Tag Archives: employment gap

“There is still lots of stigma around mental health”

Today Scope has published Let’s talk, research on having conversations about disability at work. The research found that 48 per cent of disabled people have worried about talking about their impairment or condition with an employer.

Here, Gladys, who took part in the research and whose name has been changed to protect her identity,  talks about her experiences of employment. She is based in London and works in a school.

I was previously an Aid Worker with various charities for around 15 years. The work was sometimes arduous and required stamina as well as rigorous analysis. We worked very long hours in often difficult conditions. I was also involved in training other people from around the world. When I noticed that my memory was going and I was struggling with analytical thinking, I tried to continue as best I could including taking on ‘distance’ work based at home. Eventually even that became difficult and I didn’t know what to do. I was also in a lot of pain. But because the symptoms of my condition develop so slowly, it took nearly seven years to get diagnosed.

A few years after treatment had started I needed to get back to work as my benefits had been stopped after the first year, but I knew I couldn’t work full time as I had limited energy and so many medical appointments. I had been supported by the Job Centre, but they thought I was over-qualified for the stuff I was applying for. It was incredibly painful, because basically I was negating my career, and I had to ‘dumb down’ my CV. The fact that there was a break of a few years in my work experience didn’t help either. Due to my reduced energy levels, I tried to find work within a couple of miles of home so that the journey to work didn’t tire me out.

It was hard to get beyond the first interview

In one interview, with a call centre, I explained that I wouldn’t be off sick all the time; and that for example if I wasn’t in on a Tuesday, I would come in on another day to make up the hours. I thought this demonstrated my willingness to work. But they said, ‘Oh no, I would need you at this particular slot, because that is when the chair is available, we can’t be flexible’. A music school director rang me and said they had really liked me, and thought I was good, but they felt nervous about my condition and hospital appointments. I just wasn’t getting anywhere.

I wasn’t getting in through the normal channels and then I was advised by someone in the Job Centre that it wasn’t necessary to disclose, which proved to be valuable advice.  That’s how I got this job at a local Primary School. Whether the Headmistress assumed I’d taken a break for family reasons, I don’t know.  My qualifications were at the bottom of my CV and she reminded me that the job I was applying for was basically cleaning tables at lunchtime. But she didn’t probe further. She said that her main priority was that I would be reliable and turn up to work. I was relieved that I didn’t have to justify myself and I promised her that I would be reliable.

I am still at that school, working just four hours a day, four days a week.

I have never disclosed my disability

A couple of years ago I tried to increase the number of hours I worked and my grade but it was too exhausting and I had to stop after a year. During a chat with a teacher an early experience of teaching English as a Foreign Language slipped out and she identified a vacancy as a part time Learning Support Assistant. Although I preferred this work, I struggled to manage the 25 hours a week and I reverted to my former job, they found someone who could work full-time.

My former line manager was very friendly, and I tried to tell them I simply cannot work full-time, if I’m going to function in this environment.

I have never disclosed, but they know there’s a reason. I tried to say something once but decided against it because I was not sure how that might affect the dynamic in the office. I read that if you don’t need adjustments to be made to the workplace, then you don’t need to tell your employer. I don’t know if that is correct but if I don’t need to tell them, then I won’t. I am not yet psychologically strong enough to be surrounded by people who ‘mother me’.

Because I haven’t disclosed my impairment, I’m not sure what my rights at work are. I haven’t disclosed, because I wouldn’t have got this job if I had. It’s as stark as that.

A graphic showing statistics from Scope research. It reads "48 percent of disabled people have worried about sharing information about their impairment or condition with an employer"
48 percent of disabled people have worried about sharing information about their impairment or condition with an employer

People assume you are okay when maybe you are not

There’s still lots of stigma over mental health, I overhear negative comments from other colleagues. ‘So and so seems to be depressed – they just need to pull themselves together’. ‘So and so shouldn’t be doing this job if she feels that thing.’ I’ve heard that a lot. A couple of people know that I’m on anti-depressants but I usually keep quiet about it.

There was one colleague who started crying a lot. I went to comfort her and suggested that she speak to her doctor. She said that her doctor wanted to put her on anti-depressants and she was very worried about that. I told her that I’m on them. It seemed to help her to know that there was somebody else in her shoes.

It is important that disabled people are able to make informed decisions about if, when and how they talk about disability at work.

Based on the experiences of the people we spoke to, we’ve outlined ideas in our report for disabled people to consider when sharing information about their impairment or condition. 

Read more about our findings and recommendations and show your support on social media using #EverydayEquality.

Let’s talk: New research into disabled people’s experiences of talking about disability at work

Today Scope has published new research which looks at disabled people’s experiences of talking about disability at work.

We carried out a series of interviews with disabled people who are working. Some of those who took part had talked to their employer and colleagues about their impairment or condition, some hadn’t spoken about disability at work at all and others had shared some information with some people at work.

Below is a summary of our findings and our recommendations to employers and government to improve conversations about disability at work

Why is this important?

For some disabled people, talking about disability at work means they can start conversations about their support needs and how these may change over time. This can often be challenging for disabled people – two fifths of respondents in our research who asked for adjustments at work have felt uncomfortable doing this.

A graphic which shows a stat from Scope research. It reads "Two fifths of respondents who asked for adjustments at work have felt uncomfortable doing this"
Two fifths of respondents who asked for adjustments at work have felt uncomfortable doing this

In other cases, conversations between disabled colleagues can help create an environment where more people feel comfortable sharing information about their own impairment or condition at work.

Sharing information also allows employers to gather information about the experiences of disabled staff and helps them to develop a picture of how effectively they are recruiting, retaining and developing a diverse workforce.

By establishing an environment where disabled staff feel able to start conversations about disability, employers will be better placed to support their staff to reach their potential.

It’s important to recognise that some disabled people will have more choice over if, when and with whom they share information than others. However, this research has found that even among people who have a visible impairment, conversations about this and any support needs they have can have a significant impact on experiences at work.

Barriers to talking about disability

As many as 48 per cent of disabled people worry about sharing information about their impairment or condition with their employer. Some people who took part in the research had worried that telling their employer they are disabled may put their job opportunities at risk.

A graphic showing statistics from Scope research. It reads "48 percent of disabled people have worried about sharing information about their impairment or condition with an employer"
48 percent of disabled people have worried about sharing information about their impairment or condition with an employer

Others were concerned about how their manager or colleagues would react, and wanted to avoid negative comments, personal questions or pity.

Read more about Gladys’ experiences of talking about disability at work.

What leads to sharing information?

Many disabled people who took part in the project preferred to have conversations about disability on their own terms than responding to questions.

This included choosing who to tell, what information they shared  and when they shared it.

Positive and negative experiences of sharing information

Some disabled people had negative experiences when they talked about their impairment or condition at work.

These included feeling they hadn’t been listened to, or feeling as though they were being singled out as a result of the information they had shared.

For others, talking about disability had been more positive, and had led to them getting support to carry out their role.

For many disabled people who took part in the project, a positive aspect of talking about disability was that it opened up new conversations with disabled colleagues.

What needs to change?

We want to see employers review the way they gather information about their disabled staff. It is vital they take steps to make sure line managers know how to respond and offer support when staff start conversations about disability.

We’re also calling on the Government to improve the support available to working disabled people as well as employers. We want to see the role of the Equality and Human Rights Commission strengthened so that employers who discriminate can be held to account.

It is important that disabled people are able to make informed decisions about if, when and how they talk disability at work. Based on the experiences of the people we spoke to, we’ve outlined ideas in our report for disabled people to consider when sharing information about their impairment or condition. 

Read more about our findings and recommendations and show your support on social media using #EverydayEquality

Let’s stop disabled people being labelled “unemployable”

My name is Jodi and I am an Employment Adviser at Scope. It’s my job to support disabled young people into employment.

Right now, disabled people are more than twice as likely to be unemployed than non-disabled people, regardless of the skills, experience and expertise they might have. It’s unjust and unfair. With donations like yours we are working to change that.

A lot of things can stand in the way of a disabled person getting on at work – from difficulty travelling to and from work, to confidence issues or a lack of experience and qualifications – up until now.

Thanks to donations of supporters like you, we can work with young disabled people to find the right job opportunity or apprenticeship, help them with CV writing and interview practice and also support them in their jobs once they’re employed.

It’s rewarding work and I love it. But it can also make me sad and angry.

Misunderstanding and prejudice

All too often, I see misunderstanding, prejudice and even bullying in the workplace and a tendency among employers to think of disabled people only in terms of what they can’t do.

It can be frustrating and demoralising for young people to be overlooked or labelled ‘unemployable’ – to feel like the pathway to greater independence and financial stability is getting narrower and narrower.

For a young person struggling with the whole idea of finding a job, having someone to help them navigate the pathway is really important.

Breaking down barriers

I work with disabled people to understand what unique and valuable skills they have to offer. This may involve a volunteering role to build up confidence and self-esteem. In other instances, something like time keeping skills or the right preparation for an interview can make all the difference.

Employment Advisor talking to a disabled customer
Jodi provides one-to-one support for disabled people looking for work, like Nusrat

For employers, having Scope on hand to provide ongoing support is incredibly useful. By helping them to understand and meet accessibility requirements, we quickly break down barriers.

But for wider change we need to do so much more. That’s why we are also working to influence government policy aimed at closing the disability employment gap, as well as running campaigns to educate the public and address common misconceptions about disabled people and what they can and can’t do.

With your help, we can continue to work with disabled people to ensure they have the same opportunities to find fulfilling work and become more independent – both personally and financially.

Thank you so much for your support, it means a lot to me personally to know you are with us. If you can, please make an extra donation today so we can do even more to support disabled people into work.

Our priorities – influencing government in 2017

It already seems that Brexit is set to be the biggest political story of 2017 with the Government expected to trigger Article 50, beginning the formal process of the UK leaving the European Union, by the end of March. We think it is really important that disabled people’s voices are heard as part of this process and vital that progress towards equality made in recent years is not lost.

There will also be plenty of other important moments throughout the year and we will be working hard, with you, to make sure issues which affect disabled people’s lives stay high on the political agenda.

Social Care

Social care was hitting the headlines at the end of 2016, with warnings from the Local Government Association and Care Quality Commission that the system is in crisis. With the Government accepting a long-term solution to care funding needs to be found, social care is likely to remain high on the political agenda in 2017. Some additional funding will enter the system this year through an increase in council tax and from the Better Care Fund, but with a funding gap of £4.6 billion, this won’t provide the long term solution needed to meet rising demand and costs.

Social care is the support disabled people rely on to get up, get dressed, get out, and lead independent lives. Without that support disabled people can become isolated, can’t contribute to society and risk slipping into crisis. That’s why we are campaigning for long-term and adequate funding for care. Over 400,000 working age disabled people rely on social care, and with much of the recent focus on how care affects older people, we will be continuing to raise awareness with decision makers of disabled people as users of social care. 55 per cent of disabled care users tell us the system never supports their independence, so we are campaigning for a care system which supports disabled people to live independently and have choice and control over their care.

Employment

In February the Government’s consultation on disability, health and work will close. We want to see the Government take the opportunity to bring about real reform of the support disabled people receive both in and out of work.

The Government announced in October last year that people with severe conditions will receive continued Employment Support Allowance without needing repeated Work Capability Assessments. This is a welcome change but we want to see the Government go further in 2017 and completely overhaul the Work Capability Assessment so that it identifies the full range of barriers disabled people face to work.

We believe disabled people must be protected from any additional conditions linked to the support they receive. We would campaign against any attempts to impose requirements on disabled people receiving support.

The Government want to hear from disabled people about their experiences of employment support services and at work. Read more about how you can submit evidence to the consultation. Later in the year we are expecting the Government to publish a more detailed plan about how they intend to reform support for disabled people following the consultation, and at Scope we will be pushing for swift action.

Employers also have a key role to play in halving the disability employment gap. 85 per cent of disabled people think employer attitudes haven’t improved over the last four years and more needs to be done to encourage employers to create flexible modern practices. The Government should set out a long-term vision for Disability Confident this year and develop a campaign promoting the business benefits of disability employment.

Despite significant pressure on the Government from MPs from all political parties, the reduction in financial support for new claimants in the Work Related Activity Group of Employment Support Allowance is going ahead in April 2017. We will continue to raise concerns about the harmful impact this will have on disabled people and call on the Government to reserve this decision.

Extra costs

Following the publication of the Extra Costs Commission Progress Review in late 2016, we’ll be continuing to campaign to drive down the extra costs disabled people face and working with businesses in a range of sectors to look at ways they can provide a better service for their disabled customers.

In 2017 we expect government to announce a consultation on consumer and market policy. We’ll be continuing to campaign for markets to work better for disabled people, and for a cross-governmental approach to tackle the range of costs faced by disabled people.

We are also expecting the Government to publish their second independent review into Personal Independence Payments (PIP) which will include recommendations for reform, particularly around the assessment process. We want to see the assessment for PIP more accurately capture the range of extra costs disabled people face from higher energy bills to the need for specialised equipment. Given that disabled people spend an average of £550 a month on disability related costs it is vital that the value of PIP is protected.

In 2017 we want to see long-term funding for social care so that all disabled people who need support can get it, reforms announced that will support more disabled people in employment and to halve the disability employment gap and the protection of financial support for disabled people. We will be working closely with disabled people to continue to raise these issues with the Government.

2016 in parliament – Our impact

2016 has been a busy year in politics. We’ve seen the Government make a significant U-turn to stop proposed changes to Personal Independence Payments (PIP), an important consultation announced on the future of health, work and disability, Brexit and increasing pressure on the Government to provide the social care system with the funds it urgently needs. Scope has focused on protecting the rights of disabled people throughout 2016.

Theresa May used her first speech as Prime Minister to outline her vision for the country. She said she wanted to create a country that worked for everyone and create more opportunity for people, regardless of background. Whilst we welcomed this, much more can be done to help those ‘just about managing’, especially when recent research has uncovered that nearly half of people in poverty are disabled themselves or live in a household with someone who is disabled. We’ve raised these concerns with Government, and we need to keep hearing from you about what needs to change.

While the world was excited by the Paralympics in Rio our research found that whilst 78% of disabled people, through the Paralympic Games, have a positive impact on attitudes towards disability. Only 19% felt that Britain is a better place to be disabled now, than four years ago.

That’s why we have met with officials at Downing Street to emphasise the importance of making their social justice plans focus on improving the lives of disabled people.

Social Care

Social care has dominated the agenda in recent weeks and has been a big talking point all year. At Scope we’ve been calling for sustainable funding for social care to ensure disabled people have access to suitable care. The lack of additional funding in the Autumn Statement was disappointing and the small increase in council tax for social care won’t last and isn’t a long term solution.

In October we shared our research into the experiences of young disabled people and care ‘Leading My Life My Way’ with Government. This research uncovered that 60 per cent of young adults felt let down by their social care provision and a quarter were either only slightly or not at all involved in decisions about their care.

Many young disabled people are not being supported to do the things they want to do in their lives.

“I think it [support package] covers my blindness and my hearing impairments and the practical things I need to do, but it doesn’t give me enough time to go out and socialise.” Ricky, 26, South East

Urgently addressing the funding crisis in social care is the first step to delivering this.

Extra Costs

In March, we saw the disability community unite against proposed changes to PIP announced in the Budget. These changes would have left 640,000 people worse off financially. We warned the Government that these changes would just make disabled people’s lives harder and that our helpline heard from many disabled people concerned about the changes. We urged the Chancellor to think again and consider the impact these moves have on the lives of disabled people.

The Government u-turned and said it would not be going with this plan and committed to no further welfare cuts during this parliament.

In October we published the one-year on report of The Extra Costs Commission looking at action taken by businesses, government, regulators and consumers to drive down the £550 financial penalty of being disabled.

Uber and Marks & Spencer were two examples of companies introducing new products and practices to serve their disabled customers better. We would now like to see more businesses recognise the value of their disabled customers and will be focusing on improving service in the energy and insurance industries in the New Year.

Employment

Following our campaign in 2015, the Government committed to halve the disability employment gap and this year we have continued to call on them to introduce reforms to meet this target.

Alongside other charities this year, we have campaigned changes to Employment and Support Allowance (ESA) due to come into effect in April 2017.

The Government plans to reduce the level of financial support to disabled people in the Employment and Support Allowance Work Related Activity Group (WRAG). Disabled People in the WRAG have been found unfit for work by the independent Work Capability Assessment. This cut in support of around £30 a week to new claimants would impact nearly half a million people in the WRAG.

We believe this cut will push disabled people further away from the jobs market and make their lives harder rather than helping them overcome existing barriers to employment.

MPs and Peers from across different political parties supported our calls and argued the change must be postponed. Although the Government pushed ahead with this cut, we will continue to campaign against it.

In October the Government published a Green Paper on Work, Health and Disability which set out proposals to reform support for disabled people in and out of work.

We think it is right the Government is consulting on this and welcome some of the proposals, including working more closely with employers, challenging attitudes and halving the disability employment gap. We want to see wholesale reform of the fit for work assessment scheme, employment support to be made voluntary and significant shifts in employer attitudes towards hiring disabled people.

However, we’re concerned that the Government is considering extending requirements to look for jobs and attend employment programmes to people in the support group of ESA.

The consultation is open until February and the Government want to feedback on their proposals. Our latest blog on the Green Paper sets out how you can get involved.

This year the new Prime Minister said, ‘we will make Britain a country that works not for a privileged few, but for every one of us.’ In 2017 we will be looking to ensure that this includes the UK’s 12.9 million disabled people.

Next year we will continue to campaign for the Government to introduce reforms that support disabled people to find and stay in work, the protection of disability benefits and asocial care system supports disabled people to live independently.

 Read more of our policy blogs.

A spotlight on disability employment

You won’t hear this on the news, but a couple of events taking place this month show how important disability employment is at the moment.

Disabled people still face a broad range of barriers to work – however a renewed focus on disability employment across government, the charity sector and employers, could give us reason to be hopeful.

The employment gap

Employment is an important aspect of living independently for many disabled people. While more people are working in the UK than ever before, just 46.7 per cent of disabled people are in work. This puts the disability employment gap at 34 per cent. It has hovered around this level for the last ten years.

Scope’s analysis shows that nine in 10 disabled people have worked, but only half are in work now.
Employer attitudes, inaccessible workplaces and a lack of accessible transport remain significant barriers. Other barriers include lack of effective support to enable people to enter or get back into work, and employers and disabled people not knowing about schemes such as Access to Work which pay for additional adjustments some disabled people need in the workplace, such as screen readers or taxis.

Time for change

Clearly, there is a real need for a new approach. Recent announcements from Government could indicate steps are being taken in the right direction. Scope has been campaigning for parties to commit to halving the disability employment gap. Last year, the new government took on this goal, which will mean supporting 1 million disabled people in to work.

The Work and Pensions Select Committee has just launched an inquiry in to the disability employment gap. This marks an opportunity to review support available, explore alternative options for support and hold the Government to account on their commitment to bring about real change. We will submit evidence to this inquiry, ensuring the Committee’s recommendations to Government are informed by the real experiences of disabled people.

This morning, I’m meeting the Department for Work and Pensions (DWP) to hear about their proposals for employment support for disabled people.

Later this year, the Government will also publish a White Paper on disability, health and employment.

We are calling for:

  • Employment support that is specialist, and tailored to individual needs
  • Investment in schemes like Access to Work
  • Employers to offer flexible, modern workplaces

Harrison’s story:

Tell us about your experiences

Are you a disabled person looking for work?

Or, if you are working:

  • Have you asked your employer for a workplace adjustment?
  • Have you used the Access to Work scheme?

We would love to hear from you. Please contact stories@scope.org.uk

Diary of a job hunter with cerebral palsy: interviews

Self-confessed ‘geek’ Jessica Talbott has three degrees in maths. She’s just finished a short contract for a great company where she could work from home, but now she’s on the hunt for a permanent job again. 

She’s writing a series of blogs for us about her search for work: job applications, interviews, rejections, warts and all. Here she talks about her experience of taking her dad along to interviews as her interpreter. 

Growing up with unclear speech

I used to filter friends according to whether they took the time to listen that bit more carefully to what I wanted to say. Children do everything at 100 miles an hour, so I never blamed the ones who wanted to move on to the next game. Now, my partner understands every word, and I realise that I took people not understanding the odd mutter for granted, because he knows when I’m being rude – it’s very unfair!

Preparing companies ahead of my interview

Jess smiling, and sitting in front of her desktop computerI don’t need an understanding friend when I go for a job interview; I just need a person who sees enthusiasm, intellect and commitment. As I mentioned in my last blog, I’m a bit of a stalker. In my experience, it’s better to email companies directly to offer assistance and to explain about my disability. If they want to meet, I clearly reiterate that my speech is unclear, and that I need an assistant to accompany me in case they struggle to understand at first. It’s important it shows I care about making it easier for them, and not that I’m special and need some kind of entourage. My dad or stepmum help out on these occasions – they are both professionals and are really supportive. I try to keep it from the company they are my mum and dad,  but dad sometimes slips! Besides, the chances of me having a 60-year-old male carer are quite slim, so I’m sure they guess.

Getting ready to impress

My voice is negatively affected by fatigue, anxiety and stress. Interviews clearly stir up the latter two to a great degree if I’m not careful. And if I’m anxious and stressed I don’t get much sleep, so it’s really important I keep calm. The day before the interview is about relaxing; I try to do all preparation before then and get a lot of rest and sleep.

Overcoming obstacles

You learn tricks over the years when you have speaking problems; if people don’t understand something, you re-phrase the statement or use more simple words. In an interview, ideally you don’t want to simplify things, as you want to demonstrate you know the technical language of the business.

I tend to brief my dad on words or concepts that I might want to bring up, but sometimes even he finds it hard if it’s a word unfamiliar to him. One time I was determined to ask an intelligent question using various buzz words, but was forced to simplify due to the interviewers knowing the word, but not understanding my voice, and dad knowing my voice but not the word!

Be flexible and resourceful

Each interview is different. Some ask about the practicalities of you working with them, so it’s important to know what you’ll need and where to get it. Reassure them it’ll all be possible and their company will take on you, not a headache of sorting support out for you.

If luck isn’t on my side and I don’t get the job, I ask for feedback and make it clear I’d still be available for work. This takes a little bit of cheek, but I’m so glad my step-mum encouraged me, as it got me two short-term contracts this year. It’s good to take the feedback and brush up on skills they feel you lack, as it shows you’ve listened.

My four month contract that just ended was great. Lots of people worked from home, so practicalities were never an issue. I could take part in conferences and meetings via phone or messenger. Yes calls were hard but being so junior didn’t really need to speak up at meetings! Over time my colleagues got used to my voice and were good at using email rather than the phone when communicating with me. Once my foot was in the door, my work spoke for me and I was just another colleague. In fact, due to staff leaving, I pretty much had my own project.

Enjoy it!

Above all, enjoy it! I love what I do, so I get in the zone and show them Jess the mathematician, not Jess with cerebral palsy and dad in the corner.

If you would like to chat to Jess, you can join her on our online community. 

And if you’re disabled and looking for work, check out these great employment tips.