all of the injustices, and we will do this together until there is Everyday Equality for disabled people and their families.

We want to hear how these comments have affected you too. Tell us, tell your local MP, tell anyone who will listen.

Enough is enough.

Scope has written to the Prime Minister asking her to clarify her position and called on the Chancellor to withdraw his comments. We’ve also explained why his comments are damaging and inaccurate.

Why the Chancellor’s comments on disabled people and productivity are damaging and inaccurate

Yesterday the Chancellor made comments which suggested that a higher number of disabled people in the workforce has had a part to play in the ‘sluggish productivity in Britain’s economy’.

To say we are disappointed in these comments would be a huge understatement. Even more so, as they come a week after the Government announced a new plan to support more disabled people to enter and stay in work.

We have been campaigning hard over the last four years to tackle the barriers disabled people face both in and out of work. And pushing hard to tackle outdated negative attitudes towards disabled people, whether in the workplace or in wider society. It’s vital that Government and employers recognise disabled people’s potential and the value they bring to the workplace.

Statistically and historically the correlation between increases in productivity and disability employment have gone hand-in-hand. It has never been the case that increasing the number of disabled people in work has had a harmful effect on productivity levels.

Graph showing correlation between disabled employees and productivity
Graph: Productivity against proportion of employees who are disabled

Our analysis of the ONS (Office of National Statistics) National Accounts and Labour Force Survey shows the rate of productivity in the UK has been unaffected by an increase of the proportion of disabled people in work. For instance, between 1998 and 2007 productivity increased by 22 percent, while the proportion of the workforce who are disabled increased from 7.6 percent to 10.4 percent.

It is therefore unacceptable that the Chancellor decided to attribute productivity challenges to disabled people so publicly in this way.

Just last week the Prime Minister committed to getting a million more disabled people into work, a move we welcome. And the Government’s own Industrial Strategy published last month, highlights that businesses with inclusive workplaces bring improved productivity.

Shifting attitudes doesn’t happen overnight. It can take years to shift perceptions. Yet it is this hard work that is essential for social change, and essential if we are to live in a country where disabled people can have everyday equality. However, it can take seconds to reinforce lazy, outdated and harmful stereotypes and undo all this hard work.

We have written to the Prime Minister to clarify her position and have called on the Chancellor to withdraw his comments.

What are your thoughts on the Chancellor’s comments. Share what you think on Twitter or Facebook using the #EverydayEquality

Meet the campaigners and storytellers making equality for disabled people a reality

Today is the International Day of Persons with Disabilities (IDPD). The theme this year is “Transformation towards a sustainable and resilient society for all” and the UN agenda pledges to “leave no one behind”. But far too often, disabled people are left behind and it doesn’t feel like our society really is working for all.

Scope’s new strategy is focused on everyday equality but we can’t do it alone – it requires a collective effort of everyone working together. On IDPD, we’re highlighting some of the amazing campaigners and storytellers we’ve been working with this year.

Shani is tackling extra costs

From expensive equipment to higher energy bills, disabled people and their families pay more for everyday essentials. Support to meet these costs, such as Personal Independent Payments, often falls short. When you face so many extra costs, it can stop you from being able to go out and do things like everyone else.

Shani smiling, stood on a cobbled street

That’s why Shani launched the Diversability Card – a discount card for disabled people. As well as helping to alleviate some of the financial pressure, it also aims to be a catalyst for change by raising awareness of the value of disabled consumers. Find out more about extra costs and the Diversability Card on the website.

Will is campaigning to make public places accessible

Last year, Will made a short film to highlight the poor disabled access found up and down our high streets. As a wheelchair user,  he wanted to demonstrate how frustrating this is from his everyday perspective. He also wanted to draw attention to the fact that businesses are losing multiple paying customers.

The film went viral and thousands of people signed his petition. Alongside his job as a games developer, Will has continued campaign on accessibility – attending events in Parliament and speaking on TV. Read more about Will’s campaigning in this blog.

Christie is raising awareness to change negative attitudes

Christie’s daughter Elise is a happy, smiley two year old girl who has cerebral palsy. Elise has a bright future ahead of her because Christie is determined to overcome any barriers they face. Barriers like negative attitudes, expensive equipment and inaccessible playgrounds.

Christie is a Scope storyteller and local campaigner and she also shares their journey through her page ‘Elise Smashed It’. She hopes that by raising awareness she will educate people, create change and help other parents and children with cerebral palsy.  Find out more about Christie and Elise’s achievements on their Facebook page.

Dan and Emily are tackling the lack of disabled characters

When Dan’s daughter Emily asked why there weren’t any wheelchair users on TV, he knew that something had to change. A wheelchair user herself, Emily always wanted to find characters and people that she could relate to, but they were so hard to find.

Dan, an author holding up his comic book, poses with his daughter Emily who uses a wheelchair

Together, they created The Department of Ability comic book, featuring a cast of superheroes whose impairments are their greatest superpower – and Emily has a staring role! Read more about Dan and Emily’s adventures in their blog.

Carly is making sure autistic women and girls are safe and supported

Carly is an Autism advocate and speaker. She wasn’t diagnosed with autism until she was 32, after years without support, feeling “like a second class normal person” and being told that “autism only happens to boys”. When two of her daughters were diagnosed, she noticed a huge lack of understanding when it came to autism and girls, and she’s been working to change that ever since.

Carly wearing sunglasses and a top that says autistic girl power

From her own experiences, Carly knows that there are serious consequences to not being diagnosed and she has dedicated her life to making sure women and girls are protected and supported.

As well as speaking and networking, Carly has been to the UN to ensure the rights of autistic women and girls are protected and she created a free online safeguarding course. She’s also passionate about changing attitudes towards autism and runs  events for autistic children, where they can invite anyone they like. Find out more about Carly’s story on her website. You can also buy Carly’s book about autism and girls.

If you want to get involved in campaigns or storytelling, get in touch with the stories team. You can also find out more about our current campaigns on our website.