All posts by Scope's Blog

We're all about changing society for the better, so that disabled people and their families can have the same opportunities as everyone else.

We want to see reform of the PIP assessment

The Government recently announced changes to Personal Independence Payment (PIP) that would tighten up access to PIP for disabled people. We are concerned that this will result in disabled people missing out on vital support to help meet some of the additional costs they face as a result of their impairment or condition, on average £550 a month.

Figures today show that 65 per cent of claimants are successful at tribunal when they challenge a decision on their PIP assessment.

This shows that the PIP assessment is not currently working effectively for disabled people. Below, Abbi, a young disabled woman, shares her experiences of the process of applying for PIP.

Abbi’s story

When the little brown envelope informing me of the need to apply for PIP dropped through my letterbox, I was nervous.

Since first qualifying for Disability Living Allowance (DLA) in 2009, my health has deteriorated. Both the benefit itself and the access to the higher rate for the mobility component have made coping with this significantly easier.

With my mobility continuing to deteriorate, the thought of being rejected for PIP (as has happened to many of my disabled friends and contacts) filled me with fear.

“It did not seem to have been designed for disabled people”

Applying for PIP was a complicated process and one which did not seem to have been designed for disabled people. First, I had to spend 45 minutes on hold to the Department for Work and Pensions (DWP) to confirm that I wished to apply. Ironically, I only had time for such a call because I was off work for health reasons.

I have a hearing impairment and once the phone was answered, I found it very difficult to hear the speaker. However, a request to conduct the conversation over email rather than by phone was refused.

The rest of the process told a similar story. I filled out an application form which did not leave sufficient space for me to detail all of my conditions and medications.

“My assessment took one and a half hours”

I had to reschedule my first assessment due to access issues and was told that assessments can only be rescheduled once. If I was unwell on the day of the rescheduled assessment, I would have to apply again.

Upon arrival at the assessment centre, a sign on the door informed me that my assessment would take no more than 20 minutes, yet my assessor did not appear to have any of the information which I had painstakingly written out in my application form. Instead, she expected me to answer every question again, verbally.

My impairments are complex, but nowhere near as complex as those of other disabled people I know. My assessment took one and a half hours.

The PIP system remains inefficient

When the news came, I was incredibly relieved to hear that I would be awarded the equivalent of what I was awarded under DLA. I still have access to both the services and the funding which permit my independence. I can plan for a future, even as my mobility deteriorates.

However, when I read the Atos report on my health, I found multiple serious errors. It included the suggestion that I experience one of my most disabling conditions ‘once a month’.

I don’t understand the confusing series of deadlines by which I was supposed to have submitted different documents or why those documents were so blatantly dismissed.

Four years after its foundation, the PIP system remains inefficient, inept and, in many cases, potentially harmful to the mental and physical health of many disabled people in the UK. I am immensely grateful for the assistance and security which my PIP award affords me but, as the government threatens further cuts to PIP, I remain fearful for others who have yet to apply.

With one week to go until changes to PIP come into place, we are calling on Government to think again. We are briefing government officials about why it is so important that they don’t go ahead with these changes.

Instead, we want to see reform of the PIP assessment so that it accurately captures the range and level of disabled people’s extra costs.

We want to hear why PIP is important to you or your experiences of getting PIP. If you’d like to share your story, please comment below or email stories@scope.org.uk.

For further information about PIP, visit Scope’s website or call our helpline for free on 0808 800 3333.

Donate to Scope with Apple Pay

Our supporters can now make donations instantly with Apple Pay.

We’re one of 25 charities that have been supported by Apple Pay to offer a speedy and secure way to donate. This has allowed us to make the process of giving to Scope faster and easier by removing the need to enter billing and contact information on web forms.

If you’re using an Apple device simply go to our donation page, select ‘Once’ as your donation and option and the Apple Pay button should appear. 

Donations are vital to keep things like our helpline running.

Paula contacted our helpline after learning she had cerebral palsy at the age of 60. Until then, she had never received any kind of support. Our helpline provides valuable support and is only possible thanks to donations from supporters.

Thankfully, in 2017 there are more ways than ever to donate to charity. That’s why we’re delighted to be working alongside Apple Pay to launch a more convenient and modern way of fundraising.

Contactless payment technology has been revolutionary across the commercial sector, with hundreds of companies and customers benefiting from the speedy and secure way to pay. We’re really excited to be at the forefront of this technology in the charity sector, giving our supporters another way to make donations and support disabled people and their families.

Apple Pay works on Safari with iPhone SE, iPhone 6 and later, and Apple Watch.

Our helpline is only possible thanks to donations from supporters. You can help us be there for disabled people and their families by donating to Scope today with Apple Pay.

The Budget 2017 – What does it mean for disabled people?

The Chancellor Philip Hammond has delivered the Spring Budget today. In this blog we look at the impact the budget will have on disabled people across the country. 

Ahead of today we were calling for sustainable investment in social care, a reversal of the reduction in financial support for those in the Employment and Support Allowance Work Related Activity Group (ESA WRAG) and for Government to think again on changes to Personal Independence Payments (PIP).

The Budget contained some positive news for disabled people on social care yet we were disappointed by the Government’s failure to mention, let alone reconsider, upcoming changes to disability benefits.

Social care

Following calls from disabled people, charities, MPs and local councils, the Government has provided a cash injection of £2 billion for social care over the next three years.

We hope this is good news for the 400,000 working age disabled people who rely on social care for assistance with everyday tasks such as cooking and getting dressed.

We were really disappointed when there was no further funding announced for social care in the Autumn Statement and so we are pleased that the Government has listened to calls for urgent funding.

The care system has been under immense financial strain over the past few years, with the adult social care budget reduced by £4.6 billion since 2010. £1 billion of new funding will be available this year, yet the King’s Fund has predicted the funding gap for this period will be nearly twice that at £1.9 billion.

The Government also today announced a Green Paper on social care, we will be campaigning to make sure this consultation and following action focuses on how the social care system will provide the support and outcomes important to disabled people.

Financial security

PIP is intended to help disabled people cover some of the extra costs they face as a result of their disability, on average, £550 a month. Therefore we think it is vital PIP focuses on the extra costs disabled people actually face, and not their impairment or condition. We are concerned about the Government’s move to tighten up access to PIP and have been speaking to Ministers and MPs about our concerns since the legislation was announced.

We wanted to see the Government use the Budget to reconsider this change and take the opportunity to review the PIP assessment process. Our helpline has seen a 542 per cent increase in calls relating to PIP over the last year, with many people successfully appealing their original decision.

We are disappointed the Government intends to go ahead with these changes, and will keep raising our concerns with Government.

Employment

The Government has made a welcome commitment to halve the disability employment gap and we’ve been working hard over the last year to set out the reforms needed for disabled people both in and out of work to help make this goal a reality.

However, next month new claimants in the ESA WRAG will see a £30 a week reduction in their financial support. We don’t think that this will help disabled people find work and have been campaigning against these changes since they were first announced. Disabled people are already less financially resilient than non-disabled people, with an average of £108,000 fewer savings and assets. A reduction in financial support could end up creating an additional barrier to work.

We are concerned the Government are pressing ahead with this reduction. Having missed the opportunity to halt the reduction in the Budget, we, alongside other disability charities, will continue to push for this to happen before the change takes effect.

The Prime Minister has set out her vision of a country that works for everyone, yet following this Budget there is much more that needs to be done to include specific needs of disabled people in that vision. We’ll continue campaigning on all of these issues and more to make this case.

Budget 2017 – Will it deliver for disabled people?

The Budget outlines the Government’s spending priorities for the year. How can the chancellor Philip Hammond make his first budget work for disabled people? 

Ahead of the Budget next Wednesday (8 March) we’ve been responding the Government’s announcement that they intend to tighten up access to Personal Independence Payments (PIP) following two court rulings which widened access. We are really concerned that this could lead to disabled claimants missing out on the financial support they rely on to live independently.

We have spoken to MPs and Ministers about this change. It has also been debated in Parliament and raised in Prime Minister’s Questions. Disabled people spend around £550 a month on costs related to their disability and on average are less financially resilient than non-disabled people.

That’s why PIP, which helps disabled people meet some of these extra costs, is so important.

We want the Government to clarify the numbers of people who won’t be eligible for PIP following their decision and we have made them aware of our concerns. The PIP assessment must focus on the extra costs people face not their impairment.

In the Budget the Government should provide more reassurance that the financial support disabled people receive now or in the future will not be negatively affected.

We also want them to take action to drive down the extra costs disabled people face, properly fund social care and provide support for disabled people both in and out of work. We responded to the Government’s consultation on employment and submitted these points to the Treasury.

The extra costs disabled people face

As well has helping disabled people to meet the extra costs they face by protecting PIP, it is also important the Government take action to drive them down. We’ve asked the Government to develop a cross-Government strategy to tackle extra costs. We also want them to draw up a definition of a vulnerable consumer – with a particular focus on the energy industry – to ensure consistency in the support provided for disabled energy consumers.

Social care

The funding crisis in social care has remained high on the political agenda this year. Along with a number of MPs, local councils and other charities we have been calling on the Government to provide the social care system with the funding it so urgently needs.

400,000 working age disabled people rely on social care support for everyday tasks such as cooking and washing. It’s vital that everyone who needs it is able to access good quality social care that supports them to live independently. When we asked disabled social care users about their experiences of care, over half told us their care never supports their independence.

The Government has already committed to a review of social care. This is welcome but they must consult with and listen to disabled social care users as part of that review, something we have asked them to do.

It has been widely reported the Budget will include some money for social care and we hope will be used to improve care for disabled people. However, a short-term injection of cash won’t be enough. We need to see the Chancellor set out a sustainable long-term plan for funding social care as demand continues to grow.

Employment

Last year the Government launched a consultation on the support disabled people receive to find, stay and progress in work. That consultation closed last month and we want the Government to use the Budget as an opportunity to set out what they’ll be doing next. We want to see a package of real reforms set out in a White Paper as soon as possible.

Read more about what we said to Government on the specific changes.

We also want to see the Government halt a proposed financial reduction to people who receive Employment Support Allowance (ESA).

From 1 April this year new claimants will receive £30 a week less than current claimants. We don’t think that will help disabled people to find jobs, it will just make life harder.

Scope has been campaigning against this reduction since it was initially proposed and this is the Governments last chance to act.

On the day we’ll be tweeting as the Budget takes place and sharing our response to key announcements on the website. 

PIP is a lifeline for disabled people and needs to be protected

We know that life costs more if you’re disabled. Personal Independence Payments (PIP) play a key role in helping disabled people to manage some of these extra costs.

Last week the Government announced plans to tighten up access to PIP. We are concerned that this reduction in financial support will make it harder for many disabled people to live independent and fulfilling lives.

The extra costs of disability

Scope research shows disabled people spend on average £550 a month on costs related to their impairment or condition. For one in 10, these costs amount to £1,000 a month.

The additional costs disabled people face broadly fall into three categories:

  • Expensive purchases of specialised equipment, such as wheelchairs or screen readers.
  • Greater use of non-specialised goods and services, such as energy or taxis and private hire vehicles.
  • Paying more for non-specialised goods and services, such as insurance or higher tariffs for accessible hotel rooms.

These costs have a detrimental impact on disabled people’s financial stability. For instance, disabled people have an average of £108,000 fewer savings and assets than non-disabled people, whilst households with a disabled person are more likely to have unsecured debt compared to households without a disabled member.

The financial barrier of extra costs makes it harder for individuals to get a job, access education and training opportunities, pay into savings and pensions, and participate fully in their community.

The role of PIP

The role of PIP – and its predecessor Disability Living Allowance (DLA) – is to support disabled people to meet the additional costs of disability.

Unlike other aspects of the welfare system, PIP is not an income replacer like Employment and Support Allowance or Jobseeker’s Allowance, nor is it designed to boost people’s income when wages are low like tax credits. It serves to level the playing field between disabled people and non-disabled people by helping to tackle the financial penalty of disability.

This puts disabled people in a stronger position to contribute to, and benefit from economic growth as employees, savers and consumers. In research we carried out with over 500 recipients of either PIP or DLA, over half said that PIP was important in helping them to work. A further 58 per cent said that even a small reduction in their PIP award would have a significant impact on their ability to live independently.

Our concerns with proposed changes to PIP

Scope has welcomed previous commitments by Government to protect the value of PIP and keep it free from any taxation or means-testing.

However, last week proposed changes to PIP regulations were announced that would make it harder for many disabled people to score points for certain descriptors in the assessment.

This follows two recent legal judgements which ruled in favour of awarding higher points during a PIP assessment for people who need help taking medication, or who can’t travel alone due to “psychological distress”.

Since the announcement, Scope has received a number of queries through its helpline, online community, social media and customer contact teams from current disabled claimants who are worried about whether these new changes would affect them.

A new PIP assessment

We are concerned that the changes Government are proposing make a crude distinction between those with physical impairments and mental health problems, which will lead to many disabled people missing out on vital financial support with disability-related costs.

However, we know that someone’s impairment or condition is not an accurate indicator of the additional costs they face. Disabled people have unique experiences of additional costs, which often arise as a result of barriers to participating fully in society. For instance, somebody with an anxiety disorder who finds it difficult using public transport may have to consequently spend more on taxis to get around.

We want to see reform of the PIP assessment so that it accurately captures the range and level of disabled people’s extra costs. Disabled people with lived experience of these costs should be directly involved in designing and setting a new assessment criteria.

What Scope is doing

We are calling on Government to think again about these changes and are briefing government officials about why it is so important that they don’t go ahead.

Our Chief Executive has also spoken to the Secretary of State for Work and Pensions to raise our concerns and ask Government to rethink its decision to reduce access to PIP.

We will continue to raise our concerns with PIP in the media to ensure Government hears disabled people’s experiences of extra costs.

We’re keen to hear from you about why PIP is important to you or about your experiences of getting PIP. If you’d like to share your story, please comment below or email stories@scope.org.uk.

For further information about PIP, visit Scope’s website or call our helpline for free on 0808 800 3333.

Health and social care must work together to improve the lives of disabled people

Today the House of  Commons Public Accounts Committee, an influential cross-party group of MPs who monitor Government spending, will start taking evidence into the integration of health and social care and how well it’s going. 

At the end of the inquiry the Committee will make recommendations to Government about how to improve the social care system.

400,000 disabled people rely on social care to get up and get dressed and good social care can support disabled people to work and participate in their communities if they want to. Yet too often disabled care users report poor experiences and poor outcomes and we are campaigning to improve social care for disabled people.

Social care has been high up the political agenda recently because of the funding crisis so this inquiry comes at an important time. We think it’s vital the Committee carefully examine how the social care system is working for working age disabled adults and hope they tell the Government how to improve the care disabled people receive.

What is integration and why is it happening?

Traditionally the support people receive from the health service – such as getting up and getting out of the house or in a residential care setting –  has been funded and organised separately from social care support.

Integration aims to get health and social care working together, focusing on a person’s needs and ambitions regardless of whether what they need support with is classed as a ‘health need’, a ‘care need’ or both.

The aim is to avoid unnecessary delays in people accessing the support they need and to ensure support is joined-up when they do receive it.

What we want the Government to do

Working age disabled adults make up a third of all social care users but our research found that 55 per cent of them think social care never supports their independence. So, the Government need to do more to ensure local authorities prioritise the needs of disabled care users.

When the Government announced the Better Care Fund they set out a number of ways they were going to measure how effectively local areas were spending the money.

Currently, these measures look at issues such as whether the number of hospital admissions has reduced rather than whether an individual receiving care is being supported to live independently in the way they choose. Our research found that of the 91 Better Care Fund Plans approved in October 2014 just 14 included schemes specifically aimed at disabled adults under 65.

We want the Government to change to the way they measure the success of the Better Care Fund and other integrated care schemes so that they include outcomes relevant to working age disabled adults. This could include things such as whether social care is supporting disabled people to access employment or education or have contact with their local community.

We asked young disabled social care users aged 17 – 30 about their experiences of social care and they told us they would like more support in areas such as transport, where to live and employment. 60 per cent of respondents said they would like support with employment but do not currently get this.

We think integrated care teams supporting young disabled people should build partnerships with local specialist employment services, in order to support people who use their services to access up to date information and support that is relevant to them.

Finally, the extreme financial pressure both the NHS and social care system are under makes successful integration more difficult. In order to make integration work for working age disabled people the Government must also commit to sustainably funding social care.
That’s why we are calling on the Government use the Spring Budget to provide the social care system with the funding it so urgently needs.

Read more about our work to improve Social Care for disabled people.

Reform is needed to halve the disability employment gap

The Government’s Green Paper consultation on Work, Health and Disability closed last week. Find out how we responded to the consultation and which areas we argued need action from the Government.

The Government has made a welcome commitment to halve the disability employment gap – the difference between the employment rate of disabled people and non-disabled people – which has stood at around 30 percentage points for over a decade. If the Government is serious about increasing disability employment, then it must tackle the barriers individuals face to entering, staying and progressing in work.

Improving out-of-work support

Too many disabled people aren’t getting support to get into and remain in employment. Where disabled people do access support, at Jobcentres or through employment support schemes, many feel it is too generic and does not take account of their needs or interests.

It is vital that all disabled people who want to work have access to voluntary, specialist support that is tailored to their needs. Taking part in any form of employment support should be completely voluntary for disabled people, and have no impact on the financial support they receive.

As well as this, Scope wants to see a total reform of the “fit for work” test, the Work Capability Assessment (WCA), which decides whether someone is able to receive Employment and Support Allowance.

Currently, the WCA fails to capture the range of barriers to work that disabled people face, which means many individuals are not getting the right support to move in to work. That’s why we’re calling for the WCA to be replaced with separate assessments for financial support and employment support needs.

Supporting disabled people in work

New research by Scope has found that in the last year 58 per cent of disabled people have felt at risk of losing their job because of their impairment or condition. That’s why it’s so important that once disabled people take up jobs, the right support is in place to enable them to stay in work.

Something we want to see is an expansion – and better promotion – of Access to Work, a scheme that provides disabled people with financial support to work. We also want to see the requirement to take Statutory Sick Pay in consecutive blocks to be lifted. This would give individuals more flexibility in taking time off from work, for example through part-time sickness absence or a phased return to work.

Working with employers to drive change

Efforts to halve the disability employment gap will only be successful if we see a shift in how disabled people are perceived in the workplace. The need for action is clear – 85 per cent of disabled people feel employer attitudes haven’t improved since 2012.

Building on progress made with other aspects of workforce diversity, employers should shift from compliance with the law to taking a more proactive approach to attracting, recruiting, supporting and developing disabled employees.

For instance, the Government’s Disability Confident scheme – which provides guidance to employers on hiring disabled people – has a Business Leaders Group which is well-placed to drive best practice among employers through new research and peer-to-peer networking. However, it is crucial that this group has sufficient scope and capability to realise such an ambition.

Next steps following the Green Paper

Scope welcomed the opportunity to respond to this Green Paper. However, this will only lead to change if Government and employers take meaningful steps to tackle the barriers disabled people face to entering and thriving in work.

Therefore, we would like to see a cross-government strategy for disability employment – presented as a White Paper – as soon as possible. This should include a range of reforms to support disabled people in and out of work, along with clear indicators to determine the success of these. It is vital that any proposals are informed by the experiences of disabled people.

Find out more about Scope’s work to tackle barriers to employment for disabled people.

Why we need to see changes in support for disabled people in work

Today we are publishing the findings of a poll which asked disabled people about their experiences of looking for work and being in employment. 58 per cent of disabled people have felt at risk of losing their job because of their impairment.

Tomorrow new statistics will be published that will unveil the size of the disability employment gap. This is the difference between the employment rate of disabled people and non-disabled people, which has remained at around 30 percentage points for over a decade.

The Green Paper on Work, Health and Disability was launched in October and outlines the Government’s thinking about the future of employment support. The accompanying consultation provides an excellent opportunity to feedback on the document and shape future Government policy but closes at the end of the week.

New findings on disabled people’s experiences in the workplace

We surveyed over 200 working-age disabled adults in employment and uncovered that 58 per cent of disabled people have felt at risk of losing their job because of their impairment. To address this, we would like to see Government introduce a new flexible approach towards sick leave and the Equality and Human Rights Commission publish a new code of practice on workplace adjustments.

Text reads: Fifty eight percent of disabled people have felt at risk of losing their job because of their disability
Source: Scope polling of 216 working age disabled adults in employment in England, December 2016

Our research also unearthed how one in five disabled people surveyed (18 per cent) had requested support or an adjustment but their employer didn’t provide them. Employers are legally required to try and make adjustments to support disabled people in the workplace. One in four disabled people (24 per cent) say their current employer does not support them to do their job.

Scope would like to see schemes which support disabled people in work, such as Access to Work, better funded and publicised so that employees and employers are more aware of their benefits.

Workplace bullying or harassment

Text reads: 53 per cent of disabled people have experienced bullying or harassment at work
Source: Scope polling of 216 working age disabled adults in employment in England, December 2016

Our research revealed that 53 per cent of disabled people have experienced bullying or harassment at work, 21 per cent of disabled people had been bullied by colleagues and 27 per cent had experienced bullying from their employer. One in five (21 per cent) go as far as not disclosing their disability to employers, whilst one in eight (13 per cent) of those disabled people we spoke to felt they had been overlooked for a promotion.

Government are rightly focussed on removing barriers to get more disabled people into work, but the barriers that prevent people from progressing and advancing their careers, once in work, must also be addressed. The Green Paper highlights the importance of working closer with employers and changing attitudes towards disability, so it’s important the Government improve conditions for disabled people in the workplace.

Government consultation on disability employment 

Scope want to see the Government deliver on its commitment to halve the disability employment gap and to deliver a strategy that tackles the barriers disabled people face to entering, staying and progressing in work.

The Green Paper is an opportunity for disabled people to share experiences of being in and out of work and feedback on the Government’s plans. At Scope, we think there remains a huge amount of work to be done to tackle the barriers disabled people face entering and staying in work. It’s vital that the whole Government now listens to disabled people’s views on how to do this.

Read more about how you can respond to the Green Paper consultation

The Green Paper doesn’t pay enough attention to the barriers that disabled people face

Having been born deaf, Natasha has always been interested in equality and social justice. She currently works as a photographer as well as an equalities consultant at Disability Wales/Anabledd Cymru. In this guest post Natasha gives her view on the Government’s plans for changing the support disabled people get in and out of work.

The UK Government has published the “Improving Lives: Work Health and Disability” Green Paper. This document highlights the issues of the disability employment gap, access to healthcare and employment support for disabled and people with long term health conditions.

There is much that can be said about the Green Paper, both bad and good.

Taking a medical model approach

The language of the Green Paper is very medical model and highly individualised. The social model of disability says that disability is caused by the way society is organised, whereas the medical model used here, says people are disabled by their impairments or differences.

Natasha smiling for the cameraIt is also a forceful advocate of the “work is good” mantra. They take care to qualify that by saying ‘good’ work, but most disabled people will be aware that the opportunities for good and meaningful work are far fewer for us. It isn’t simply a case of disabled people trying harder, taking pills or going to physio in order to be ‘fit to work’. It often feels that this is the focus of the Green Paper.

This serves to depoliticise disability and that is dangerous for us. We are not disabled by our impairments or health conditions, we are disabled by the external barriers and attitudes in the world around us. That is political. No one individual can change that. It takes all of us together as a political movement to challenge and change those barriers.

What isn’t included in the Green Paper?

Opportunities to work are heavily dependent on many other factors which are barely mentioned in the Green Paper. Do we live in accessible and safe housing? Do we have access to transport to get us to work and back? Are education and skills training opportunities accessible to us? Do we have appropriate support, whether in the form of PAs, social services or appropriate and timely healthcare?

If our most basic needs aren’t being met, the stress of just trying to get by from one day to the next is considerable. How then, are people to cope with the additional stress put on them by a benefits system which isn’t designed to accommodate their needs?

My view is that the Green Paper doesn’t pay enough attention to these extensive but often subtle barriers that disabled people face, whether in work or out of work.

Challenges for disabled people who want to work

For disabled people in work and for those who want to work, there are a range of issues. Do employers understand the importance of reasonable adjustments? Do they value the skills, experience and perspective that disabled people bring to their workforce? Do Jobcentres and Access to Work provide enough support? The answer for many is a clear “no”.

Negative attitudes towards disabled people are a problem, and one that the Government has arguably perpetuated in recent years. A huge culture change is needed to shift the views, aspirations and opportunities focused on disabled people.

The barriers we face go beyond access and attitudes to disabled people. We live in a culture that serves the employer and the profit margin. This is a culture that has created the growth of zero hours contracts; of low paid workers taking multiple jobs just to pay the rent and put food on the table; of a culture that values unhealthy presenteeism and excessive working hours. In short, society values money and not people.

Society values disabled people even less. When discussing disability, I so often find myself saying “if you improve the situation for disabled people, you improve it for everyone else too.” It is a point that too many still fail to understand.

An opportunity to influence change

On a more positive note, the Government is saying “here are some of the issues we’d like to address and we recognise we don’t have all of the answers”. That at least presents disabled people with an opportunity to influence change.

The lived experiences of disabled people are crucial in influencing change. It’s going to take a considerable effort by the Government, the Department for Work and Pensions and others to make good things happen for disabled who want to work. It’s going to take even more effort to create an environment where disabled people can trust the ‘system’ to be there to support and not sanction.

Please take the time to provide feedback or respond directly to the consultation. There are a number of ways you can do this.

To make the world of work better for disabled people, it needs to be better for everyone and there are bigger issues that sit outside of the remit of this Green Paper.

Take part in the Green Paper consultation which closes this Friday 17 February, and tell the Government what you think about the support disabled people get.

I’m throwing myself out of a plane for Scope!

Sophie’s brother Harry has cerebral palsy, and over the years her family have received advice and support from Scope. To say thanks, Sophie is taking on a exhilarating challenge. 

Hi! My name is Sophie Newton and I am almost a quarter of a century old. On 25 February 2017 I am throwing myself (probably ungracefully) out of a plane at 10,000ft to raise money for Scope.

Scope is a charity that is dear to the heart of my family, because of how they supported us when my brother Harry was small. Harry was born prematurely and suffered a starvation of oxygen to his brain. As a result he was diagnosed with cerebral palsy.

Before I organised the Skydive for Scope, I told my parents of my plans and asked them to tell me their memories of Scope. They both laughed as they told me how when Harry was about 4 or 5, Scope sent him for psychological and physical assessments to evaluate his impairment. During the stay, my parents and Harry were having a meal and Harry spasmed and the potato on his fork flew into the air and into someone’s cup of tea! When Harry and I were younger and my parents didn’t have much money, Scope took us on holiday in Bridlington – we had a great time.

Hair-raising fundraising

Harry is now 26 and uses a wheelchair due to his condition. He has limited movement in his legs and struggles with the everyday tasks which I take for granted. When Harry was young, my parents reached out for advice and support, which Scope provided with willingness and kindness. My parents have fond memories of Scope and the support they gave our family; from arranging psychological and physical assessments for Harry to taking us on a family holiday in Bridlington. Having a personal connection to Scope made it even more special, and what better way to raise money than by doing something hair raising!

Life has been, and is still quite tough for us, Harry and many other families with a disabled parent, child or sibling. Scope provided support and advice during dark days when Harry was young and offer support to countless others.

Fundraising for Scope is a fantastic way for me to show my gratitude and to raise more awareness of the work that Scope does for disabled people and their families.

An accepting and accessible society

Sophie smiling and cuddling a dogScope champion change so that one day we will live in a society that is accepting and accessible for disabled people. A society which views disabled people as individuals with unique characteristics.

I am excited for this opportunity to aid Scope is doing this and hope I can raise enough to show my gratitude and support of their amazing work.

You can sponsor Sophie’s Skydive on her Do It For Charity page.

Want to take on a hair-raising challenge like Sophie? Sign up to a skydive today.