Category Archives: Campaigns

My physical limitations are often the least of my worries – other people’s attitudes are the problem

Our new report, The Disability Perception Gap, reveals the extent of the negative attitudes that are held towards disabled people – and how many non-disabled people don’t realise the scale of the problem.

Many people have responded to this, sharing their own experiences. In this guest blog, Chloe, who has cerebral palsy, talks about her life as a young disabled woman – and why she became a Scope Role Model to change attitudes.

I like to think that my impairment is a small part of me. In theory this is true, in practice it can be a very different story. Having cerebral palsy and a visual impairment does affect my life and always will do, yet the physical limitations are often the least of my worries. It is actually everything outside of what you would think that is the most limiting, with attitudes being at the forefront of it all.

Subtle prejudice is common, and can be just as frustrating

Negative attitudes towards disabled people are not always the more extreme things that may come to mind. It would be a lie to say disabled people are not faced with hate crimes and people being aggressive towards them. However, attitudes can be much subtler than this. From my own experiences it is so common for people to talk to the person I am with, even if it is about me!

The most recent example of this was when my PA was asked if I would like a copy of the menu in Braille, I was stood right next to her. I personally would not benefit from a Braille menu, but it is amazing the one was available. If the woman would have asked myself then the whole situation would have been perfect and incredibly accessible.

On the other hand, if they are talking to me it can come across as patronising or as if they know what is best for me. I fully appreciate that some people don’t know what to say, but why treat us like we are lower than you just because we have a disability?

Chloe standing in front of students, laughing
Chloe is changing attitudes through her work as a Scope Role Model

We’re seen as not capable of certain roles

I believe that current attitudes can also stem into the roles in society which we are able to play. Sure, we can be Paralympians, motivational speakers or disability activists. In fact I am extremely proud to hold of one these roles.

However, attitudes often limit us to these roles and society forgets we are capable of being their retail assistant, accountant or hairdresser. They forget we have dreams and aspirations just like them over the career we want. I understand that some impairments may limit roles we have to a certain extent but that’s for us to figure out – not to be told by members of the public.

Negative attitudes have made me doubt myself

These types of negative attitudes can have a significant impact. Despite attitudes being the opinions of others, it can make you feel incompetent and less worthy of certain opportunities.

On the other hand, at times it can be hard to justify your own achievements beyond ‘they only gave that to me because I’m disabled’. This is reinforced by the attitudes of other people. It is hard to overcome these views when you are faced with it every day and can be extremely damaging.

It can also lead to moments of doubt, even if this is completely out of character. I clearly remember struggling to walk up a school corridor because I had a cast on which was painful. Two girls, who were several years below me, walked past and for some reason I couldn’t help but be so disappointed in myself.

I’d just become Assistant Head Girl and I was so proud of this but couldn’t help thinking “How on earth are you good enough to be Assistant Head Girl, potentially having younger students look up to you, when you can’t even successfully walk down a corridor!”.

I have learnt that this internal monologue is not true at all, and yet I thought this because of the attitudes I am surrounded by. Fighting them away would have been near enough impossible if it wasn’t for my incredible support network.

Chloe smiles at the camera, with seated students behind her
89% of students felt less awkward about disability after attending a Scope Role Models session

I became a Scope Role Model to change attitudes

So, what is the next step? We cannot go on like this and something must change. In my opinion, improving attitudes can come about by challenging stereotypes which often are deep- seated within society.

We need to open our eyes to the reality of having a disability and that we are not as far forward as we believe. This includes the fact we can play a role within society, but also that having a disability can be hard and can be extremely challenging to live with at times.

Scope Role Model programme is working on normalising disability in schools around the country and I love being part of this. I don’t mind being asked questions by the students and I will be honest with them because this is the only way progress is going to be made. Not everyone has to share their story, but I choose to do so.

Why not see a disabled person as an individual who is just as unique as yourself? A person who is just as capable and who has needs that are just as important. Treat us the same as you would a family member, friend, work colleague or professional. With respect, humanity and belief.

Chloe is a student, writer, disability activist and Assistant Coordinator at CP Teens UK. You can read more of Chloe’s work on her award-winning blog.

Scope’s report is the start of something, not the end. We will be working to better understand how negative attitudes impact on disabled people, and how these can best be tackled.

There’s no single fix for this problem, and as part of our campaign for everyday equality for disabled people, we’d like to hear about your experiences and what you would like to see change.

Will you support our campaign by telling us your experiences?

People think there isn’t much prejudice towards disabled people, but this is my daily reality

Our new report, The Disability Perception Gap, reveals the extent of the negative attitudes that are held towards disabled people – and how many non-disabled people don’t realise the scale of the problem.

In this guest blog, Abbi, who has brittle bones, talks about her life as a young disabled woman – which is far from prejudice free – and why it’s vital that the public recognise this.

It’s May 2018, and my friends and I are on a university reunion weekend in Cambridge, dancing the night away in our favourite shabby student nightclub. As always, my being disabled is a practical consideration of the night – my friends are well-trained in lifting my wheelchair up steps, or dancing in a protective circle if the club is particularly crowded – but beyond that, I’m just part of the group.

Until suddenly, I’m not.

First, I notice a group of boys with a phone camera trained on me, laughing. The boy holding the phone turns the screen to his friend, who laughs too. In the centre of the screen is a video of me, dancing. I shrug it off.

Just as I’m beginning to forget the incident, a man leans down to my shoulder. If I were non-disabled, I might think he was going to offer me a drink, or warn me I’ve got my skirt tucked into my knickers, but as a young disabled woman in 2018, I know exactly what’s coming.

“I just want to say,” he shouts, “I think you’re really inspiring…”

Abbi, a young disabled woman, smiles as she sits in her wheechair

I live my life under the scrutiny of strangers

It’s been four years since Scope’s last report on public perceptions of disability, and I’ve been dancing in that Cambridge club for all of them. Perceptions have changed – but not enough. Disabled people continue to be stereotyped either scroungers, raking in benefits without contributing to society; or inspirations, overcoming all odds to bravely struggle to the shops (and maybe winning a few Paralympic medals along the way).

I’ve lost count of the number of times total strangers have unexpectedly started pushing my wheelchair along streets or across roads, apparently never considering how I would have appeared there in the first place, had I not been able to push myself. I’ve been ‘brave’ in supermarkets and ‘inspiring’ at bus stops; I’ve also been ‘faking it’ in a Blue Badge parking space, and ‘milking it’ at a train station.

I live my life under the near-constant scrutiny of strangers – yet, according to Scope’s recent study, only 22 per cent of non-disabled people still feel there is a lot of prejudice against disabled people, compared with 32 per cent of disabled people.

Until people acknowledge the persistence of prejudice, nothing will change

It’s true that, in theory at least, the UK is becoming more disability-friendly. Accessibility information is often clearly advertised on websites for theatres and events; job applications often reference the employer’s commitment to equality; high-profile court cases such as Doug Paulley’s case against FirstGroup suggest that disabled people can go anywhere, achieve anything.

In practice, even where buses and trains are accessible, wheelchair users continue to be refused access because the designated spaces are filled with luggage or pushchairs. Disabled people have to apply to an average of 60% more jobs than non-disabled people. People with invisible disabilities continue to be berated for using accessible services, or reported to fraud prevention hotlines (despite disability benefit fraud rates standing at under 1% – the lowest of any benefit). Even my own doctors are often surprised that my wheelchair is self-funded, wrongly assuming – like many non-disabled people – that the NHS provides appropriate wheelchairs for free.

It’s easy to see how non-disabled people might believe we live in a largely ‘disability-friendly’ country. The reality is starkly different – as disabled people, and their friends and families, know all too well. And until the non-disabled population recognises the persistence of prejudiced or unequal behaviours, attitudes and systems towards their disabled counterparts, it is impossible for the balance to change.

This report is the start of something, not the end. We will be working to better understand how negative attitudes impact on disabled people, and how these can best be tackled.

There’s no single fix for this problem, and as part of our campaign for everyday equality for disabled people, we’d like to hear about your experiences and what you would like to see change.

Will you support our campaign by telling us your experiences?

The things that people say never go away

Our new report, The Disability Perception Gap, reveals the extent of the negative attitudes that are held towards disabled people – and how many non-disabled people don’t realise the scale of the problem.

Marie is a college tutor, wife and mother whose experiences feature in the report. In this blog, she revisits some funny and not so funny moments, and talks about the impact of negative attitudes.

I’ve got osteogenesis imperfecta, also known as brittle bones. It means my bones can break easily so I use wheelchair, I can’t stand or walk. I’ve experienced negative attitudes throughout my life – some awkward moments you can’t help but laugh at, and others which have actually held me back from living my life.

Because I’m disabled I couldn’t possibly have a love interest

I can’t tell you the number of times people have bumped into lampposts or tripped over on the street because they are too busy staring at me. When I’m out with my husband Dan, it can be even worse.

Once, when we’d just started dating, we were on the way home from the pub, holding hands and we stopped to look at the stars. What could be more romantic? A kiss seemed like the natural thing to do.

After a moment, I became aware that a police car was driving past very slowly. The officer was staring out of the window and was concentrating so hard on us that he ended up mounting the pavement and crashing into a street sign. We couldn’t believe it! A few seconds later he sped off, clearly embarrassed.

We still laugh about that incident now. We have to laugh – if we took these things too seriously it could start to mess with our heads.

Marie and Dan kiss outside the church on their wedding day
Marie and Dan share a kiss on their wedding day

We often hear people making comments. People don’t blink an eyelid if they see any other couple kissing in the street but because I’m in a wheelchair and Dan’s not, we become an immediate target. I think when people see us, they can’t quite believe that a guy who isn’t disabled could have fallen in love with me.

If Dan and I aren’t being affectionate, it’s a different story. Trying to convince people he’s my husband takes some doing. One time, a hospital consultant asked me if Dan was my dad! When I said no, she presumed he was my brother, then my uncle, and finally my carer. I let her go on and on before she petered out. It’s that  assumption that because I’m disabled I couldn’t possibly have a love interest.

I was told “We don’t have any jobs for people like you”

When I finished my degree in Health and Social Care in 2011 I didn’t have a lot of luck finding a job. I went to the Job Centre for support and their attitude was “Why do you want to work?” and “We don’t have any jobs for people like you.” There was no help or aspiration.

Being told not to bother working made me feel angry and upset. I’d spent so many years studying, I’d put everything into my degree, I’d worked in the past and I wanted to progress. It made me feel worthless, like I couldn’t contribute towards society like anyone else.

Woman wheelchair user holding a sign saying "#workwithme"
Marie features in Scope and Virgin Media’s employment campaign, Work With Me

I decided not to put that I was disabled on my CV because I felt like I wouldn’t get an interview. I often managed to get interviews but when I turned up I could tell by people’s reactions that I wasn’t going to get that job. I think it was largely because they didn’t understand my impairment and didn’t want to take the chance.

If you’re disabled, it can be difficult to progress in your career too. I’ve had many different jobs and at times I felt like I was being treated like a child because employers didn’t allow me to use my skills and knowledge. I ended up leaving one job. If people aren’t going to accept me for who I am and what I can do, why stay?

The things that people say to you never go away. There have been times where bad attitudes have made me feel like “What’s the point in working?” I just wanted to find an employer who would give me a chance, like anyone else would be given a chance.

This report is the start of something, not the end. We will be working to better understand how negative attitudes impact on disabled people, and how these can best be tackled.

There’s no single fix for this problem, and as part of our campaign for everyday equality for disabled people, we’d like to hear about your experiences and what you would like to see change.

Will you support our campaign by telling us your experiences?

Our new report shows disabled people still face negative attitudes

Our new report, The Disability Perception Gap, reveals the extent of the negative attitudes that are held towards disabled people – and how many non-disabled people don’t realise the scale of the problem.

The way other people act towards us can have a huge impact on how we view ourselves and our role in society. An occasional moment of rudeness or being ignored may be a minor inconvenience or annoyance. But the more it happens, the more the impact adds up.

For many disabled people, this will sound all too familiar. Whether it’s outright hostility, or seemingly minor incidents that add up to a hostile atmosphere, prejudice remains a common occurrence. Negative attitudes from others can be one of the biggest barrier to disabled people living life the way they want, and more needs to be done to tackle them.

The research in this report was carried out on behalf of Scope by the National Centre for Social Research as part of the annual British Social Attitudes Survey.

What is the Perception Gap

According to our new research released today, one in three disabled people still feel that there’s a lot of prejudice against disabled people. But only one in five non-disabled people think the same. This is what we’re calling the disability perception gap.

It may seem self-evident that disabled people face prejudice, but many non-disabled people do not understand the scale of the negative attitudes towards disability.

Some difference wouldn’t be surprising – disabled people have to live with this prejudice every day, whereas non-disabled people may only ever know about it second hand.

But this gap is growing. In 2000, there was only a slight difference between the views of disabled and non-disabled people when it came to disability prejudice. Over the last 20 years, however, the gap has trebled.

Illustration of the gap in perception between disabled and non-disabled people
“The gap between disabled and non-disabled people’s views of prejudice has trebled since 2000” – Disability Perception Gap

There is now a real danger that many non-disabled people think that disability prejudice has been tackled long before it has been, which could block further attempts to improve the situation. Instead of this complacency, we need to make sure that the experiences of disabled people are listened to and put at the heart of any programme designed to address negative and harmful attitudes.

Being close to disability can help

When it comes to improving understanding, it seems that nothing beats personal contact with a disabled person. Whether it’s a colleague, a friend or a family member, having a relationship with a disabled person makes a real difference to non-disabled people’s attitudes.

For example, 10 percent of people who claim not to know any disabled people think of disabled people as ‘getting in the way’ some of the time – an opinion held by only 3 percent of people with a disabled colleague.

However, a third of the population claim not to know a single disabled person. This means that their views on disability are far more likely to be based on stereotypes than any knowledge of what life is like for a disabled person.

Any attempt to improve attitudes will have to increase people’s understanding of what it means to be disabled, and the challenges that disabled people face on a daily basis.

Driving change

To do this requires a concerted effort across society to tackle prejudice and negative attitudes towards disabled people. This should include a variety of spaces; from the classroom to the boardroom, and all points in between.

This is why we are calling for efforts to get more disabled people into work to be amplified. With only 7 percent of people saying they have a disabled colleague, a million more disabled people in work could make a real difference to people’s views of disability and disabled people.

It’s why we’re calling on the media to do more to ensure that disabled people and their experiences are properly represented on screen. By supporting disabled talent, they can show what it means to be disabled in 2018.

Such efforts on their own will help, but they won’t be sufficient. We need a coherent approach to improving attitudes across all areas of life. Earlier this week the Government announced a new working group to look at the issues facing disabled people.

We’re calling on this group, and the rest of Government, to take prejudice seriously and launch a new cross-departmental disability strategy, focussed on improving attitudes and reducing prejudice towards disabled people.

What comes next?

This report is the start of something, not the end. We will be working to better understand how negative attitudes impact on disabled people, and how these can best be tackled.

There’s no single fix for this problem, and as part of our campaign for everyday equality for disabled people, we’d like to hear about your experiences and what you would like to see change.

Will you support our campaign by telling us your experiences?

Why I encourage talking about mental health at work

This year, Mental Health Awareness Week (14-20 May) is focusing on stressNot only can stressful work environments impact on your mental health, if you don’t feel supported, it makes things even harder.

Richard worked for years in a high pressure environment which sometimes made his OCD symptoms worse, but he carried on working, until the attitudes of his managers  made it impossible. Now Richard has set up his own company where he promotes a supportive work environment. In this blog, he shares his story.

I’ve experienced symptoms of Obsessive Compulsive Disorder (OCD) since childhood, and was formally diagnosed at 25 whilst working as a producer at an independent production company in London.

Talking about my OCD never seemed like an option

Looking back, I think the moment to moment existence of being a freelancer, constantly having to think about your professional reputation in an environment with high staff turnover and time pressures, made talking about my OCD never seem like an option, although sometimes it could be hard to hide from colleagues.

I never took a day off sick, and if anything I think my OCD may have increased my work productivity as losing myself in work could be a distraction from my anxiety. But there is no doubt that being in high pressure work environment could make my symptoms more distressing, which impacted on my overall well being and personal happiness.

It was during this time that my symptoms intensified , I was experiencing intrusive thoughts and my obsessive behaviour escalated to point where even simple day to day tasks such as leaving the house were taking up to an hour to complete.

It felt as if I was at a point of crisis. I reached out to some close friends and with their support and encouragement  I eventually gained the confidence to visit my GP.

Throughout this, I was still going to work, I didn’t take a day off, and was doing my job.

Unless the ‘old Rich’ came back, my job would end

I lost insight into my OCD day by day and my anxiety levels continually rose.  I didn’t receive any support from my colleagues until one day when two of my senior managers asked to speak to me.

I was taken into a meeting room and told that they wanted the ‘old Rich’ back. Still terrified to admit I was unwell, I sat through the conversation not able to say a word. The conversation resulted in me being told that unless the ‘old Rich’ came back then my job would end.

There was no sense of compassion or concern, no observation that my behaviour could have been a symptom of my mental health, or that I could of been struggling and unwell. My contract shortly ended and I didn’t work at the company again, not that I wanted to.

Creating a supportive work environment

In 2010, a few years after this experience, I set up my own production company, along with a close friend. The pressure of that can sometimes exacerbate my symptoms but the reward and freedom, and having supportive colleagues that understand the realities of OCD and its impact, has been really valuable.

I think my experience with OCD may have contributed to the kind of work we now specialise in; human interest stories of challenge and triumph.

As an employer, I encourage openness, celebrate diversity and champion difference. I genuinely believe that we are all different, we all have our struggles and creating a supportive work environment not only enriches those we work with but also benefits the work we do.

Mental Health Awareness Week is a great time to talk about mental health and reduce the causes of work-related stress. If you’d like help creating a mentally healthy workplace, have a look at the resources on Mind.

If you’re experiencing problems with your mental health, or worried about someone you know, you’re not alone. There are a range of ways to get help.

Could you be part of the next generation of disability campaigners?

We are looking for aspiring young campaigners to join Scope for Change, our campaign training programme for disabled people aged 18 to 25. It’s a free, six-month programme, and no previous campaigning experience is needed. Find out more and apply to take part.

Disabled people face many barriers to equality – whether it’s negative attitudes, unnecessary extra costs, inaccessible environments or a lack of support in education or work. But we know that it doesn’t have to be this way, and that young disabled people have the drive and skills to help make change happen.

We first launched the Scope for Change programme in 2016 to support young disabled people gain the skills and confidence to campaign on issues they cared about . This first group of campaigners set out to tackle a variety of issues: encouraging museums to be more autism-friendly, making British Sign Language lessons at university more accessible and affordable, gaining step-free access to local transport, and raising awareness of hidden impairments.

Ellie, who took part in 2016, campaigned for greater accessibility at nature reserves. Here’s what she had to say about her campaign:

“I want to further educate those working in the conservation sector to make sites of natural interest as accessible as possible: providing ramps up to bird hides, having blue badge parking spaces, braille or audio information boards, allowing assistance dogs, and accessible toilets… Opening up the senses in particular for those with profound and multiple disabilities is so important – and where better to do that than a national park?”

It wasn’t just their campaigns that benefited – many of the group said that being part of Scope for Change gave them a sense of solidarity with other disabled people and boosted their confidence. No longer feeling like they were working alone, the campaigners could collaborate, share experiences and learn from each other.

Why get involved?

Now Scope for Change is back for a new generation, to tackle more obstacles on the road to everyday equality. We want disabled young people to be empowered to make decisions about their lives, influence change, and make real progress in their communities and wider society.

Over a six-month period, we will support the Scope for Change group to plan, launch and their own campaigns to make change on the issues that matter to them. This will be backed up with ongoing support from Scope staff and a three-day residential training event to learn all the skills needed to create a winning campaign strategy.

Does this sound like the opportunity for you? Apply for Scope for Change now – applications close on Monday 28 May.

When I became disabled no-one would hire me, but Scope helped me find a job I love

Simone never had a problem looking for jobs before she became disabled. She had good references, experience and qualifications, but when she developed repetitive strain injury, it seemed like none of that mattered. After 15 months of getting no responses, Simone had lost her confidence and her hope. In this blog, she talks about how Support to Work helped her turn things around.

I developed repetitive strain injury a few years ago, a condition which affects my arms and my hands. My employer did try to make adjustments – things like speech recognition software and an adapted keyboard – but it got to a point where being on a computer even for 20 minutes caused so much pain. So, I made the decision to change career.

I didn’t think finding another job would be too difficult. I knew I wouldn’t be able to do lots of computer work, but I had so many transferable skills. But after 15 months of applying for jobs with no response, I lost hope. It got to the point where I was just applying for anything.  It didn’t matter what it was or what the pay was, I was just desperate to work. But I still couldn’t find someone to employ me.

A woman stares into the distance, in front of a bus stop
Disabled people, on average, have to apply for 60% more jobs than non-disabled people.

It was probably the lowest point of my life

It really knocked my self-worth and my self-confidence. You start to feel like you’re not worthy of being employed despite having a great career history. I felt like all my qualifications had been for nothing.

I felt lost, and when you get to that point, you need someone who can sit down with you and go “Okay, so these are your strengths and these jobs would suit you.” But I couldn’t find anyone willing to help. One agency told me “It’s unfortunate but employers will look at you as a liability.”

Then I got in touch with Scope.

The right support turned my life around

They were really quick to get started. When the employment adviser, Zaid, looked at my CV he said, “Wow, this is brilliant. I’m confident that we can help you.”

A women holder a file with office behind her

“I felt a sigh of relief. It felt like someone finally had my back, after months of feeling so alone.”

The main thing that Support to Work helped me with was my confidence. Because my confidence had taken such a huge knock, I didn’t feel like an employer should employ me. I didn’t think I was worth it. But when Zaid made so many nice comments about my CV and gave me so many ideas for what I could do, I started to believe in myself again.

I think I’d been coming across as negative on applications, but he helped me find the right approach to tell employers about my condition and talk about what I can do with simple adaptations.

With my new-found confidence, I applied for a role as Operations Assistant and I got an interview straight away. The interview went really well and I was offered the job! I felt uplifted. I was so happy. I was smiling for days.

For a long time, I couldn’t see a future but Support to Work really turned my life around.

Two women and a man chatting in an office, holding mugs
If you’re a disabled job-seeker, Support to Work can help you build confidence and develop skills for your job search.

My advice for employers

I love my job and I feel like my employers have exactly the right attitude. At the interview, I talked about my condition and they said, “You’ve got the skills we’re looking for, it won’t be a problem”. It put me at ease straightaway. I wish all employers thought like that when it came to hiring people.

Once in work, employers should make conversations about adjustments easy. In my current role, I feel confident that I could ask for changes if I needed them. I’ve got an open communication with my manager so if I do have any problems we can find a way to work around it. I also think they should be open to doing things differently. At work, I’m not afraid to say, “Look this is a bit much, can we do it a different way?”

Another piece of advice is to take advantage of schemes like Access to Work, which paid for my adaptive equipment – things like dictation software and an adapted keyboard – it hasn’t cost my employer anything and it enables me to do my job well.

Ultimately, I want employers to look beyond someone’s impairment or condition and focus on the skills and experience that they would bring to the role. Just because someone is disabled, doesn’t mean they won’t be an asset for your organisation.

Support to Work is funded by Virgin Media as part of our three year partnership to understand and tackle the issues disabled people face getting into and staying in work.

Our ambition is to reach one million disabled people with employment information and support by the end of 2020, so they can get into work, stay in work and realise their career ambitions.

If you’re a disabled job seeker, you can sign up to Support to Work on Scope’s website.

Tell the Government about your experiences as a disabled consumer

Last week the Government published a consultation called Modernising Consumer Markets, which is looking at ways to improve how different markets work for consumers.

We know that disabled people often face challenges as consumers, which can drive up the cost of essential goods and services. Below we outline what this consultation is about and some of the changes we want to see for disabled people.

What is this consultation looking at?

This Government wants to hear about ways to improve consumers’ experiences across different markets. This includes both regulated services such as energy and insurance, as well as private sector businesses selling things like food and clothing.

Whilst the Government wants to ensure that markets are competitive, there is an acknowledgement in this consultation that no one should be exploited if they lack the time or capacity to engage, and that “vulnerable” consumers need to be protected.

Some of the proposals the Government is considering including making it easier for consumers to compare the performance of businesses, and simplifying terms and conditions when consumers enter into new contracts. The Government is also interested in the role that data could play in helping consumers get the best deals or receive targeted support and advice – recognising the need to balance this with preserving privacy for consumers.

Improving disabled people’s experiences as consumers

There are almost 14 million disabled people in the UK, whose combined household expenditure, the so-called ‘purple pound’, totals £249 billion a year.

However, we know that disabled people often face challenges as consumers, which can drive up the cost of essential goods and services. Our research shows that on average, disabled people face extra costs of £570 a month related to their impairment or condition.

In some instances, disabled people are unable to access the products or services they need. For instance, our research shows that over half (55 per cent) of disabled adults have been unable to make a purchase because of an inaccessible website. Tackling these barriers is key to ensuring consumer markets work for disabled people.

Disabled people commonly tell us about experiences of poor customer service or a lack of disability awareness from businesses. We want to see a more consistent approach from businesses to supporting disabled consumers, particularly within regulated markets.

It’s also important that consumers are able to seek redress when something goes wrong. However, disabled people say that they are often put off making a complaint because of things like the length of time it can take and a lack of trust in the process. These challenges need to be addressed as part of this consultation.

How you can get involved?

This consultation is an opportunity for you to share your consumer experiences. The deadline for responses is 11:45pm on 4 July 2018.

You can email a response to ConsumerGreenPaper@beis.gov.uk

If you’d prefer to send a written response, you can write to:

Consumer Green Paper Team
Department for Business, Energy and Industrial Strategy
1st Floor, Orchard 3
1 Victoria Street
London
SW1H 0ET

What Scope will we be doing

We will be submitting a response to this consultation, highlighting the changes needed to ensure disabled people receive a fair experience across different markets.

We want to ensure this consultation reflects the issues facing disabled people as consumers. You can share your experiences with us by completing this short survey.

For further information about the consumer green paper, please contact Ben Wealthy in the policy team on ben.wealthy@scope.org.uk.

“I have problems with my mobility and I’m at home every day. As a result, my energy bill has shot up”

Our new report, Out in the cold, reveals the high costs many disabled people face for their energy. 

Over a third of disabled people say that their impairment or condition has an impact on their energy costs. Many disabled adults have worried about paying their energy bills, and many disabled households are living in fuel poverty. 

This follows our research published last week which found that on average, disabled people face extra costs of £570 a month related to their impairment or condition.  

Paying more for energy is something that Lynley knows all too well. When she became disabled her energy costs shot up. In this blog, Lynley talks about the impact this has had on her life.

Three year ago I suffered a sacral spinal fracture due to early-onset osteoporosis, which damaged nerves and has left me with permanent neurological pain.

Before I became disabled, I never gave the heating a thought. It wasn’t on very often, but things are different now. I have problems with my mobility and I’m at home every day. As a result, my energy bill has shot up. 

When you can’t move around, you feel the temperature much more and being cold affects my pain levels enormously. I have to wear extra layers of clothing to keep warm and I need the heating on constantly.

I also have an electric blanket for my bed and an electric heat pad which I use to help with my pain. I use electricity to charge my electric powerchair which I need to use to get around outside the house. This needs charging frequently so it’s another additional energy cost.

My bill is so much higher than before. Coupled with the loss of my income as a teacher, this has made ‘getting by’ very difficult. Personal Independence Payment (PIP) helps but there is very little money left over for anything else. I have to prioritise heating so that I’m not in pain.

Life is now very different

Since becoming disabled, my living standards have changed dramatically. I was a professional secondary school teacher in a large comprehensive and was managing five members of departmental staff. I had a large amount of disposable income and enjoyed a fairly busy social life. Things are now very different.

I’m unable to work and now try my best to manage on my benefits  and my small pension but it is very difficult sometimes. Energy costs take up a substantial portion of my income. It’s even harder where I live because we are unable to get mainstream gas and have to rely on oil central heating which is extremely expensive.

Any kind of social life is extremely difficult, holidays are a luxury and disposable income is now virtually non-existent.

What would help

It’s not fair that disabled people who need more energy and who might be on lower incomes  have to meet these extra costs themselves.  There should be more support and awareness. I haven’t received any form of financial help with my energy costs.

Benefits like PIP are there to supposedly fill the gap but it is insufficient to really make a difference. I would like to see a different energy tariff applied if there is a disabled person within the home, much the same as the council tax rebate we are eligible for.

That would make a big difference to my quality of life.

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We also have information about support with your fuel bills

“I’m 22 and financially screwed” – help us tackle the disability price tag

Our new report The disability price tag highlights how disabled people on average face extra costs of £570 a month related to their impairment or condition. Many disabled people have shared their experiences of extra costs with us, and the impact that this has on their lives. It’s an injustice that needs to change. In this blog, Piers, a student in Wales, shares his experience. 

I’m currently studying for a Masters in Physical Oceanography. Being at university, surrounded by my non-disabled peers, has really highlighted the sheer amount of extra money that I have to spend, just because I happen to use a wheelchair.

“I’d say that every month I have an extra cost of about £1300 compared to my non-disabled friends.”

Firstly, my wheelchair itself was incredibly expensive and I had to pay for that myself. The wheelchair offered by the NHS was unsuitable for my needs, so I had to pay over £4,800 for one just to be able to get around and go to lectures just like everyone else.

On top of that, on average, I spend another £300 a month replacing parts and maintaining the chair. Even with this upkeep, it needs to be completely replaced every three or four years.

My housing is also more expensive than my friends – the only accessible student housing available is £110 per week, whereas friends of mine pay as little as £40 a week for similar housing.

Travel costs are increased due to the unreliability of public transport, the nature of hills in North Wales and the location of my lectures. I have to spend about £400 a month on taxis just to get around.

Food costs are also higher. I require easy to prepare food, either pre-chopped or in small quantities. My friends can buy items like pasta in bulk or do a large shop and carry it home. Unfortunately as a wheelchair user, it’s really difficult to manage more than a small basket of items whenever I go shopping. So this can increase my monthly bill compared to my friends by an extra £150.

Related to that, because so many shops aren’t accessible, I have to order a lot of the things I need online and get charged for postage. It may not seem much per item but all of those payments add up over the year.

Man holding a basketball on a court playing wheelchair basket ball

Financially, I’m screwed

My income each year is decreasing. Even with a student loan, Disabled Students’ Allowance and Personal Independence Payment (PIP), I still face a monthly shortfall.

It plays havoc with my social life because I can’t afford to do much, and if I do anything I’m worried about its cost. I have to take almost every freelance opportunity to earn any money I can to try to keep myself afloat, which impacts on my studies.

It’s socially exclusionary as well because my friends stop asking me to go do things with them because they assume I can’t afford things, which means I do even less.

Basically I’m 22 and financially screwed. It’s almost impossible to get a part time student job just because I use a wheelchair. I’ll be leaving university with at least £130,000 debt.

Man on a beach in a wheelchair next to a sign that says 'seating on promenade prohibited'

What needs to change

Firstly, businesses have a huge role to play. I’d love it if the items I needed to live independently weren’t extortionately priced. Companies know that as a disabled person I need the item so they can charge whatever they want. And there should be no delivery charge or a minimum spend for disabled customers.

There should be increases to PIP so it’s in line with the reality of these extra costs and investment into accessible housing so that it isn’t a quality that increases prices of housing astronomically. I also want to see the NHS bespoke wheelchair service restored and free NHS treatment – this would greatly reduce my extra costs.

Related to this, there’s the issue of employment. Extra costs aside, people rely on employment for financial security, yet there are many barriers to employment for disabled people – employers’ attitudes and discrimination being one of them.

Help us tackle the extra costs faced by disabled people. Find out more about extra costs, then share our report on Twitter or Facebook.

You can also read more stories or share your own experiences in our extra costs discussion on the community.