All posts by mineshpatelscope

How are extra costs being reduced for disabled people?

Today (October 19) sees the launch of a new report by the Extra Costs Commission looking at progress made to reduce additional costs for disabled people.

Scope research demonstrates that on average, disabled people spend £550 a month on costs associated with their disability. These costs include things like expensive items of equipment such as powered wheelchairs or screen readers, paying more for energy bills, or facing higher insurance premiums.

Whilst Disability Living Allowance and Personal Independence Payment play an important role in helping disabled people meet some of these costs, this report makes it clear that more work is needed to tackle the financial penalty of disability.

Extra Costs Commission

Addressing the problem of extra costs was the focus of a year-long inquiry from July 2014 to June 2015, the Extra Costs Commission, which identified ways in which government, businesses, disability organisations and disabled people can drive down these costs.

Earlier this year, the Commission reconvened to review the progress made in delivering the recommendations it outlined.

Disabled people demanding more as consumers

The Commission identified that households with a disabled person spend £212 billion a year, the so-called ‘purple pound’. As such, disabled people and their families have the potential to be a powerful consumer base and influence how businesses serve them.

One example of this happening involves Rita Kutt, whose four-year-old grandson Caleb has cerebral palsy. Struggling to find popper vests to fit Caleb, she contacted Marks and Spencer to see whether they could stock these in larger sizes.

This led to Marks and Spencer developing a specialist clothing range for disabled children, which includes popper vests and sleepsuits. These are significantly cheaper than similar items sold by specialist retailers, making a huge difference to families with disabled children who face additional costs.

You can read more about Rita’s story on Scope’s community.

Disability organisations empowering disabled people as consumers

A number of disability organisations have been supporting disabled people and businesses with driving down disability-related costs.

We’ve created a ‘money hub’ with information to help disabled people manage their money more effectively, whilst Nimbus Disability has started to offer discounts to users of its Access Card. Whilst these are both fairly new, disabled people have so far responded positively to both of these initiatives.

Businesses serving disabled people better

Alongside the example of Marks and Spencer mentioned above, Uber has been thinking about how it can meet the needs of disabled people better.

They have developed a new service called UberASSIST for passengers requiring additional assistance whilst travelling. Uber has also introduced wheelchair accessible vehicles to its fleet in London. They plan to grow these services to enable more disabled people across the UK to access them.

There are a number of taxi and private hire vehicle providers that serve disabled people well, and it’s good to see Uber creating even more choice in the market for disabled passengers.

Read more about Kelly Perks-Bevington’s experience of using taxis and private hire vehicles.

What next?

Much more needs to happen to reduce extra costs for disabled people, so it is important that the momentum generated by the Commission is not lost.

As such, the Commission calls upon different groups to build upon progress so far to tackle disability-related costs. For instance, disabled people should continue to raise the profile of the ‘purple pound’, whilst company boards of businesses should act as champions for disabled consumers. A cross-governmental approach is also needed to help drive down the range of additional costs faced by disabled people.

Now that the Commission has ended, Scope will be taking forward the work of this inquiry, with a focus on addressing the extra costs of energy and insurance for disabled people.

For further information, please speak to Minesh Patel, Senior Policy Adviser at minesh.patel@scope.org.uk or on 020 7619 7375.

Share your experiences of claiming Personal Independence Payment

The Government has launched an independent review of how the assessment for Personal Independence Payment (PIP) is working. This follows a previous independent review of PIP in 2014.       

PIP, alongside Disability Living Allowance (DLA), is a payment that provides working-age disabled people with support to meet the extra costs of disability. Our research shows that these costs amount to an average of £550 a month.

These costs might include expensive items of specialised equipment such as wheelchairs, spending more on things like energy to keep warm or taxis to get around, and even certain types of insurance.

A call for evidence has been launched as part of this review to gather the views of individuals who have claimed PIP for themselves, or on someone’s behalf, about their experiences of the process. This includes new claims and DLA reassessment claims, both under normal rules and Special Rules for terminally ill people. In particular, they are interested in the following:

  • How effectively further evidence is being used to assist in making the correct claim decision.
  • Data sharing within the Department for Work and Pensions and across government, including the way information gained from the PIP assessment is shared with other organisations to improve health and care services.
  • The general claimant experience.

Sharing your views will help to inform the review’s final conclusions on the effectiveness of the PIP process, which will be presented to government.

How to respond

This call for evidence closes on Friday 16 September 2016, 5pm. You can respond via the online form.

Alternatively, you can submit a response in the following ways:

Email: pip.independentreview@dwp.gsi.gov.uk

Post: PIP Independent Review Team, Department for Work and Pensions, Floor 4, Caxton House, Tothill Street, London, SW1H 9NA

This call for evidence is available in a range of formats, including large print, Easy Read, audio, British Sign Language (BSL), Braille, large print, audio cassettes, CDs and BSL DVDs.

To request any of these formats, please use the email and post contact details listed above.

Tell Scope about your experiences of PIP

Scope will be responding to this call for evidence. We are keen to include the experiences of disabled people who claim PIP as part of our response. You can tell us about your experiences in the following ways:

Email: minesh.patel@scope.org.uk

Telephone: 020 7619 7375

Tell us about your experiences of purchasing disability equipment

The Government has recently launched a consultation looking at how some types of aids and appliances are taken into consideration as part of the assessment for Personal Independence Payment (PIP).

PIP, alongside Disability Living Allowance, is a payment that provides working-age disabled people with support to meet the extra costs of disability. Our research shows that these costs amount to an average of £550 a month.

The Extra Costs Commission was a year-long independent inquiry into driving down extra costs, which can arise in a number of ways – as well as disability equipment, disabled people may have to spend more on things such as energy to keep warm, taxis to get around, and even certain types of insurance.

The consultation outlines five options for reforming how aids and appliances to carry out day-to-day activities are assessed for the Daily Living Component of PIP. If the Government decides to make changes, these options could affect the way in which new and existing claimants receive PIP, as well as the amount of money received.

We want to hear from you

Scope will be responding to this consultation, which is running until 29 January 2016, 5pm.

We are very keen to include the experiences of disabled people who purchase aids and appliances to carry out day-to-day activities as part of our response. You can contact us in the following ways:

Email: minesh.patel@scope.org.uk

Telephone: 020 7619 7375

You can submit a response to the consultation in the following ways:

Email: pip.consultationfeedback@dwp.gsi.gov.uk

Post:

PIP Policy Team
Department for Work and Pensions
Ground floor
Caxton House
Tothill Street
London
SW1H 9NA