Category Archives: Campaigns

How can the next government ensure disabled people have the support to live independently?

We want the next government to deliver Everyday Equality with disabled people. It must put the interests of disabled people at the heart of its agenda, and deliver meaningful change over the next five years to tackle the barriers that prevent disabled people from participating fully in society.

A key part of Everyday Equality is having the right support to live the life of your own choosing. However, there are still a range of barriers that make this difficult for disabled people, from inadequate social care provision, to inaccessible physical environments and digital exclusion.

That’s why we are calling on the next government to ensure disabled people have the support to live independently.

Increasing investment in social care

Social care is an essential public service that supports disabled people to get up, get dressed and get out of the house.

Around a third of social care users in England are working-age disabled people. However, we know that more than half are not receiving the right care to support them to live independently.

Text says, Over half of disabled people using social care can't get the support they need to live independently

This means not enough disabled care users are getting the support they need to live independently, work, volunteer, and live full, meaningful lives.

In order to ensure disabled people are getting the right level of support, it is crucial that the issue of inadequate funding in social care is addressed. Whilst we have seen some recent investment, the funding gap in our social care system is estimated to rise to £2.8 billion by 2020.

That’s why we are calling on the next government to increase investment in social care so that disabled people of all ages are able to access the support they need to live independent lives.

Improving access to everyday services  

Living independently means being to have choice and control over your life, whether as a consumer, whilst travelling, or whilst socialising.

However, we know that disabled people often face barriers in accessing day-to-day markets, services and amenities.

For instance, less than a quarter of disabled people think the accessibility of pubs, restaurants, clubs and shops has improved since 2012. In the digital world, 25 per cent of disabled adults have never used the internet compared to 6 per cent of non-disabled adults, often due to a lack of digital skills or inaccessible websites. This means disabled people are more likely to miss out on the best deals and offers which are commonly found online.

We want the next government to ensure equal access to goods and services for disabled people by increasing compliance with the Equality Act, and tackling the digital divide between disabled people and non-disabled people.

Tell us what living independently means to you  

You can read more about our priorities for the next government and how you can register to vote in this election.

What does living independently mean to you? What would getting the right support from social care enable you to do? Email the stories team and tell us your experience – stories@scope.org.uk 

You can also join the conversation on social media by using the hashtag #EverydayEquality.

How can the next government improve disabled people’s financial security?

We want the next government to deliver Everyday Equality with disabled people. It must put the interests of disabled people at the heart of its agenda and deliver meaningful change over the next five years to tackle the barriers that prevent disabled people from participating fully in society.

A major barrier to achieving everyday equality is the additional costs disabled people face as a result of their impairment or condition.

That’s why we are calling on the next government to improve disabled people’s financial security.

Life is more expensive if you are disabled

On average, disabled people spend £550 a month on costs related to their impairment or condition. These costs may include expensive items of specialised equipment, higher heating bills, or more costly insurance premiums.

Infographic reads: Life costs more if you're disabled. On average, disabled people spend £550 a month on disability related costs

These costs have a detrimental impact on disabled people’s financial stability. For instance, disabled people have an average of £108,000 fewer savings and assets than non-disabled people, whilst households with a disabled person are more likely to have unsecured debt compared to households without a disabled member.

The financial barrier of extra costs makes it harder for individuals to get into work, access education and training opportunities, and participate fully in their community.

It is vital that the next government tackles the financial penalty experienced by disabled people.

Ensuring disabled people have adequate support to meet extra costs

Personal Independence Payment (PIP) – the successor to Disability Living Allowance (DLA) – plays a key role in helping disabled people meet some of the additional costs of disability.

However, we know that applying for PIP is often a stressful process for disabled people. Our helpline saw a 542 per cent rise in PIP-related calls in the period April 2016 to March 2017 compared to the year previously, many of which were concerning difficulties disabled people and their families were experiencing with the assessment.

The assessment for PIP looks at how a person’s impairment or condition impacts upon their ability to carry out a series of day-to-day activities. We are concerned that this does not always capture the full range of additional costs that disabled people face. This can be seen by the fact that two thirds of individuals are successful when they appeal a decision following their PIP assessment.

That’s why we’re calling for the next government to protect the value of PIP and develop a new assessment for the payment that accurately identifies the range and level of disabled people’s extra costs.

We also know that life is particularly difficult for families where both adults and children face disability related costs.

As such, we want to see PIP and DLA act as a passport to other benefits for families with disabled children, such as free school meals and support with health costs.

Driving down extra costs

Action is also needed to drive down the extra costs that disabled people face in the first place.

Households with a disabled person spend £249 billion a year, the so-called “purple pound”. Yet, disabled people are too often unable to access essential goods and services at an affordable price, making it difficult to capitalise on this spending power.

Many disabled people also encounter poor customer service from businesses, with three quarters having left a shop or business because of a lack of disability awareness.

Two particular sectors where disabled people tell us they struggle as consumers are energy and insurance. For instance, Scope research shows that 29 per cent of disabled people have struggled to pay their energy bills in the past year. In the insurance market, two and a half million disabled people feel they have been overcharged for insurance because of their impairment or condition.

We want the next government to make sure essential markets, such as energy and insurance, have adequate services and support in place to help tackle the problem of additional costs and empower disabled people as consumers.

Tell us what being financially secure means to you

You can read more about our priorities for the next government and how you can register to vote in this election.

What does being financially secure mean to you? Email the stories team at Scope and tell us your experience – stories@scope.org.uk.

You can also join the conversation on social media by using the hashtag #EverydayEquality.

How the next Government can make Everyday equality a reality

In just six weeks’ time voters will go to the polls to have their say in the General Election. 

Today we are setting out our calls for the next government – commitments and changes we are asking for so that by 2022 disabled people have the same opportunities as everyone else: Everyday equality.

We know that in 2017, life is still much harder for many disabled people than it needs to be. Too often disabled people can’t access the support they need to at home, in education or work and face negative attitudes, extra costs and pressures on family life.

Action is needed in a range of areas which is why we would like the next government to take a cross-government approach to disability which tackles the barriers that prevent disabled people from participating fully in society.

Today we are calling for action in three main areas:

Improving disabled people’s work opportunities

Text on infographic reads: Disabled people are almost twice as likely to be unemployed as non-disabled people

Many disabled people want to work but continue to face huge barriers without the support they need to find, stay and progress in work. The disability employment gap – the difference between the employment rates for disabled and non disabled people – has stood at over 30 percentage points for over a decade and less than half of disabled people are in work.

We are calling on the next government to commit to halving the disability employment gap and report publicly on the progress it is making towards this target. We also want to see reforms to the support disabled people receive in and out of work, including the Work Capability Assessment, changes to sick pay and ending benefit sanctions.  It is vital that the government also provide better careers advice, work experience and opportunities for apprenticeships for young disabled people.

Ensuring disabled people have support to live independently

Social care plays an important role in supporting many disabled people to live independently, work, build relationships and be part of their local communities. However, we know that over half of disabled social care users aren’t getting the support they need to live independently.  We believe the next government should invest in social care so that disabled people of all ages get the support they need.

It’s also vital that the government tackles the barriers disabled people face getting online as just 25 per cent of disabled adults have never used the internet compared to 8 per cent of non-disabled adults. The next government should commit to improving digital skills and increasing digital accessibility.

Improving disabled people’s financial security

Infographic reads: Life costs more if you're disabled. On average, disabled people spend £550 a month on disability related costs

Disabled people spend on average £550 a month on costs related to their impairment or condition. Extra costs may include specialist equipment or higher heating bills.

Personal Independence Payment (PIP) is vital in helping disabled people meet some of these costs. Many disabled people face difficulties when applying for PIP and the assessment decision is often overturned at a later date.

We would like to see the next government protect the value of PIP and develop a new assessment that more accurately identifies the extra costs disabled people face.

Disabled people often have negative experiences as consumers and receive a poor service from businesses. That’s despite disabled people’s households spending £249 billion a year. Therefore, we are calling on businesses and regulators to improve the experiences of disabled customers and give greater consideration to how they can support them.

There are 13 million disabled people in Britain – a hugely significant number of votes – and 89 per cent of voting age disabled people have said they will vote at the next election. We are calling on all candidates to listen to and engage with disabled people and for whoever is next in government to deliver that strategy which will achieve everyday equality for disabled people.

Throughout the election look out for opportunities to engage with your local candidates at events, hustings and talk to them about what everyday equality means for you.

Infographic with text: There are 13million disabled people in the UK - 21 per cent of the UK population

Find out more about how you can register to vote in this election in our latest blog and share on social media what everyday equality means for you by using the hashtag #Everydayequality. 

General election 2017: Make sure your voice is heard

Prime Minister Theresa May has called a snap general election to take place on Thursday 8 June.  Find out how you can vote in this blog. 

The next Government has an opportunity to tackle the barriers faced by disabled people and help deliver everyday equality by 2022.

It’s important that the voices of disabled people are heard in this election. Voting, as well as taking part in election events in your local area, gives you the chance to tell politicians what’s important to you and what you would like to see them do.

All polling stations should be wheelchair accessible and support disabled voters.  If you need to use a disabled parking space, these should be clearly visible and monitored throughout the day.

There are lots of ways you can be supported to cast your vote inside a polling station:

  • If you cannot mark your ballot paper, members of staff called Presiding Officers may mark your ballot paper for you. You may also attend the polling station with someone who you would like to mark your ballot paper on your behalf.
  • Polling stations should provide tactile voting devices. The tactile voting device attaches on top of your ballot paper. It has numbered flaps (the numbers are raised and are in braille) directly over the boxes where you mark your vote.
  • Polling stations should provide large print versions of ballot papers.

Polling stations should be accessible for everyone wishing to vote. If for whatever reason your local polling station isn’t accessible, Presiding Officers should provide you with a ballot paper and allow you to vote outside of the polling station. Find out more information about what happens at polling stations.

If you visit a polling station and find it inaccessible, you can complain to your local authority.

Reform is needed to halve the disability employment gap

The Government’s Green Paper consultation on Work, Health and Disability closed last week. Find out how we responded to the consultation and which areas we argued need action from the Government.

The Government has made a welcome commitment to halve the disability employment gap – the difference between the employment rate of disabled people and non-disabled people – which has stood at around 30 percentage points for over a decade. If the Government is serious about increasing disability employment, then it must tackle the barriers individuals face to entering, staying and progressing in work.

Improving out-of-work support

Too many disabled people aren’t getting support to get into and remain in employment. Where disabled people do access support, at Jobcentres or through employment support schemes, many feel it is too generic and does not take account of their needs or interests.

It is vital that all disabled people who want to work have access to voluntary, specialist support that is tailored to their needs. Taking part in any form of employment support should be completely voluntary for disabled people, and have no impact on the financial support they receive.

As well as this, Scope wants to see a total reform of the “fit for work” test, the Work Capability Assessment (WCA), which decides whether someone is able to receive Employment and Support Allowance.

Currently, the WCA fails to capture the range of barriers to work that disabled people face, which means many individuals are not getting the right support to move in to work. That’s why we’re calling for the WCA to be replaced with separate assessments for financial support and employment support needs.

Supporting disabled people in work

New research by Scope has found that in the last year 58 per cent of disabled people have felt at risk of losing their job because of their impairment or condition. That’s why it’s so important that once disabled people take up jobs, the right support is in place to enable them to stay in work.

Something we want to see is an expansion – and better promotion – of Access to Work, a scheme that provides disabled people with financial support to work. We also want to see the requirement to take Statutory Sick Pay in consecutive blocks to be lifted. This would give individuals more flexibility in taking time off from work, for example through part-time sickness absence or a phased return to work.

Working with employers to drive change

Efforts to halve the disability employment gap will only be successful if we see a shift in how disabled people are perceived in the workplace. The need for action is clear – 85 per cent of disabled people feel employer attitudes haven’t improved since 2012.

Building on progress made with other aspects of workforce diversity, employers should shift from compliance with the law to taking a more proactive approach to attracting, recruiting, supporting and developing disabled employees.

For instance, the Government’s Disability Confident scheme – which provides guidance to employers on hiring disabled people – has a Business Leaders Group which is well-placed to drive best practice among employers through new research and peer-to-peer networking. However, it is crucial that this group has sufficient scope and capability to realise such an ambition.

Next steps following the Green Paper

Scope welcomed the opportunity to respond to this Green Paper. However, this will only lead to change if Government and employers take meaningful steps to tackle the barriers disabled people face to entering and thriving in work.

Therefore, we would like to see a cross-government strategy for disability employment – presented as a White Paper – as soon as possible. This should include a range of reforms to support disabled people in and out of work, along with clear indicators to determine the success of these. It is vital that any proposals are informed by the experiences of disabled people.

Find out more about Scope’s work to tackle barriers to employment for disabled people.

I want employers to be able to talk to me about my needs

Holly moved to the UK from America over 10 years ago. Being blind, she has experienced many challenges in finding employment.

Here she talks about some of those challenges, bad attitudes she has experienced and what she thinks needs to change to ensure that disabled people have the same opportunities as everyone else.

My first proper job over here was as a nursing assistant on a psychiatric hospital ward. Before I could start, I had to have an occupational health assessment. The woman in the assessment knew that I was visually impaired and she was asking me lots of questions like, ‘how would you see if someone threw something at you?’ and stuff like that. I obviously wanted to say I can see stuff like this but didn’t want to reply sarcastically because the job depended on this.

At the time, I had just moved to the UK, which was very expensive, and me and my husband had no money between us. It was so important that I got this job. We were just living day to day and having to borrow money which was just so miserable. I didn’t want to say anything wrong or make the assessors get mad at me or anything like that.

Holly, a young disabled woman, poses with her dog

It was worse than weird

The assessment was just really confusing. She kept asking me about medical records that I didn’t have any of over here. When she suggested that I should get my medical records sent from the US over to here, I didn’t know whether me getting the job depended on this happening.

Towards the end of the assessment, the woman pointed out that my shoelace was untied and I kind of nodded but thought it would be rude to interrupt the conversation to sort it. Before I’d even had a chance to say that or tie it myself, she leant over and did it for me. She actually tied my shoe for me!

It was one of those things where I just thought, I need to leave before I do or say anything! At the time I thought it was weird. But it was worse than weird. It was condescending and so horrible. It really didn’t imply anything good about what this woman thought of disabled people.

When I got home, I was just really confused and my husband was really upset on my behalf. He didn’t think that I was treated very well.

It was such a stressful time

After all this, I got the job and, because it was such a big hospital, I luckily never had to see her again after that! Unfortunately, this was only a one year contract and due to various reasons, it made me very ill and stressed. This resulted in me having over two years of job hunting and applying for ESA.

Looking for work was such a stressful time. It felt like I already had a full time job sorting out ESA. It was more exhausting than any job I’ve ever had and was just a total nightmare.

Not only was I foreign and disabled, but my qualifications were from a different country and I also now had a massive hole in my CV.

Sometimes it’s hard to separate what’s an effect of being an immigrant and what’s an effect of being disabled, but I think both of these things make employers look at me and say “there’s somebody else who’s easier”

Disabled people aren’t scary!

I think employers need to not be scared! I want them to be able to talk to me about disability.

If an employer could just ask us what we need or what they could do to make it possible for us to work there, everything would be so much better.

It should be ok to ask these things. Disabled people are less work, less scary and much less of a burden than employers think we are. I think there needs to be much more of a willingness to talk and more assurance for disabled people that there won’t be any nasty consequences of asking for what you need, that if you say the wrong thing, you won’t get the job.

I’m not that difficult to give a job to. Honestly!

Holly, a young disabled woman, smiles at the camera

The Government want to know what you think needs to change about the support disabled people get in and out of work. They want feedback on their proposals and will be accepting views until Friday 17 February 2017.

“This child is spastic. Take her home.” – Disability History Month

Dr Lin Berwick MBE, counsellor, lecturer, journalist, broadcaster, homeopath, Methodist preacher is 66. She is one of a number of older disabled people who contributed to the Disability Voices website at the British Library Sound Archive as part of Scope’s Speaking for Ourselves project.

For Disability History Month, Lin remembers how a doctor labelled her as ‘spastic’ and encouraged her parents to have another child. 

“This child is spastic. Take her home…”

When I went blind

Lin went to a school for physically disabled pupils. When she lost her sight, she was bullied.

“When I went blind, the kids at the school were really nasty and I went through some horrible jeering and bullying, and people laughing at me because I walked into things. You know, I went to walk through a door that had glass panels and, because I could see the light through I thought the door was open, and of course it wasn’t. I sort of smashed my face, and then I walked into a brick wall and things like that, and hit my face again and I had tripod sticks poked into, and walking sticks poked into my face and handfuls of mud rubbed into my face, and kids saying ‘Can you see that, then, Berwick?’ It was horrendous at a time when you’re really frightened, because you’ve now suddenly got a new disability which you don’t know how to handle.”

‘Telephonist required’

Lin Berwick on phone
Lin Berwick on phone

Finding a job was another barrier Lin had to face. 

“When I got to the bank, it was one of these banks with these horrible revolving doors, which wasn’t easy, going through on a pair of tripods. Eventually, I found my way into the bank, and made my way to the accountant’s office, and when he opened the door he, said, ‘Oh, I know they told me you were disabled’, he said,’ ‘but I didn’t realise you were that disabled, but you might as well come in and sit down anyway’, and I thought, ‘God, this is a really good start to your first job interview!’ But I thought, ‘Well, I’m here. I’ve got one chance, so I might as well really go for it’, and he took my mother around the bank, showed her some of the obstacles, and we came back into the office and we started to talk about the work, and he proceeded to ask my mother every single question about my training.”

Becoming a Methodist preacher

God's Rich Pattern: Meditations for when our Faith is Shaken
God’s Rich Pattern: Meditations for when our Faith is Shaken

Even in her spiritual life, Lin faced prejudice when she tried to follow her vocation and become a Methodist preacher.

“The Secretary of the meeting said, ‘I think we’re going to have a problem with you.’ I said, ‘Oh yes! Why’s that?’ ‘Well, due to your disability, I don’t know how you’ll cope with the public speaking,’ so I said, ‘Well, as someone who’s done over 300 radio broadcasts, I don’t think you’re going to have a problem.’ ‘Oh,’ and he said, ‘And I don’t know how you’ll cope with the academic study.’ I said, ‘Well, I have ‘O’ levels, and I have the equivalent of a degree in Psychology.’ He said, ‘Oh, you can learn then!’ and I thought, ‘God, if this is the kind of prejudice I’m going to get, this is just amazing stuff,’ and I said, ‘Yes, I can learn’ and he said, ‘And then we don’t know how you’ll cope with the access to the church buildings,’ and I said, ‘There, I’m prepared to admit you have a problem, but maybe together, we can work at it.’”

Listen to Lin’s life story on the Disability Voices website.

Books by Lin Berwick

Find out more about the Lin Berwick Trust.

Read the rest of our blogs for Disability History Month

From callipers to climbing Ben Nevis – Disability History Month

Mountaineer and writer John Hawkridge is 68. He is one of a number of older disabled people who contributed to the Disability Voices website at the British Library Sound Archive as part of Scope’s Speaking for Ourselves project.

For Disability History Month, John remembers when he could run as a child and how in later life he tackled Ben Nevis.

Wearing callipers

John as a boy sitting on a step
John as a boy sitting on a step

Unfortunately for me I got selected to be fitted with iron callipers. So all of a sudden you find yourself in leg irons, and you know from being able to run, they’ve put you in these leg irons, and you can hardly stand up, never mind run. And they put you in them, and they tighten all the leather straps on you when you’re in. You know, it’s basically, it’s just a form of torture; they’re just forcing your joints against what they want to do. And so, you find yourself, you might be wearing your callipers ‘x’ amount of hours a day. Now bearing in mind I could take these callipers off and run, and run, hop, skip and jump, that weren’t something that I enjoyed at all.

Climbing Ben Nevis

John Hawkridge
John Hawkridge

By seven o’clock I was out and away, and heading up Ben Nevis. Initially there was no one else about, and I had the route to myself, but as time progressed it wasn’t long before people started overtaking me. Throughout the day I made really steady and positive progress, and up through a place known as ‘the Red Burn’, and then the massive, steep zigzagging path that went to the sort of summit ridge, or plateau, and then finally across this, where there were still snow and an ice field to be crossed towards the summit, and I ended up, I arrived on the summit about four o’clock. There were a few people there, and one that stood out was an American chap who, when he saw me coming, started dancing up and down, shouting, ‘What the Hell? I’ve flogged my so-and-so guts out getting to the top of this mountain, and what do I find when I get here? A so-and-so cripple. You’ve ruined my day.’ At which he screwed his stars and stripes up, shoved it back in his rucksack, and stormed off muttering to himself; ‘And I don’t know how the hell I’m going to get back down again,’ and I leant over and shouted to him, ‘That makes two of us!’”

Hear about John’s descent of Ben Nevis with broken walking stick and boot.

Rock-climbing films

In the mid-1970s I’d bought a good-quality Super Eight Cine Camera and had made films of some of the walks that I’d done and rock climbs; the two walks which I’d filmed being the Three Peaks of Yorkshire and the Dales Way – a 100-mile walk from Ilkley to Bowness on Windermere, and also I had some quite good shots of me rock climbing at Ilkley and Brimham Rocks.

In the late seventies I had been showing these films at various places, you know, if I had to entertain anywhere I’d take along me Cine and compiled a film and showed these films. And the fact that I’d been doing these activities had come to the attention of Yorkshire Television who sent a producer/director out to see me, with a view to making a film, and I remember well as he watched this Cine film, an half-hour film that I’d put together, and when it had finished he says, ‘This is absolutely fantastic, this is absolutely brilliant,’ he said, ‘but unfortunately we could never show this or make a film about this, because the public wouldn’t be able to take it…’

Climbing Everest

Books by John Hawkridge

Uphill All The Way book cover
Uphill All The Way book cover

His first book Sticks and Stones was published in 1987. This was followed by Uphill All The Way in 1991.

Listen to John’s life story on the Disability Voices website.

Find out more about Disability History Month on our website.

Language plays a central role in how we view disability – Disability History Month

Throughout Disability History Month we have been celebrating the lives of disabled people from the past such as Franklin Delano Roosevelt, Alfred Nobel and Frida Kahlo and explored the changing lives and experiences of older disabled people living in the UK.

In the final week of Disability History Month, Jack Welch, who campaigns to raise awareness of the challenges people with autism face, looks at the importance of language, the theme of UK Disability History Month 2016.

In the UK, we’ve made good progress in recent decades to provide legislation on the rights of disabled people. Despite these changes there are deeper challenges and barriers people with visible or invisible conditions still encounter.

For someone like myself on the autistic spectrum, the obstacles to get the right level of support in a mainstream school and identifying what reasonable adjustments are needed in employment are just a couple of examples that many, like myself, have to confront.

Disability hate crime

From recent research by the Equality and Human Rights Commission, figures on disability related hate crime are worrying and attitudes towards disabled people are still of great concern. Disabled people aged 10-15 were almost twice as likely to have experienced a crime compared to non-disabled people (22% contrasted with 12.4%).

If levels of hate crime are still happening at this rate, despite recent developments and more positive portrayals of disabled people as we’ve seen with Rio 2012, we need to redouble our efforts to make people more aware of using language that is respectful of disabled people.

Jack smiles at the cameraI experienced a disability related incident on London underground recently. I was left shaken and frustrated at other people’s ambivalence and that they choose to look away. Those who verbally attacked me were younger than me. Scope’s End the Awkward research, shows younger people often have difficulty in approaching a disabled person. What role can schools and education play to improve this attitude towards disabled people?

So what can we do? Newspapers and other media outlets still use phrases like ‘suffering with autism’. I have autism, I don’t feel I ‘suffer’ from it.

Language plays a central role in how we perceive individuals with certain conditions and that in turn reflects our behaviour when we meet a disabled person.

We all must consider the language we use and how it can affect disabled people, and we need to begin from a young age. It’s more difficult to confront and combat prejudice at a later stage.

We need to prevent negative attitudes from developing and leading to the incident I experienced.

Find out more about Disability History Month on our website.

Jack has started a discussion about the importance of Disability History Month on Scope’s community where people can share their own experiences and discuss the impact language has on their lives.

My brother used to carry me on his back to school: Disability History Month

Alan Counsell is 79. He is one of a number of older disabled people who contributed to the Disability Voices website at the British Library Sound Archive as part of Scope’s Speaking for Ourselves project.

For Disability History Month, Alan remembers his struggle to get an education and find a job:

Being carried to school

The Headmistress at the school had refused to take me, and my Grandmother was formidable, absolutely formidable, where I was concerned: and through that visit I got to go to school, with the rest of the family; and my brother, can you imagine this –  I thought nothing of it until I got older. I was five; my brother was about nine. He used to carry me on his back to school in the morning. Came for me during playtime, that means he carried me around because I couldn’t walk; carried me home at lunchtime, carried me back after school after lunch, and carried me back after school in the afternoon. That’s a bit much, you know, for a nine-year-old, to carry a five-year-old, and he did that every day and never complained.

I wanted to be a librarian

I wanted to be a librarian, and the careers officer Mr Jolly said, “No way, no way, could you ever do anything like that,” and what came back was a voice from the side, and that was the headmaster, who said, “Now then, how can you say that, because you don’t know our Alan: he can do whatever he wants.”

Working in a subnormality hospital

In the end, I got into trouble one day, big trouble, and I was absolutely furious because of my own experience. I couldn’t stop thinking that had the education authorities have had their way, when they said I was mentally defective, I could have ended up as a patient in that hospital; and that was a rather daunting thought: and they had a block, a ward, called ‘H Block’, and, you know, they had ABCD wards. H was a ward for low-grade patients; that meant their intelligence was very low, and they also had behaviour problems. Many of them had to be restrained for a time; every student had to do at least one month on H Block, and my first day there I just lost it. I went into orbit, oh, terrible. We had to feed the patients, and the staff on the ward got a main course and a dessert and mixed them both together, and fed it to the patients. I couldn’t do that. I kept thinking, ‘This could be me’, you know, ‘this could be me’. There’s no way I’d want my food like that: so I refused to do it…

Alan Counsell at desk
Alan Counsell at desk

In 1969, Alan became a teacher at Meldreth Manor School. He continues to have a keen interest in education, through visits to schools and through his writing and training.

Listen to Alan’s interview on the Disability Voices website.

Books by Alan Counsell