All posts by Scope Stories Team

Stories are at the heart of everything we do at Scope. Our blog is a platform for disabled people and their families to share their experiences and opinions.

“It’s not just about sport, it’s about accepting people for who they are”

John Willis is the founder and Chief Executive of Power to Inspire, a charity all about inclusion through sport, based in Cambridge. He was born without fully formed arms and legs, and last year he took on a challenge to try all 34 Olympic and Paralympic sports.

In this blog he talks about changing attitudes and why sport for all is so important.

I was interested in sport from a very young age. Unfortunately, there weren’t many opportunities to get involved in sport at school.

A few years ago I was nagged by a friend into doing a Triathlon relay – I did the swim. We had a great time and it showed that disabled people and non-disabled people can do sport together, you just have to design it and think about it and adapt it.

John Willis, a disabled man with foreshortened arms and legs, waits on a diving board for the signal to dive into the pool, in front of an audience of adults and children
John waiting on a diving board for the signal to dive into the pool.

I did another challenge the following year – 50 1000 meter swims in 116 days – which was quite something and it took me all around the country. I spoke to well over 3000 children and adults about sport. I set up Power to Inspire to take this even further.

Changing attitudes at an early age

Through Power to Inspire, we go into schools and clubs and talk to kids about inclusive sport and we got our games going in schools last year. Everybody seems to have great fun – from mainstream kids learning about inclusive sport to running mixed games where we take mainstream kids into SEN schools.

At one session, we turned to the P.E. teachers and said “Everyone seems to be having a fantastic time, you must always be in and out of each other’s schools with being just down the road from each other” and they said “We’ve never been in each other’s schools before”. So we’re breaking down barriers.

Children trying out new sports like archery and goalball.
Children trying out new sports like VI football and floor lacrosse

It’s fantastic to see kids learning together. It’s not just about sport, it’s about accepting people for who they are. There’s a real demand for our games in schools. We want to keep doing more of it and spread the word. We’re also talking to various clubs about doing big accessible events.

2012 created a huge change in this country. There wasn’t acknowledgment of disability discrimination a few years ago, it was just the norm. Now people are aware it exists. There’s been a massive change. Seeing more disability sport, people on the telly, it’s becoming more accepted in mainstream culture now. People look at Jonny Peacock as a fabulous athlete first, and disabled second.

Outside of the Paralympics, things do get better but it’s like a tide. The water reaches further up the beach each time, but it does go back. What we need to do is create some blockages so the water doesn’t go back so far and we can push it further.

John, a disabled man with foreshortened arms paddles his kayak on the River Cam
John Willis practicing kayaking on the River Cam

Sport is for everyone, full stop

The camaraderie of sport is amazing, with fans of all sports all over the world. That common enthusiasm, I don’t think you quite get that anywhere else.

I set myself a goal last year to try all 34 Olympic and Paralympic sports. I had an absolute blast. I fell in love with far too many of them. There is a sport for everyone and Sport for All emphasises that for me. The work I do with children, once they’ve worked out a way to do something, they just think let’s get on with it and the see the person, not the disability. I want everybody to be able to play and to be able to compete. If you can create that exhilaration of pushing yourself, it doesn’t matter what level you’re at.

Sport is available to everyone full stop. It’s just a question of finding out what you like and finding out where you can do it. And find friends, not just disabled people, but friends who are passionate about that particular sport. Last year I ended up playing tennis which I never thought I’d do. The equipment is available and can be adapted, it just takes a bit of imagination. There’s no such thing as “can’t” – all there is, is working out how to do it. Just take a small step. It all starts with a small step.

Making sport more inclusive

This summer, the World ParaAthletics Championships and the five year anniversary of the London 2012 Paralympic Games gave us an opportunity to champion inclusive sport.

As part of our mission for Everyday equality, we ran a ‘Sport For All’ series to encourage better representation of disability in sport. Over the past few weeks we:

  • shared blogs from storytellers,
  • celebrated the incredible athletes involved in the ParaAthletics on social media,
  • showcased accessible challenge events,
  • did a Facebook Live with Richard Whitehead,
  • and shared some new research which showed that a quarter (28%) of disabled people did not feel the Paralympics delivered a positive legacy for disabled people.

Please help us continue the conversation by championing inclusive sport and challenging negative attitudes. Read more Sport For All blogs and catch up with all of our activity using #SportForAll on our Twitter.

“Inclusive sport shouldn’t be something we have to fight for”

Kris is the founder of Wheely Good Fitness, which offers exercise classes for both disabled and non-disabled people in Herefordshire.

On the weekend, he and a group of 32 people, headed to Dorney Lake in Berkshire to take part in the Superhero Triathlon – the first fully accessible triathlon of its kind.

Here, Kris tells us about his experiences of the event, attitudes towards disability in sport and why sport for all is so important.

There is an assumption that just because someone is disabled they’re not going to want to do sport, which has an impact on the opportunities available.

Unless you live in a main city, there’s not really a lot going on. If we took away the need to segregate, everything would be accessible to everybody and we could all go to our local leisure centres and take part in whatever it is they are running. I run mixed ability classes and there is no need to segregate at all.

Health and safety is always used as an excuse. To me, health and safety is one of the most patronising things used to discriminate against disabled people. London Marathon, for example, only allow 12 places for standard wheelchair entries on the grounds of health and safety. It’s absolute nonsense. They can allow a guy to run in a tumble drier but people who use a wheelchair every day of their life are “not safe”.

Accessibility shouldn’t be something we have to fight for. Disability sport should be given the same amount of precedence as mainstream sport but you don’t see a lot of it and when you do, the coverage of it is very different. It’s not seen as being as serious or respected as other sports. It’s a shame. And if you haven’t got a huge demand [for specialist disability fitness equipment] you can’t reduce the production costs which makes it hard for people to get involved. It’s a vicious circle.

My clients like the social aspect of doing sport. Most of the groups become like a little family. They have a drink afterwards and a chat. Their confidence improves – not only from talking to other people, but they also feel they’re achieving things in the class, instead of their impairment being a negative thing.

Two people take part in the Superhero Tri
Two of the participants at Superhero Tri

Things are improving but it’s a slow process

I’ve been running my fitness classes for four years now. Things have improved in accessible sport but it’s an extremely slow process. There are more and more organisations out there organising accessible bikes and equipment hire. So you can tell attitudes are changing. I think disabled kids have an advantage now to grow up with a much more positive attitude towards themselves that people didn’t have 20 or 30 years ago.

We’re starting to see more inclusive events too. There’s Parallel London which is in its second year and that turned out to be really good event. I was really excited as soon as I heard about the Superhero Tri as were many of my clients. There is so much adaptation. The run can be done in a chair, walking or on crutches. The cycle can also be done in a chair, they allow people in power chairs as well. You can also have a buddy compete with you to help with direction, encouragement, support or balance, so everyone can take part.

The Superhero Tri was a great event

We had eight teams altogether and 21 team members. It was a fantastic opportunity for people of all abilities to compete. The event has an understanding of disability so you’re not having to fight to take part, you’re not having to get people to make allowances for you, you are welcomed for who you are and what you can do. They’re saying “you tell us what you need in order to take part” – that’s what’s so good about it.

A group of women in swimming gear pose and smile during the Superhero Tri
Participants in the Superhero Tri smile during warm up

I was excited to take part. The only thing I was apprehensive of was trying to get that many people together at the same time, without anyone dropping out. The majority of people were really excited, there are a few I could sense were apprehensive, but they really wanted to do it.

I tried to put teams together of people who work well together in my fitness classes, or socially, so they can encourage each other and feel good about their achievements. Whilst it is a competition and it’s timed, to me and many of the team, it’s really about enjoying it and doing the best you can and saying ‘I did it’.

Most of those taking part hadn’t done anything like this before. There’s a mixture of abilities – some are quite confident and some are new to my classes and actually this was a huge step for them to take. It’s a nice journey for everyone. It takes time to start believing in yourself and realising what you’re capable of.

It was a great day, the weather held for us and everyone managed to beat the nerves and turn up. Everyone did well giving everything they could to be the best they could be. The atmosphere was fantastic and everyone was high spirited and extremely supportive of one another.

We were asked by Channel 4 who were filming the event to demonstrate our Wheel-Fit aerobics class for their highlights programme due to air next weekend which was a nice surprise for everyone and, despite being between races, we managed to squeeze in 10 minutes between transitions to demonstrate what the class was about.

Kris and his team smile and pose at the Superhero Tri
Kris and his team were all smiles at the Superhero Tri

Supporting Scope

I’ve been involved with Scope ever since I started running fitness classes. If I’m doing anything for charity, I do it for Scope. Scope is a leading force in changing ideas and perceptions of disability and leading the way to a positive future for disabled people.

Sport is a powerful tool encouraging people to seek their true potential, capabilities and discover their strengths and weaknesses, whilst creating and expanding social lives for a more proactive and rewarding life. It’s not just for the elite, the super fast or the super fit, it’s something for everyone, that can benefit everyone through improved fitness, well being, confidence and social skills.

Sport can be empowering and character building and should be open to all. It’s time to remove the barriers and discrimination and open up the world of sport to everyone of all abilities and all backgrounds on an equal footing.

Get involved in a challenge event for Scope today. Whether it’s running, swimming, cycling or trekking, we have something for everyone.

As part of our mission for everyday equality, we are running a ‘Sport For All’ series to encourage better representation of disability in sport, as well as challenging attitudes towards disability. Find out how you can get involved with Sport For All. 

Read more Sport For All blogs

“I thought I’d broken my baby” – Scope’s helpline helped me see a future

Families up and down the country turn to Scope for support in times of need. The information and support we provide can make all the difference, you can help us be there for every family by fundraising with us. With your help, we can be there for every family who contacts us.

Jenny found out her son Harry had cerebral palsy and didn’t understand his condition or how to support him. Here she explains how calling the Scope Helpline was the moment everything changed and how vital your support will be to families like hers.

Two years ago, my son Harry – who was five years old at the time – was diagnosed with cerebral palsy.

He’d been complaining of tiredness and pains in his legs. A physio told me he was a typical boy, being lazy. But I knew there was more to it.

Harry would also keep falling over, his feet turned inwards and there was other behaviour I couldn’t understand. Even the slightest change to his routine would result in a meltdown.

“I thought I’d broken my baby”

I had to fight to get an appointment with a consultant. When finally we saw him we talked for only a few minutes. He told us that Harry had cerebral palsy.

I asked, ‘what is it?’ and ‘how did it happen?’ He said I must have fallen during the pregnancy, which scarred Harry’s brain. That was that. We left without any leaflets or explanations.

I hadn’t fallen whilst I was pregnant, I knew I hadn’t. But, even with this in my mind, I burst into tears. I thought I’d broken my baby.

Jenny talks on the phone in her kitchen
Jenny turned to Scope’s helpline for support

Finding the support that we needed

I’m so thankful I found Scope’s helpline number. Straight away, I realised I was talking to people who understood. I could finally see a future because they could help me understand Harry’s needs and how to give him the help that he needs.

Scope have been an amazing support ever since that first emotional phone call I made. They understand cerebral palsy and they understand Harry. That’s invaluable to me.

With Scope’s help, we’ve adapted to Harry’s needs and so has everyone in his life. Harry is doing really well at school and we are looking forward to what the future will bring.

It isn’t just Harry’s life that’s better, it’s the whole family’s.

Harry, a young boy, plays with a Superman toy set
Harry’s future seems much brighter now

You can help ensure that we can be there for every single family that contacts our helpline, find out more about fundraising with us or call on 020 7619 7270.

“Having a job is life-changing”

Felix is a post room assistant at Boodle Hatfield LLP. In this blog, he talks about finding employment, employers attitudes and why disabled people should have the same opportunities as anyone else.

My early experiences of looking for work were quite challenging. For most people on the autistic spectrum there’s the challenge of communication. I’m no exception. I struggled with communication myself. For a while my confidence was low because of an experience I’d had in a previous job where my role was abruptly ended.

I was unemployed for 18 months and I had the feeling that I wasn’t going to get a job. But, with the right support  and doing various work experience opportunities, I was able to get my confidence back and be where I am today.

When it comes to employment, whatever other barriers exist, I think confidence is one thing that’s overlooked. Confidence will improve your chances of getting into work. Employers want confident people, whether they’re disabled or not.

Tailored support is important

Tailored support is important because not everyone’s needs are going to be the same and they need a different approach to meet those needs. Scope helped me with the basics – cover letters, CV writing, how to conduct yourself at an interview – as well helping me get my confidence back. They also set up a work placement which was one of the highlights.

I feel that Scope’s employment programme was that major catalyst for leading me into employment. Meeting the right people who can help with your career goal is important. I would definitely encourage young people to get involved in Scope’s employment services. Before that, I didn’t think I was going to be able to work for all the companies that I have done – law firms, Costa, HSBC, a legal support company.

Felix laughing with a friend

Having a job is life changing

My job is quite action packed. I enjoy being on my feet and keeping myself busy. Another thing I enjoy is having a laugh and socialising with the people that I work with.

Having a job is life changing. When you have a job there are certain things that you can do. You can contribute, you don’t have to rely on your parents. You can also do things for yourself that you couldn’t do before – things like getting new clothes, music, football. It gives you independence. Having a job is important for my financial security and independence. It gives me a sense of freedom – being able to do things that I couldn’t do before when I was unemployed. It also comes with responsibility – budgeting and making sure that your money is spent wisely.

My life right now, I’d rate it 9 out of 10. Even though I don’t have a place of my own yet, I think my life is pretty good. I’d like to be able to move out into my own place. It’s been on the cards for some time but I feel that I’m closer to doing that now.

What I want to see in future

In 5 years’ time want to see more disabled people in employment, more disabled people being present in society and more visibility in terms of trying to create that level playing field between disabled people and non-disabled people.

I want to see Scope keep up their campaigns and influencing work but the one-to-one support is also really important. I think the Government should encourage more tailored support programmes to meet the different needs of disabled people.

There are 13.3 million disabled people living in Britain today. Amongst that are disabled people who are looking for work. I honestly believe, from my experiences, that being disabled doesn’t have to be a barrier to you finding work. It will take the right support and you working to overcome the barriers that do exist to get what you want – just like any other goal in life.

At Scope, we work to change society so that disabled people have the same opportunities as everyone else. There are 13 million disabled people in the UK today and life is still too hard for too many.

Our new strategy has been developed with disabled people and their families and sets out how we want to make this country a better place and drive positive, lasting change.

Disabled people still face extra costs of more than £500 a month, struggle to get into and stay in work and are not easily able to access financial support. Scope will campaign to make sure that more disabled people have the right to work in the job they choose and receive the support they need to manage the extra costs of disability.

Visit our website to find out more about our new strategy.

“We have a feeling that our family’s future is bright”

Aslam and Sadia live in London with their four daughters. They struggled to get the support they needed for their daughter Kinza after she was diagnosed with cerebral palsy. She went through many health problems and it was a very stressful time for the family. Aslam and Sadia turned to Scope for support and it turned things around, making them feel less isolated and stronger as a family. In this film and blog, they talk about why support is essential for disabled children to get the best start in life.

As my daughter, Kinza, was growing, we saw that she was not developing like other children. When she was six months old, we took her to a specialist. They told us that some children have a tendency to develop later and to wait until she was 9 months old. We waited but she was still the same so the specialist referred her for some tests and we found out that she had cerebral palsy.

Dealing with the diagnosis

The diagnosis made us feel very depressed. Kinza was our first daughter and we had plans in our mind about what it would be like. We took her to many places and specialists to get their advice. What were the options? Is there anything we can do for her? So many questions. Nobody could make any guarantees. We just had to wait and see. My wife was worried and she still asks me sometimes “What is going to happen?”

As she was getting older, we were finding it difficult to handle. We asked for advice about what you can do for this type of condition. They all spoke about physical things, but no-one talked about her mental development.

As life went on, Kinza started having a lot of health problems. It was a very difficult time for us. We didn’t know what was going to happen next. So many things were going through our mind and we were really upset.

We got in touch with Scope because I was struggling

We were given a number for Scope and a few other organisations. We called everyone. We couldn’t find help from those organisations but we found help from Scope. It was a great experience. We discussed our problems and got some advice and we started to feel better. Before that, we were alone and nobody was helping.

Without Scope’s support, we don’t know what we would have done. We’d be struggling more and maybe getting worse. The emotional support that they have given us has been fantastic. We’re feeling much better compared to previous days and we have a lot more strength now.

Without Scope, we wouldn’t have achieved everything so far for Kinza, which is a lot. She’s in less pain now, she’s concentrating, she makes noises to communicate. She feels happy, she laughs.

A man and woman smile with their disabled daughter who is a wheelchair user

The future is looking bright

Hopefully, we will reach that point where Kinza will be totally independent. At this point, Kinza will be happy and we will be happy. After coming out of these difficult times, we have a feeling that our future, especially for our kids is bright, they will get good education and succeed in life.

The most important thing is that you never lose hope. If you have hope, then you can achieve everything. Don’t be isolated and try and find the support you need.

At Scope, we work to change society so that disabled people have the same opportunities as everyone else. There are 13 million disabled people in the UK today and life is still too hard for too many.

Our new strategy has been developed with disabled people and their families and sets out how we want to make this country a better place and drive positive, lasting change.

We’ll support parents of disabled children get the support they need, so that all children can succeed at school and get the education they want. We’ll work to make sure that disabled young people are supported as they move in to adult life, whatever they want to do.

Visit our website to find out more about our new strategy.

“Everyone deserves to live a life of dignity”

Ricky is currently studying for a Masters degree in the Theory and Practice of Human Rights. In this blog he describes his experience of living independently while at university.

I worried about the support I’d get at university

As I did my A levels, I was encouraged to go to university and I knew I wanted to carry on studying. I’ve always had a passion for politics and I wanted to take it further. My concerns were that I had never been in a mainstream environment. I had always been to specialised schools and colleges before that point.

I didn’t know what to expect and how other non-disabled people learnt as, obviously, being blind means that you can’t learn in the usual visual way of learning. I was also worried about the support I’d be able to get in relation to my care and social support. It was always there in school and college, I just didn’t know what was going to be there for me.

I could be left in my room for 24 hours at a time

Originally, I had agency support for my care. I stayed with them for about a year and a half, then I went onto direct payments. I applied and got the maximum disabled students allowance DSA so I’ve always had academic support, people to take notes, scan my books and reading materials etc.

I really enjoyed the academic side of things and the academic department did everything they could for me. I don’t think they ever had a blind student before. Socially, academic support at Sussex was a total disaster in terms of being left in my room for 24 hours at a time. It really took its toll on me. I felt really lonely and I didn’t really get the student experience at undergraduate level.

My current support is so much better

I’m now at the University of Essex and I’m studying for an MA in the Theory and Practice of Human Rights. I have to say, the support is a lot better at my new university. There are some hiccups but overall, it’s going pretty well. The student support department actually really care about the students and they’re really on the ball, properly qualified and their expertise levels are a lot higher. They know what they’re doing.

I’ve been so well accommodated and I’m really grateful to my local authority for giving me those opportunities to live life as any other university student should. I have choice.

More hours means more independence

I’ve just had my support doubled to 41.5 hours a week. It has made such a tremendous difference to me. Previously, I only had just about enough support just to live, to survive. I could only have a daily meal cooked and have a sandwich made up for the following day. It also meant that I could only get washing and shopping done, there wasn’t any time for social activities.

The increase in hours has meant I can do so much more. I now don’t have to rely on carers to do things for me out of their good will as a friend. I now have people coming in twice or sometimes even three times a day. I have a great team and they support me to do so many things.

Two men share a coffee in a cafe

Good social care is so important

Bad social care looks very bleak; staff not turning up, miscommunications, random staff turning up. There was one occasion where my mum had to drive down to Brighton because the agency had no one available and I would have been without food.

The alternative to agencies is direct payments. The only problem is that you have to advertise yourself for carers but once you establish a good network of people who can help you recruit it’s a really is a liberating experience to be able to employ people who have similar interests to you. When you’ve got a good team, it can work really well.

Having the right support is really good for my emotional wellbeing. As well as being able to survive, it allows me to socialise, take opportunities and explore avenues that are available to other people at university. It is so important to have good solid, reliable and enjoyable social care. Everyone deserves to live a life of dignity, autonomy and to be themselves no matter what.

At Scope, we work to change society so that disabled people have the same opportunities as everyone else. There are 13 million disabled people in the UK today and life is still too hard for too many.

Our new strategy has been developed with disabled people and their families and sets out how we want to make this country a better place and drive positive, lasting change.

We want all disabled people to be able to live the life they choose. That’s why we are focusing on making living independently a reality. From campaigning for better social care to providing information, advice and support, we’ll fight to make independence and choice a reality for many more disabled people.

Visit our website to find out more about our new strategy.

Top 5 disability inclusive books – National Storytelling Week

Dan White is the author of the brilliant Department of Ability comic book, featuring a cast of superheroes whose impairments are their greatest superpower.

In this blog Dan runs down his list of the top five books that feature disability.

Disability in literary form is rare. I have searched, read and reviewed as many books as I could find that include it. Here is a list of my champion books. So, buckle up and, as my daughter Emily says to me as her wheelchair passes out of the house, “let’s roll!”

5. ‘Mr Millet’s farm’ by Catherine Lord

I had to include this. Catherine is the great undiscovered children’s author. So far wrongly ignored by mainstream publishers, Mr Millet’s farm is colourful and unique. Catherine writes with complete charm and understands both her subject and the little eyes who read it. It’s the story of Raj,  a wheelchair and the different animals that Front cover of Catherine Lord's book, Mr Millet's farm. It depicts a bear in a wheelchair on a farm.reside on the farm. The moral of the story is that it’s great to be unique and be who you are. The book aims to help raise awareness of disabilities from a young age.

Complete with wonderful, colourful illustrations, Mr Millet’s farm is perfect to read together with your children. It is an utterly beautiful book on acceptance and deserves a wider audience.

4. ‘Synthesis: Weave’ by Deane Saunders-Stowe

Disability Sci-fi? Yes! Science fiction is the most imaginative of all genres. To imagine a world that does not exist takes a special mind. And Front cover for Deane Saunders-Stowe's book, Synthesis Weave. It depicts a wheelchair user climbing up the side of a cliffto integrate disability makes that mind even more incredible. It shows a world in the future where disability and wheelchairs still have issues, but things have moved on. For instance, plasma limbs (spoiler alert), the uses of magic and the dangers of machine ethics give the book massive depth and the fact it has a wheelchair user climbing a mountain on the front cover sold it to me almost instantly!

3. ‘The Christmasaurus’ by Tom Fletcher

Well, I was sold on this because of the Christmas aspect! But the gem of this book is the fact that the main character uses a wheelchair. However, his disability is only broached almost a quarter of the way through and then it is dealt with swiftly and to the point.  Scope gave me this book to review and I consumed it all the way home from London. It was generally laugh out loud funny, the main character William is hilarious and a character in his own Front cover of Tom Fletcher's book, The Christmasaurus. It depicts a young boy riding on the back of a dinosaur surrounded by snowflakes.right.  You feel relaxed around his story and therefore laugh at his wheelchair accidents. You also get a darn good Christmas story to boot, with a dinosaur!

Tom has a talent for writing for kids that also sucks in the adult reader. Never have I felt more comfortable laughing out loud on the packed 5.30 from Waterloo. Diversity? Inclusion? Laughs? Nailed it.

2. ‘The Art of Disability’ by David Proud

David is a good friend of mine and an author to boot, however, that relationship has no bearing on his book being included here. Essentially a guide book for media types, The Art of Disability is a painstakingly sourced and written piece on the power of representation, it’s importance and how inclusion can be achieved in the wider media world. David, a wheelchair user, knows his stuff. His inveFront cover of David Proud's book, The Art of Disability. It shows a wheelchair user on a stage in darkness.stigations into the industry, his tips and his knowledge are evident.

Each chapter is easily digestible and informative for disabled people wanting to break into the industry. David is passionate and his experience, talent and knowledge ooze from the book. Full of quotes and humour this is essential for any disabled talent or any uninformed media executive.

1. ‘The Spiral Cage’ by Al Davison

Easily the winner, a graphic novel of such diverse beauty and power. I have re-read it constantly and it has had a huge impact on my work. Al the author gives you his life of being born with Spina Bifida from birth to present day in a series of incredible, stark, beautiful black and white images. The variant styles and text absorb you totally. Imagery is paramount and here Al uses many styles to illustrate his life from an era where being born differently meant different attitudes.

We see his formative years, his doctors, bullies, love and dreams being played in powerful, dedicated art. It is unashamedly rFront cover of Al Davison's book, The Spiral Cage. It depicts an abstract pattern with the close up of a face.aw both in language and style, but it is essential to read.  Sadly, out of print, but with a sequel in the works and a reprint hopeful, Al’s book needs to have a resurgence, especially today when it is more relevant than ever. The Spiral Cage is unlike any book on disability and that is what stands it out from anything else. It is so unique that people who buy comics for entertainment need to purchase this, as it will tell them something about life.

We ran a Twitter poll which showed that 3 in 4 people want to see more inclusion of disability in literature

So, for National Storytelling Week, we’re working on this. We’ll be asking for better representation of disability in literature, as well as celebrating some great work that we want to see more of.

To find out more about stories at Scope, head to our Stories Hub and please get involved with our activities for National Storytelling Week.

Not a superhuman? Never feel guilty for not doing ‘enough’

Anna Scutt is an actor, singer and hypnotist. In this blog she writes about the impact that adverts like ‘Meet the Superhumans‘ had on her, and how she’s come to accept that it’s okay to admit you’re not okay.

That ‘Meet the Superhumans’ advert. It, and programmes like ‘Disabled Daredevil’, used to make me feel inadequate for not doing something amazing like a bungee jump or a triathlon.  Until two things happened last weekend to change my mind.

One, I read Kim Daniel Daybell’s blog ‘You don’t have to be an athlete to be superhuman’, and two, I got talking to a man sitting next to me at the theatre.

“How does your CP actually disable you?”

He was very impressed that I had come to London on my own.  In the course of conversation, I told him I had also been to Milan to the opera, and that I’d sung in opera myself at university.  At which point he asked ‘Forgive me, but how does your cerebral palsy actually disable you?’

That made me think. Things that I consider ordinary – I drive, I sing, I’ve got a language degree and can watch all those Scandi-noir dramas without subtitles – non-disabled people consider superhuman because they realise that those things are way more difficult for me than they would be for them. They’re not being patronising, they’re just being non-disabled. He was genuinely interested though, so I answered his question: I am in constant pain. I didn’t tell him I hate it. And it took me a long time to admit it, but it’s OK to hate it.

Anna acting on stage. She sits on a mans knee, turned towards each other, in period costume
Anna playing Gwendolen Fairfax in The Importance of Being Earnest, with Paul Henshall as Jack Worthing

Never feel guilty for not doing ‘enough’

There are so many inspirational stories on the internet that not being OK with my CP made me feel like a failure.  But who doesn’t hate being in pain? That doesn’t make me a failure, it makes me human.

All these inspirational people tell you that you can do anything you put your mind to, but actually, ‘Yes, I can’ might not apply to you.  And that’s OK too.  I mean, it sucks, but it’s nothing to be ashamed of.  I want to dance – tap, jive, quickstep – but my body doesn’t.  I am an actress and I would love to be in a lavish costume drama, but there aren’t many wheelchair users in Jane Austen.  Feel sad about it, feel angry, but never feel guilty.

Anna smiling at the camera in her wheelchair

If you want to play sport, opportunities have improved thanks to the Paralympics.  But if you don’t, nothing much has changed.  Coronation Street did more to raise awareness for me.  I used to get glared at in public if I got out of my wheelchair and walked, as if I was faking my disability. (I blame Little Britain’s Lou and Andy!)  But since Izzy Armstrong stood up out of her wheelchair at the bar of the Rover’s, the glaring has stopped.

Equality is still some way off, but it’s OK not to be a trailblazer or an activist. Someone else will raise awareness; someone will take that inaccessible shop to court, but don’t feel guilty if it’s not you.

You’re only human, after all.

If you want to find out more about Anna’s career, check out her webpage or watch her showreel. 

If you have a story you would like to share, get in touch with Scope’s Stories team.

 

“My guide dog isn’t a sat nav!”

Guest blog by Emily Davison, otherwise known as Fashioneyesta. Emily is a Scope for Change campaigner and stars in our new End the Awkward film made with UNILAD.

My name’s Emily Davison, otherwise known as Fashioneyesta. I’m a university graduate, writer, fashion and beauty blogger and YouTuber. I also happen to be visually impaired and work with a Guide Dog.

Every day I come across many misconceptions towards my disability and in turn I usually find myself in front of my camera or typing away at my laptop discussing these with my followers.

I was keen to take part in Scope’s End the Awkward campaign – to represent the sight loss community and to show that sight loss does not equate to ignorance, being un-fashionable or being stereotyped.

You can’t give my guide dog directions!

In my new film, you see me in an awkward situation around one of the most outlandish myths surrounding my guide dog – which is the common belief that people can give her directions instead of myself, and that she can follow them like a GPS system!

But, of course there are plenty more awkward moments where that one came from…

‘You’re well dressed for a blind person’

As a fashion blogger, comments I hear a lot are to do with my appearance. People will say ‘you don’t look blind!’ or ‘you’re very well dressed for a blind person.’

As if anyone with a visual impairment – simply because they lack sight – cannot have a conception of style, beauty or looking good, which is of course not true.

‘She’s blind and she’s wearing high heels!’

Another one I encounter on a regular basis is ‘Oh my god! She’s blind and she’s wearing high heels, how ridiculous!’ My answer to this is what does sight loss have to do with the clothes I wear? In what context do those two things relate?

I chose to take an interest in fashion because I enjoy the shopping process, I enjoy looking and feeling good and I happen to love wearing high-heeled shoes.

Awkward speed dating

Another time I went speed dating, and after talking to the person opposite me for a few minutes I got onto the subject of being visually impaired.

When I told him about my vision he sat back, blinked and said ‘Oh…Well what do you expect me do say to that?’ And the conversation came to an abrupt, very awkward end.

Young woman sitting on steps near a beach

‘But you don’t look blind…’

On the bus one day I sat on one of the priority seats – those usually reserved for disabled people, elderly people or those with child.

But my guide dog was out of view and therefore to some I could appear to be a ‘normal person’ – a term I use very loosely.

An elderly gentlemen boarded the bus and said to me ‘Can you move please! These seats are for disabled people.’

It just so happened that my stop was next and so instead of staring a brawl I got up to expose my little four-legged friend, in all her guide dog splendour (neon harness).

There was a deadly silence…..He then responded ‘Oh god! No sit back down… it’s…it’s just…you don’t look blind!’

We all make mistakes

Awkwardness is something I experience in my everyday life, we all do, but disability shouldn’t be something to feel awkward about.

If you have ever felt awkward around disabled people – maybe you said something wrong or made someone feel embarrassed – the thing to do is simply apologise.

We all make mistakes in life and as long as we move forward and learn from them, this is what truly matters.

Follow Fashioneyesta

If you would like to keep up to date with my work you can find me on my blog, Twitter and YouTube. And don’t forget to share your awkward stories too as part of End the Awkward.

I want a t-shirt that says “I’m allergic to exercise. No, really!”

Natasha Coates is an elite disability gymnast and Scope Role Model. When she was 18, she suffered a life-threatening allergic reaction and went into anaphalactic shock. Following this she was diagnosed with the rare condition Mast Cell Activation Syndrome.

In this film and blog, Natasha talks to us about competing in disability sport and how the Paralympics is helping to change attitudes towards disability.

I think the Paralympics in 2012 really helped attitudes towards disability. Joe Bloggs down the street might not have had any exposure to disabled people so it made people aware and seeing it on TV and having the athletes interviewed inspired a whole generation of disabled people. It’s definitely helped.

It showed people that being a disabled person doesn’t mean you can’t do sport. Exercise is for everyone, no matter what your age or ability. You can give it a go. You can always adapt things. The Paralympics showed us that.

I’d love gymnastics to be in the Paralympics and to say I was going to Rio but unfortunately it’s unlikely to happen in my career. There’s just not enough of us and there’s not enough international squads. You have to be able to do World Championships first before you can put in a bid for the Paralympics. Hopefully it will get there. I’d love to see it in my lifetime.

I want to pave the way for the next generation. If in 50 years time, gymnasts get the chance to do something I wasn’t able to, that would be amazing.

We’ve published the findings of a new poll which asked disabled people whether the Paralympics can change attitudes to disability and asked what life is like if you’re disabled in 2016. Read more about these findings.

British Gymnastics ensure that gymnastics is a totally inclusive sport and can adapt mainstream gymnastics sessions for disabled people. You can find your local club on the British Gymnastics website.