Tag Archives: Challenge event

I did a head and beard shave to help other families like us

Peter’s daughter, Elara, has cerebral palsy and has used Scope’s Sleep Service.  Peter wanted to help raise awareness and money for Scope so organised a fundraising event.

In this blog post, he talks about his fundraiser and how you can organise your own.

We saw how hard it is for some parents to cope

My daughter Elara was born 8 weeks early. The doctors and neonatal department soon discovered haemorrhages and believed this happened whilst she was still inside the womb. As time progressed, it was apparent that she had hemiplegia which would affect all her limbs especially her right leg and this was an indicator that she did have cerebral palsy.

A smiling baby in a high chair
Elara smiling and happy

We’re active on social media and on Facebook groups for parents of children with cerebral palsy and we saw how hard it is for some parents to cope. While the challenges facing Elara are comparatively mild others aren’t so lucky and the condition can have a significant impact not just on the children but on their families as well.

Visiting a Scope sleep clinic

My wife visited one of Scope’s sleep clinics. We found it useful and being there confirmed we were doing the right things to get Elara to sleep and we now know what Elara needs. The service was easy to access and was only down the road from us. We gave them a call and luckily there was an available appointment on the day. These services are so vital to helping parents in the same position as us.

I was only meant to do a head shave

A friend of mine did a head shave for charity a few years back and I thought it would be a great event as people always want to see their friend or colleague do something daft.  So, I wanted to help raise awareness and money for Scope.

My target was £250. I was only meant to do a head shave, but I mentioned in passing to one of my colleagues asking how much it would take to get sponsored to shave the beard off.

A man in a Scope tshirt, looking at the camera, holding a phone. He has a bald head and beard.
Peter halfway through his challenge

It then spiralled out of control in a good way, my colleague emailed out that we needed to get to £750 donations to get my beard shaved off. To my surprise this happened.

A man sat on a chair, holding all of his shaved hair and beard in his hands. He is looking glum.
Peter at the end of his challenge

The support from my family and friends was brilliant especially the support from the office.

Just before the shave we were below £600 but, on the day, someone made a large anonymous donation to get to the £750 target.

My Chief Executive Officer came back from sabbatical and increased the donations to reach £1000. I was so overwhelmed by the generosity that everyone showed.

Aside from seeing the generous donations come through for Scope, the most enjoyable part was the shocked faces from people! I was getting lunch just after the shave and people who I worked with walked straight past me.

The support from Scope was great and it was nice to see that the team were keeping in touch to see progress and how things were going. A lot of places will leave you to do it and you won’t hear from them.

It’s such a good feeling knowing you can help

I would absolutely recommend organising an event like this or any type of event for charity. Personally, it’s such a good feeling knowing you can help and the effort you put in gets a tangible result, to invest in the services to help disabled people.

I’m a firm believer of paying it forward to help each other to make this world a better place. It is important to understand that everyone is bound together and can achieve great things.

My target was only £250 however through the generosity of colleagues, family and friends I was able to raise £1085.18 for Scope.

I wouldn’t do anything different, I think I really hit the nail on the head with this event. However, if I was to do it again, I would organise a different type of event. Something like a physical challenge.

We want to support even more families like Peters by funding services like Sleep Right, improving sleep for disabled children. Find out how you can get involved on our website.

It’s amazing to be running for Scope in memory of my friend

Louise is taking on the iconic London Marathon tomorrow! Here she talks about what’s inspired her sign up to the challenge and raise money for Scope. 

“It’s amazing to be running for Scope in memory of my friend, as well as taking on a personal challenge.”

Photo pf Louisa smiling at the cameraI live in South West London with a group of friends and work at a school as a secretary. I have just qualified as a personal trainer and am generally an active person. I ran my first London Marathon in 2015 so I’m really looking forward to improving this year and trying to do better than my last time. I am being a bit optimistic and aiming for the four hour mark!

Remembering Tom

This year I chose to run for Scope because I have known people who have disabilities and know the impact that disabilities can have. My family friend Tom had muscular dystrophy and used a wheelchair from quite a young age. He was cared for at home by his mum, and later on he was able to live in a supported living home. He wasn’t able to live by himself, but it was really nice that he had a place that gave him some freedom; he loved his independence. Tom sadly passed away at the age of 21.

I am partly running this marathon in memory of Tom. He was a real computer whiz and loved the sounds he could create and pictures he could make. He also loved photos and enjoyed showing us his photo albums and pictures of his family. He loved my mum and enjoyed it when she used to babysit for him when he was living at home. As I said, he also really valued his independence.

His family are lovely and pleased that I am remembering Tom by running for Scope. It’s always nice to have someone close to you remembered by someone else. They will be cheering me on; hopefully they can spot me in the crowds!

What keeps me going

Part of what spurs me on is that I enjoy a challenge. My main aim is to do better than I did last year and to know that I’m still improving. My dad did the marathon when he was my age and I know that he is really proud of me, which also keeps me motivated.Scope cheerers at the London Marathon

I love the support at the marathon; there are three to four miles where you want to collapse but the rest is just such a fantastic atmosphere. It’s really great wearing your charity’s shirt across the line and it’s amazing to be running for Scope in memory of my friend, as well as taking on a personal challenge.

I actually want to be part of the crowd one year as it looks like a really good day out. If anything I think that it might be harder standing in the crowd all day than actually doing the running!

We have lots of lovely Scope runners like Louisa taking part in this week’s London Marathon, many of them running in memory of someone special. If you’d like to get involved, you can sponsor Louise, or you can help us cheer them on!  

If you’d like to donate in memory of someone special to you, get in touch in the comments below or email us. 

Why I’m running the London Marathon for Scope

Ruth is running the London Marathon for Scope this weekend. Here she says what’s inspired her to get training. 

“When it gets hard I remember I am running for Maria.”

I’m from Durham originally, I lived in Newcastle while I was at university and then in nearby Gateshead for several years. I now live in east London and work for the University of Sunderland.

I like all aspects of keeping fit and I’ve recently taken up boxing and yoga – which have really helped with the running training (which is not as kind on my knees the older I get). I am also currently studying for my PhD which should take up all of my spare time – but have suddenly found that I can be easily distracted by trying to teach myself the guitar and any opportunity to see live music!

The London Marathon is the greatest running event

All in all I have run 12 marathons. My fellow Geordies will hate me for saying this (as we love the Great North Run so much) but for me the London Marathon is the greatest running event. I love the atmosphere and the crowd, I love feeling like for one day only London belongs to runners and not cars. I love running past my office in Canary Wharf, and past my front door and of course up the mall to the finish.

Running in memory of my friend

My friend Maria was the most loving, funny and beautiful angel. Her smile could light up a room. I was Maria’s babysitter throughout my teenage years and her whole family are very close friends of mine. Maria died suddenly in October of 2015 and it hit me very hard, it seemed so unfair that such a beautiful person was taken from our lives.

This year as I’m running in memory of my friend, I feel it will be an emotional day. I find that I think a lot about her on my long runs. and when it gets hard I remember I am running for Maria. I will be raising a glass of something sparkling to her on 24 April after the run!

Why I chose Scope

A selfie of Ruth in her purple Scope running vestThe reason I chose to run for Scope is that I’ve always had a connection with disability. My parents travel to Lourdes in France every year to take ill and disabled people there and I have travelled with them since I was a child. My mam also worked her whole life in a special needs school, and for a number of years I got involved in volunteering as a swimming and athletics coach, and taking young people with disabilities to Italy annually for a skiing trip – which was always a memorable experience.

Ruth is just one of our amazing Scope supporters taking part in this week’s London Marathon and one of the many runners who will be taking part in memory of a loved one. We know that she will do Maria proud! If you’d like to sponsor Ruth, visit her fundraising page

If you’d like to donate in memory of someone special to you, get in touch in the comments below or email us.