Tag Archives: accessibility

“Inclusive sport shouldn’t be something we have to fight for”

Kris is the founder of Wheely Good Fitness, which offers exercise classes for both disabled and non-disabled people in Herefordshire.

On the weekend, he and a group of 32 people, headed to Dorney Lake in Berkshire to take part in the Superhero Triathlon – the first fully accessible triathlon of its kind.

Here, Kris tells us about his experiences of the event, attitudes towards disability in sport and why sport for all is so important.

There is an assumption that just because someone is disabled they’re not going to want to do sport, which has an impact on the opportunities available.

Unless you live in a main city, there’s not really a lot going on. If we took away the need to segregate, everything would be accessible to everybody and we could all go to our local leisure centres and take part in whatever it is they are running. I run mixed ability classes and there is no need to segregate at all.

Health and safety is always used as an excuse. To me, health and safety is one of the most patronising things used to discriminate against disabled people. London Marathon, for example, only allow 12 places for standard wheelchair entries on the grounds of health and safety. It’s absolute nonsense. They can allow a guy to run in a tumble drier but people who use a wheelchair every day of their life are “not safe”.

Accessibility shouldn’t be something we have to fight for. Disability sport should be given the same amount of precedence as mainstream sport but you don’t see a lot of it and when you do, the coverage of it is very different. It’s not seen as being as serious or respected as other sports. It’s a shame. And if you haven’t got a huge demand [for specialist disability fitness equipment] you can’t reduce the production costs which makes it hard for people to get involved. It’s a vicious circle.

My clients like the social aspect of doing sport. Most of the groups become like a little family. They have a drink afterwards and a chat. Their confidence improves – not only from talking to other people, but they also feel they’re achieving things in the class, instead of their impairment being a negative thing.

Two people take part in the Superhero Tri
Two of the participants at Superhero Tri

Things are improving but it’s a slow process

I’ve been running my fitness classes for four years now. Things have improved in accessible sport but it’s an extremely slow process. There are more and more organisations out there organising accessible bikes and equipment hire. So you can tell attitudes are changing. I think disabled kids have an advantage now to grow up with a much more positive attitude towards themselves that people didn’t have 20 or 30 years ago.

We’re starting to see more inclusive events too. There’s Parallel London which is in its second year and that turned out to be really good event. I was really excited as soon as I heard about the Superhero Tri as were many of my clients. There is so much adaptation. The run can be done in a chair, walking or on crutches. The cycle can also be done in a chair, they allow people in power chairs as well. You can also have a buddy compete with you to help with direction, encouragement, support or balance, so everyone can take part.

The Superhero Tri was a great event

We had eight teams altogether and 21 team members. It was a fantastic opportunity for people of all abilities to compete. The event has an understanding of disability so you’re not having to fight to take part, you’re not having to get people to make allowances for you, you are welcomed for who you are and what you can do. They’re saying “you tell us what you need in order to take part” – that’s what’s so good about it.

A group of women in swimming gear pose and smile during the Superhero Tri
Participants in the Superhero Tri smile during warm up

I was excited to take part. The only thing I was apprehensive of was trying to get that many people together at the same time, without anyone dropping out. The majority of people were really excited, there are a few I could sense were apprehensive, but they really wanted to do it.

I tried to put teams together of people who work well together in my fitness classes, or socially, so they can encourage each other and feel good about their achievements. Whilst it is a competition and it’s timed, to me and many of the team, it’s really about enjoying it and doing the best you can and saying ‘I did it’.

Most of those taking part hadn’t done anything like this before. There’s a mixture of abilities – some are quite confident and some are new to my classes and actually this was a huge step for them to take. It’s a nice journey for everyone. It takes time to start believing in yourself and realising what you’re capable of.

It was a great day, the weather held for us and everyone managed to beat the nerves and turn up. Everyone did well giving everything they could to be the best they could be. The atmosphere was fantastic and everyone was high spirited and extremely supportive of one another.

We were asked by Channel 4 who were filming the event to demonstrate our Wheel-Fit aerobics class for their highlights programme due to air next weekend which was a nice surprise for everyone and, despite being between races, we managed to squeeze in 10 minutes between transitions to demonstrate what the class was about.

Kris and his team smile and pose at the Superhero Tri
Kris and his team were all smiles at the Superhero Tri

Supporting Scope

I’ve been involved with Scope ever since I started running fitness classes. If I’m doing anything for charity, I do it for Scope. Scope is a leading force in changing ideas and perceptions of disability and leading the way to a positive future for disabled people.

Sport is a powerful tool encouraging people to seek their true potential, capabilities and discover their strengths and weaknesses, whilst creating and expanding social lives for a more proactive and rewarding life. It’s not just for the elite, the super fast or the super fit, it’s something for everyone, that can benefit everyone through improved fitness, well being, confidence and social skills.

Sport can be empowering and character building and should be open to all. It’s time to remove the barriers and discrimination and open up the world of sport to everyone of all abilities and all backgrounds on an equal footing.

Get involved in a challenge event for Scope today. Whether it’s running, swimming, cycling or trekking, we have something for everyone.

As part of our mission for everyday equality, we are running a ‘Sport For All’ series to encourage better representation of disability in sport, as well as challenging attitudes towards disability. Find out how you can get involved with Sport For All. 

Read more Sport For All blogs

A challenge that reminds us what equality is really all about

Because of her particular impairments, cycling was not an activity Emma had ever considered, until her “super-sporty” colleague and friend Paula proposed that they should ride together in their firm’s annual networking cycling event. In this blog they talk about preparing for the event and their experiences of the day.

Do you fancy coming on a bike ride – I’ll pedal!?

Paula: I enjoy being active.   I am curious to test my limits. I am not a great athlete by any stretch of the imagination – far from it. I do however wholeheartedly buy into the mind-set that anything is possible with committed training.  Over the years, I have cycled London 2 Paris in 24 hours, completed multiple Ironman Triathlons and taken part in Race Around Ireland.

The other great love of my life is friendship. I cherish my friends.  I find their company restorative, life-affirming and joyful.  Emma is my friend and my colleague. When this year’s Leigh Day (the law firm I work for) cycle ride was announced I saw an opportunity to invite my colleague Emma into what I assumed was an unexplored part of the world for her – and because I enjoy cycling so much I just assumed she would too!

I  searched the internet for adapted bikes and was heartened to see so many different varieties. It was clear to me that the means were available – all I had to do next was check whether the appetite was there. Interestingly this presented me with the most significant challenge: how to ask Emma if she fancied joining me on the ride. It sounds so daft now to read that but it is true. I had no idea if my idea would be well received, or come across as insensitive, neither  did I know if  my research into adapted bikes would be seen as patronising. The last thing I wanted to do was cause offence.

Emma wrote an excellent blog about disability and awkward conversations.  So reassured with what I knew Emma thought about starting the conversation, I decided to park my discomfort and simply asked “Do you fancy coming on a bike ride – I will pedal!?”

Paula and Emma on the bike from behind, with other cyclists on the route
Paula and Emma on a trike with cyclists on the road around them

Overcoming challenges

Emma: It actually took a while for me to take the idea seriously! The first challenge was practical – how to find a suitable bike. Leigh Day put us in touch with Wheels for Wellbeing, a fantastic charity which works to remove barriers to cycling for disabled people. On our visit to try out the bikes, the link between wheels and wellbeing was very apparent on the faces of the people riding around the hall. There were people with a variety of imapirments and on a variety of bikes. We opted for a side-by-side tricycle (think Two Fat Ladies, but without the motor). For me this had the advantage of proper seats, so no saddle to feel precarious on, and a design that allowed for only one person to pedal.

The second hurdle – increasingly challenging as the day approached – was to sit with my fear of the ride and not chicken out. A corollary of being disabled is that you have to consciously build whatever measure of independence you can achieve, constructing your comfort zone almost brick by brick. So the prospect of abandoning the freedom and safety of (in this case) my car to effectively get on someone else’s bike was daunting. This mostly manifested itself as fear of accident and catastrophic injury, not because I had any doubts about Paula’s skill as a cyclist (she recently cycle-raced round the entire coast of Ireland!) but because we would be at the mercy of other road users without any protective shell. And more fundamentally, as a passenger, I would not be in control.

Paula and Emma mid race on their adapted bike
Paula and Emma mid race on their adapted trike

I look back on it as a day like no other

The day of the ride was blessed by sunny skies and a refreshing breeze. We were joined by our friend and fellow employment lawyer Tom Brown, who took turns with Paula on the 55kg trike. As the rest of the cyclists took off on their longer routes, we turned off onto our tailor-made route, only to discover later that we had done the whole thing backwards. The beauty of the Warwickshire landscape was a revelation, as was the universally kind reaction of all the people we encountered during the ride including all the drivers that got stuck behind us (this has made me reflect on my own habitual impatience behind the wheel!).

Now, after the event and still in one piece, I look back on it as a day like no other – a day of adventure, laughter, camaraderie and experiencing the countryside in a new way (in a car you are never really ‘in’ nature). Most of all, it gave me a new sense of what real inclusion means. Because for me, the best thing about the day was that despite the lengths to which all the people involved had to go to make it possible – from sourcing the bike, planning our route, exerting unfamiliar muscle-groups, heaving the bike over turnstiles and foregoing participation in the main ride – I never felt that they were doing it to be nice to me. While my physical limitations framed the practicalities of the day, my disability didn’t feel anything more than incidental; I was encouraged and facilitated to join the event not as a disabled person but as Emma, and for me that is priceless.

As we return to our day job of representing people facing discrimination and other forms of mistreatment, we both feel that we will often return to the experience of that ride as a kind of touchstone of what equality is really all about.

Take a look at other accessible events like the Superhero triathlon and Parallel London.

Or you can tell us your story.

Why businesses need to think about disabled consumers

Will Pike is a games developer from London whose parody of Channel 4’s Superhumans advert went viral last year. Tens of thousands of people have signed his petition for better access. In this blog, he talks about how this affects disabled consumers, and what needs to change in media representation.

Back in September 2016, I made a short film to highlight the poor disabled access found up and down our high streets. As a wheelchair user, I wanted to demonstrate how frustrating these obstructions are from my everyday perspective. I also wanted to demonstrate that establishments are missing out. By not being accessible, they’re losing multiple paying customers. Regardless of the fact that I can’t walk or overcome a set of stairs without assistance, I still have money in pocket to spend.

The ‘Purple Pound’ is worth in the region of £240 billion. This spending power is exactly why society should be a more opportune place for everyone. Why are so many businesses unable to recognise this?

We need to see more disabled people in mainstream media

Whilst accessibility is fundamental, it’s no good just making a bunch of logistical improvements if attitudes to disability don’t change. I’m not simply talking about seeing disabled people as an untapped purple cash-cow. I want society to see the purple person behind the purple pound. It’s so important that disabled people are given a more prominent place in mainstream media, where they can contribute to reversing poor public perception and ignorance.

Will in his wheelchair outside a restaurant where there's a step
Man in a wheelchair unable to access a restaurant

Fundamentally, this is the reason why diversity is so important. If we only have a monosyllabic representation of society displayed upon our TV screens, then we’ll continue to limit the prospects of anybody who doesn’t conform to a notion of the perceived norm. We must challenge this. It obviously goes beyond disability to include race, sex, gender identity, sexual orientation and age. It also means evolving our perceptions of beauty and happiness. For instance, in the film ‘Me Before You’, the main character is a quadriplegic chap called Will, who ultimately concedes that life with a disability, even with love and financial stability, is so miserable that he must end it all. What kind of message does this send out to the world? For those with a disability it’s insulting and heartless. While for those without a disability it simply reaffirms the (misplaced) need for pity.

Change is happening, but we need more

But it’s not all doom and gloom. Change is happening, but society needs to do more than the bare minimum. We need to see more disabled people on telly, while ensuring that the inclusion of disability isn’t a token gesture toward equality. There also needs to be a comprehensive strategy to improve the quality of life for all disabled people, positioning us as simply part of the normal spectrum of human experience. Only then will society truly benefit from the Purple Pound.

At present only 2.5% of all characters on TV screens are disabled. It’s hardly surprising then that 81% of the 13 million disabled people in the UK do not feel they are well-represented on TV and in the media. This has to change. It’s time for businesses to recognise the value of the purple pound and put more disabled people at the heart of their campaigns.

Will supports Scope with our mission to drive everyday equality, so that disabled people have the same opportunities as everyone else. Visit our website to find out more about our work and how you can support us.

Read more blogs on the power of disabled consumers.

2017 AbilityNet Tech4Good Awards

Now in its seventh year, the AbilityNet Tech4Good Awards is one of the most inspiring events of the year. It shows the incredible capacity of technology to improve all our lives. There were over 200 brilliant and life-changing projects to choose from but here are some of my favourites that improve the lives of disabled people:

AbilityNet Accessibility Award winner: Bristol Braille Technology

Bristol Braille Technology is building a revolutionary and radically affordable Braille e-reader called Canute, designed with and by the blind community. The world’s first multiple line Braille e-reader will launch by 2018 and it is hoped will be around 20 times cheaper than existing digital Braille devices.

BT Connected Society Award winner: Sky Badger

Sky Badger logo with animated cape
Sky Badger logo

Sky Badger finds educational, medical, financial and social support for families with disabled children all over the UK. Over the last five years, Sky Badger has supported over one million disabled children and their families. Sky Badger puts the emphasis on having fun.

Digital Health Award winner: Fizzyo

Both of Vicky Coxhead’s sons have Cystic Fibrosis and because of this they have to do an hour’s breathing exercises every day to keep infections at bay. She applied to feature on a BBC2 documentary The Big Life Fix and was introduced to Haiyan Zhang, Innovation Director at Microsoft Research in Cambridge. She enlisted the help of Creative Technologist Greg Saul to create a device that could take the boys’ breaths and turn them into controls for a videogame. Combining gaming with saving lives proves a potent mix – see Fizzyo.

Digital Skills Award winner: FabFarm

FabFarm participants
FabFarm participants

FabFarm is a digital aquaponic farm that is designed, built and operated as a social enterprise by disabled students in Derry, Northern Ireland. Developed by the Nerve Centre, FabLab, it uses new and emerging technologies to help empower, engage and inspire 20 young people with special educational needs to develop new skills which are directly focused upon their employability in the digital marketplace.

There were so many other great projects that were shortlisted and deserve a mention:

AutonoMe is a support system that combines the power of video and mobile technology to help people with learning difficulties through everyday tasks.

Optikey is a new assistive on-screen keyboard, designed to be used with low-cost eye-tracking devices. It brings keyboard control, mouse control and speech to people with motor and speech limitations.

Signvideo  British Sign Language (BSL) video interpreting services can help deaf people communicate easily and professionally over the telephone or face-to-face, with hearing colleagues. Signvideo offers instant access to an experienced, qualified video interpreter within minutes, via PC or Mac, tablet or smartphone.

Read about the 2016 Tech4Good awards.

Read about Scope’s partnership with AbilityNet.

Why the fashion industry needs to include disabled people

Meghan is studying fashion at the University of South Wales. For her end of year show she designed a sportswear line which is specifically adapted for different impairments. In this blog she talks about the reasons behind it and her hopes for the future.

At school I was good at Product Design and Art, so I knew I wanted to go into a form of design. I wouldn’t really say I was a big fashion person in the typical sense which is why I wanted to do sportswear – it’s design for a purpose.

Discovering a gap in the market

I’m in my third year now and I have to do a final collection. I started looking into adapted clothing and I discovered a massive gap in the market. A lot of the people I spoke to said that the clothing that is out there is quite unfashionable or really expensive. There’s not enough choice for them in mainstream fashion.

I feel like the fashion industry does forget disabled people. When it comes to adaptive clothing, there are maternity sections in shops but disability is almost completely forgotten about. All the clothing is just t-shirts and trousers, there’s nothing stylish, which is what they want.

 

Molly posing on the catwalk

In some ways it sends a negative message to disabled people regarding sports and they might not feel confident enough taking part in sports or going to the gym, especially if they are wearing something they aren’t comfortable in themselves. But I think there has been a change in attitudes more recently because I have been seeing more representation, but I also don’t know if that’s because I’m involved in it, so I’m noticing it more.

Accessibility can be an issue too. The girl who I have as my visually impaired model, she’s got her own business helping websites and apps make their stuff more accessible for disabled people.

Kyron posing on the catwalk

Developing my sportswear line

After talking to various people, I decided to design pieces to suit four different impairments: visual impairments, dwarfism, amputees and down’s syndrome. I got in contact with a charity called “Follow your Dreams” which is for people with down’s syndrome and learning difficulties. I went to a few focus groups with them to meet people who have down’s syndrome and to get information about what they would want out of clothing and sportswear. I also spoke to Disability Sport Wales.

The Fashion Show

For the show, I had four outfits shown and I used the same models that I’ve worked with on my photo-shoots. I’ve got Tony, who is a world champion athlete, Kyron who is a Paralympian. Molly, who has ushers syndrome and runs her own company – Molly Watts Ltd – and finally, Emily who has down’s syndrome. The show was on 26 May and was a great success.

I really wanted to have all disabled models because otherwise it would completely take away the impact. I just hope that I raise more awareness from it and show people what’s possible.

If you have an experience you’d like to share, get in touch with the Stories team.

Photos by Michaela Harcegova.

How can the next government ensure disabled people have the support to live independently?

We want the next government to deliver Everyday Equality with disabled people. It must put the interests of disabled people at the heart of its agenda, and deliver meaningful change over the next five years to tackle the barriers that prevent disabled people from participating fully in society.

A key part of Everyday Equality is having the right support to live the life of your own choosing. However, there are still a range of barriers that make this difficult for disabled people, from inadequate social care provision, to inaccessible physical environments and digital exclusion.

That’s why we are calling on the next government to ensure disabled people have the support to live independently.

Increasing investment in social care

Social care is an essential public service that supports disabled people to get up, get dressed and get out of the house.

Around a third of social care users in England are working-age disabled people. However, we know that more than half are not receiving the right care to support them to live independently.

Text says, Over half of disabled people using social care can't get the support they need to live independently

This means not enough disabled care users are getting the support they need to live independently, work, volunteer, and live full, meaningful lives.

In order to ensure disabled people are getting the right level of support, it is crucial that the issue of inadequate funding in social care is addressed. Whilst we have seen some recent investment, the funding gap in our social care system is estimated to rise to £2.8 billion by 2020.

That’s why we are calling on the next government to increase investment in social care so that disabled people of all ages are able to access the support they need to live independent lives.

Improving access to everyday services  

Living independently means being to have choice and control over your life, whether as a consumer, whilst travelling, or whilst socialising.

However, we know that disabled people often face barriers in accessing day-to-day markets, services and amenities.

For instance, less than a quarter of disabled people think the accessibility of pubs, restaurants, clubs and shops has improved since 2012. In the digital world, 25 per cent of disabled adults have never used the internet compared to 6 per cent of non-disabled adults, often due to a lack of digital skills or inaccessible websites. This means disabled people are more likely to miss out on the best deals and offers which are commonly found online.

We want the next government to ensure equal access to goods and services for disabled people by increasing compliance with the Equality Act, and tackling the digital divide between disabled people and non-disabled people.

Tell us what living independently means to you  

You can read more about our priorities for the next government and how you can register to vote in this election.

What does living independently mean to you? What would getting the right support from social care enable you to do? Email the stories team and tell us your experience – stories@scope.org.uk 

You can also join the conversation on social media by using the hashtag #EverydayEquality.

Paying extra to live my life

Jean has Ehlers-Danlos syndrome which means her joints dislocate easily and she is in a lot of pain. In this blog she talks about her experience of extra costs and shares her hopes for the next government to bring about everyday equality for disabled people by 2022.

I came home from work one day, fell over, was taken to hospital because I couldn’t get back up. I came out of hospital a week later in a wheelchair. I was diagnosed with Ehlers-Danlos syndrome several years ago. Since then I’ve been trying to get on and live my life, but I face a huge range of extra costs which makes things harder than they should be.

The things I need to live my life

Many of them aren’t obvious. Things like adapted cutlery and kitchen equipment are vastly more expensive than an ordinary set. I’m supposed to have specialist knives to help me with preparing veg and things like that – with the handle at a 45 degree angle – but they are about £15 a blade. They are not covered by the NHS, you have to pay for them yourself, and we can’t afford them.

I’m a careful budgeter, tracking what I spend down to the penny, but I can’t scrimp on the things I needs or it can take a big toll. I have to eat a particular diet because my condition affects my gastric system, and if I am not very careful with what I eat then my gastric system will start going downhill. Our shopping bill comes to about £120 a week.

We had a situation a couple of years ago where we were living on essentially £50 a week, so we were buying the really, really cheap basic stuff. We managed to make sure we had enough to fill us but I was really ill. I was bed-bound for a year because I was having so many problems with my stomach and lower back and with pain in my hips and my pelvis. I couldn’t move.

I have all kinds of other costs. Some are really big. For example, I get a basic wheelchair provided for me, but I really need an ergonomic one to reduce stress on my joints, which is very expensive. You expect that any equipment you need you’d get from the NHS (you get for free), but you only get the very basics. It’s around £1,200 to £1,500 to get a wheelchair that suits my needs, and we couldn’t afford that.

Jean sitting at a desk with an open laptop in front of her
Jean struggles to pay for essential equipment that she needs to live

Everyday equality by 2022

People think that because you are disabled you shouldn’t be allowed to have a normal life – to do the same things that they do. I’m just trying to have a normal life.

My future vision for disability equality would be that all buildings and public spaces are built with disability in mind from the outset. Anyone can use accessible facilities but disabled people cannot use all facilities.

I would also like attitudes to change so that disability was seen in the same way as race, sex or gender – just an everyday difference rather than an inconvenience that has to be managed by companies, corporations and institutions.

I want disabled people to be involved (not represented but representing themselves) at all levels of responsibility. The old adage of “nothing about us without us” still isn’t utilised enough in my opinion.

Tell us what being financially secure means to you

Scope is calling on the next government to improve disabled people’s financial security.

You can read more about our priorities for the next government and how you can register to vote in this election.

What does being financially secure mean to you? Email the stories team at Scope and tell us your experience – stories@scope.org.uk

You can also join the conversation on social media by using the hashtag #EverydayEquality

Visit our new online technology hub – in partnership with AbilityNet

Technology is transforming the lives of disabled people. We are working with tech experts from AbilityNet to highlight some of the software and equipment that can make life easier, more productive and fun in our new technology section.

Adapting your computer

Sometimes your existing computer has accessibility features on your existing PC that you might not be aware of. Try My Computer My Way, a free, interactive tool developed by AbilityNet that makes any computer, tablet and smartphone easier to use.

Check out our keyboard shortcuts, too!

Computers and autism

People with autism spectrum disorders can use a variety of multimedia applications and programs to experience the world around them within clear and safe boundaries.

How tech can support people with learning difficulties

Find out about touchscreens, keyboard and mouse alternatives and software that can help people with learning difficulties to access computers.

Visual impairment apps and suppliers

For people who have difficulty seeing conventional displays, there are many useful apps and specialist suppliers in visual impairment products. Other options to accessing information online include magnification and screen-reading.

Voice recognition

If you think you have never used voice recognition, think again! Voice recognition is becoming more and more mainstream so if you have a Windows computer or an Apple product, you already have it! Find out how you can use voice recognition more effectively.

Computer training and resources

One of the biggest barriers to disabled people accessing technology is training. We offer links to a wide range of private and voluntary organisations that offer computer training and support for disabled people.

Talk tech

Join our online community to talk to an AbilityNet advisor to discuss technology.

Read our equipment tips.

AbilityNet is a UK charity that helps older people and disabled people of all ages use computers and the internet to achieve their goals at home, at work and in education.

Disabled people and domestic abuse – we need to do better

Disabled women are twice as likely to experience domestic abuse than non-disabled women, yet support services aren’t always accessible. Disabled people can also face unique challenges in recognising and reporting abuse. It’s an issue that isn’t often spoken about. This needs to change.

With this in mind, domestic abuse charity Safe Lives is doing a ‘spotlight’ throughout October and November, focusing on how professionals can better support disabled people experiencing abuse. They have been posting resources, webinars, blogs and podcasts and they are doing a live Twitter Q&A on Friday 2 December.

We spoke to Carly, an advocate for autism and girls, about why this is so important.

I was diagnosed with Asperger’s at 32 which is a late diagnosis, but autism in girls wasn’t really understood. I have three daughters; two of them are autistic as well, which is how I found out that I was. I was looking up everything I could about autism and girls and thought “I’m autistic too” – I ended up being diagnosed on film!  The consequences of not being diagnosed can be severe, including being in unhealthy relationships.

Recognising and reporting abuse can be harder for disabled people

For us all in society, disabled or not, the very nature of what abuse is can be murky. All too often we see adverts of women with bruises as an image of domestic abuse. Abuse, however, takes many forms. It’s difficult enough to recognise and report abuse for anyone experiencing it, but for disabled people it can be even harder.

The choice for a disabled person to leave their abuser is not an equal choice to those who do not rely on their abuser for their daily care as well. And how can a person with a social and communication condition have the equality of access to leave, when they may not even realise that what they are experiencing is abuse?

A lot of autistic people are vulnerable because of our lack of social imagination which is about understanding “If I do this, what happens next?” – consequences. We’re very often so consumed in our own thoughts that we think other people have the same wants, needs and agendas as we do, which can lead to us being very vulnerable. Another thing is our theory of mind – we imagine that other people have similar thoughts to us. So if you knew you were experiencing abuse, you may not report it because you think that other people already know. Because you know, they must do too. It can lead to an autistic person being very angry and resentful because they think “Why aren’t you helping me?” – it’s because that person doesn’t know. You need to ask us direct questions, basically.

Carly sitting at the UN with a few people in the background
Carly, speaking at the UN about autism and girls

A “one size fits all” approach to domestic abuse doesn’t work

It’s only in recent times that coercive control has become a legal offence. For someone on the autistic spectrum who requires support with their routine, the control of their lifestyle, the control of their access to social events and family and control of their money, this could easily disguise an abusive relationship to an onlooker. Mix this with an autistic person’s fear of dramatic change, delay in emotional processing and the theory of mind differences described above, and you can see how someone may not seek help.

We need our safeguarding explained in a different way and support services need to be more accessible. The stuff that’s out there is really good but some little add ons would help. I’ve had a meeting with the NSPCC about their schools workshops and I’ve created a short online course on safeguarding for people with autism, which is free to do. Hopefully it will help people think differently.

Including disabled people in these important conversations

Safe Lives’ spotlight on this issue is vital. The protection of disabled people from abuse is a multi-layered complex matter that simply is not covered by standard safeguarding projects. The media also all too often leave our unique needs and experiences to one side in the vital adverts  and workshops on abuse – how to recognise it and how to seek help.

I think for many people, disabled adults are either viewed as not having relationships or sex and therefore void from these conversations, or seen as just being able to access the same sexual health and abuse information as everyone else. Of course, in reality, this is not the case. The most vulnerable in society are often the last to be supported. Disabled people aren’t asking for special treatment but we are asking for a fitting reflection of our experiences in society and to be part of the conversation, a seamless inclusion and not an afterthought.

If you have been affected by the content of this blog, you can contact the Samaritans or your local Refuge service for support.

You can find all Safe Lives’ content on their website and take part in the Twitter Q&A on Friday 2 December.

Disabled Survivors Unite is an organisation working to improve access to services for disabled survivors of abuse and sexual violence. Visit their website to find out more.

“Yes I Can, If…” – campaigning for better disability access

Will Pike is a games developer from London whose parody of Channel 4’s Superhumans advert has gone viral with over half a million views. Tens of thousands of people have signed his petition to ask the two high-street chains which feature in the film for better access.

In this blog, he shares the story behind his campaign and talks about the changes he’d like to see as a result. A text description of the video is available at the end of this blog post.

In 2008 I went to India, on the way back home we had a stop over in Mumbai and the hotel I was staying in was attacked by terrorists. 168 people died, my spine was injured I am now paralysed below the waist.

I’ve been in a wheelchair for eight years now and in that time have been through ever emotion under the sun. I have days when I just can’t be arsed with the barriers and negative attitudes. I made this film because too many shops and restaurants are effectively off limits to wheelchair users like myself.

Inspired by the Paralympics

After the London Paralympics I was expecting there to be a big shift in places becoming more accessible but it just hasn’t happened. Two weeks before this year’s games started I approached my friend Heydon Prowse about the idea and he got a team of people together to produce the film. Errol Ettiene directed  it and did an incredible job, the team turned a good idea into a slick, professional-grade commercial.

It tops and tails with Paralympic references because I wanted to show how day to day life can feel like Paralympic event for a wheelchair user. But whilst the whole thing was inspired by the Paralympics, these issues still remain for disabled people now the games have ended. This is bigger then just me having a unique experience, this is a global issue indicative of a massive absence of consideration for disabled people. My experiences aren’t isolated and sharing them makes them more powerful and potent. It turns individual struggles into a social issue.

The film isn’t in any way a criticism of the Superhumans ad, but it could only ever do so much. Channel 4 started a relay race about disability awareness and they passed the baton on. They didn’t know who they were passing it on to, but it just so happened it was me. I’m leveraging the awareness their brilliant ad created to further the message. My film couldn’t exist without theirs and whatever success we get is their success too.

Will sat on a sofa against a brick wall

The petition

I’ve been asked why I chose to focus my petition on American Apparel and Caffè Nero and the honest answer is, it was just their lucky day. We were filming on Tottenham Court Road and it just so happened they were the shops that didn’t have wheelchair access. But it was also important that we didn’t pitch this campaign at one-off shops because whilst they have a responsibility, it’s the big chains that have a major responsibility and the ones who are neglecting their civic duty. It could also have a domino effect across all their stores.

It’s not that people are fundamentally thoughtless, it’s just that it’s simply not in the social conscience to be considering these things. It’s only when someone comes along and questions access that things will change.

The people I spoke to in the film felt bad and wanted to help but they are purely innocent in this whole thing. It’s the companies they work for who are responsible for disability access and inclusivity. It’s irresponsible to expect hapless shop assistants to have to deal with that situation. I hope American Apparel and Caffè Nero can see it from that perspective too, it will protect their staff from these embarrassing and awkward situations that they shouldn’t have to go through.

Reasonable adjustments

The Equality Act states that all buildings and public places have a responsibility to make reasonable adjustments to ensure disabled people are not disadvantaged when accessing their services.

However, in terms of holding public places accountable, it’s actually down to the customers and patrons of that establishment to draw attention to their inadequacies. If that premises doesn’t then do something about their lack of access or facilities, that person is then responsible to bring them to court. Which basically means that all those people with disability – who may or may not have had their benefits cut, or are finding it difficult to gain employment, or even struggling to leave the house – are the ones who must embark on an inevitably time-consuming and costly legal case.

We really hope that this film, though aimed at Caffé Nero and American Apparel, is able to shine a light upon a flawed and, frankly, ridiculous system. It should not be the responsibility of each and every disabled person to flag up a high street chain; it should be the responsibility of the Government and Councils to assess disability access, educate businesses, and ensure funding is in place for reasonable adjustments.

People may think little things like step-free access won’t make a difference to the majority of the population, but it makes a massive difference for a selective few which in turn has a positive influence on the relationships we have with non-disabled people. In turn the whole community will be accessible and better for everyone. And that’s where the #AccessForEveryone hashtag came from.

Will in his wheelchair outside a restaurant where there's a step

What’s next?

We just have to wait and see! I haven’t been contacted by Caffè Nero or American Apparel, but I wonder whether someone is going to bring it to the big bosses. One way I’d like that conversation to go is that the big boss turns round and says: “Are you telling me we haven’t got step free access in our Tottenham Court Road branch?! Right, heads are gonna roll!” That’s far fetched but I am an optimist at heart.

Both brands have a real opportunity to turn this bad situation good by handling it well. If they acknowledge they were wrong and make changes they can come out of this smelling of roses and will get so much good publicity from this. I will be giving them every chance to handle this magnanimously, with humility, and with a real ownership. But if they don’t, we will do everything we can to highlight their ineptitude.

They really can lose a lot of business because of this. Some people have been commenting saying they will boycott these shops until they make a change and if that becomes the consensus, if that becomes the rallying cry, then together we can change a lot.

You can visit change.org to sign the petition or follow Will’s progress.

Will’s story is also a great example of disabled people being ‘bold and loud’ as consumers – something called for by the Extra Costs Commission. Led by Scope, this was an independent inquiry that looked at ways to drive down the additional costs faced by disabled people. Next month a report will be published reviewing progress with the Commission’s recommendations for tackling extra costs.

Video description: Paralympics billboard, zooms into the word “superhuman”. Alarm clock turns to 7.00am. Man laid in bed opens his eyes, sits up, and smiles. He spins around his bedroom in his wheelchair. Plays plastic toy trumpet. Dances into the bathroom. Sits in the show, miming the lyrics into the shower head. Puts a shirt on, grabs his hat with a reaching tool. Leaves his house, flipping hat onto his head. Wheels down the a busy high street. Tries to enter Caffè Nero, wheels crash into a step. Tries to enter Pizza Express and speaks to a waitress about accessible toilet facilities. Does a wheelie and dances down the street. Goes into American Apparel and talks to staff member. Wheels into a pub, stops himself at a flight of stairs. Then wheels down the ramp, sits with a friend both clinking their pint glasses. Text reads “Leaving the house can feel like a paralympic event for wheelchair users. change.org/accessforeveryone”.