Tag Archives: Facebook

“You’re very well dressed for a blind person” Fashioneyesta, the fashion blogger

30 under 30 logo

This story is part of 30 Under 30.

 

Emily Davison, also known as Fashioneyesta, is a Master’s Degree Student, Journalist, Writer, YouTuber and Blogger. She also happens to be visually impaired and works with a Guide Dog. Emily’s goal is to change perceptions of disability with her writing and love for making videos.

At 4pm today, Emily is doing a Facebook Live video Q and A. She’ll be talking and answering questions about fashion and beauty, writing, vlogging, attitudes and more. Here’s a little preview.

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As a fashion blogger, I get a lot of comments about my appearance

People will say “you’re very well dressed for a blind person.” As if anyone with a visual impairment – simply because they lack sight – cannot have a conception of style, beauty or looking good, which is of course not true.

Style is a form of expression and it depends on passion and imagination and not on your level of vision. As a visually impaired person I appreciate clothes from the fabrics and embroidery used, to the outline of the garment and how it makes me feel when I wear it. I interact with style based on a number of different senses.

There are many different visually impaired people, who appreciate clothes for their shape, quality and attention to detail. After all, fashion is a creative outlet and is not exclusive to one set of individuals.

 Young woman hugging her guide dog

Emily also starred in our awkward moments film introduced by Warwick Davis

Every day I come across many misconceptions towards my disability and in turn I usually find myself in front of my camera or typing away at my laptop discussing these with my followers.

I was keen to take part in Scope’s End the Awkward campaign – to represent the sight loss community and to show that sight loss does not equate to ignorance, being unfashionable or being stereotyped.

Emily would love to hear from you. Tune in to our Facebook page at 4pm with your questions at the ready!

Emily is part of our 30 Under 30 campaign. We are releasing one story a day throughout June from disabled people under 30 who are doing extraordinary things. Keep up to date with all of our new stories on our 30 under 30 page.

Our top Twitter and Facebook moments of 2013

As we get ready to bring in the New Year we’ve been looking back at what we achieved with your support in 2013. Here are some of the top Twitter and Facebook moments from 2013 that got you liking, commenting and retweeting.

Celebrating achievements

Jack Caroll - text reads: Good luck Jack!

Two of our most popular Facebook posts were about the achievements of two young people with Cerebral Palsy. 14-year-old Jack Carroll hit the headlines in May when he came second in the final of Britain’s Got Talent with his comedy. Our good luck message on Facebook got over 2,000 likes.

In November we shared the news that seven-year-old Holly had been chosen to model in a new campaign for Boden clothing. Holly and her great achievement received over 1,200 likes.

Campaigning and influencing the Government

When MPs started debating the Children and Families Bill in February we wanted to make sure disabled children were not forgotten by Michael Gove, the Secretary for Education. Almost 200 people joined our Thunderclap and thousands of you used the hashtag on Twitter #GoveUsABreak which helped get the message to over 4 million Twitter accounts!

More recently, many of you shared stories of how your child had been excluded from activities in your local area on Facebook. Read the latest news on the Bill from the Council For Disabled Children.

Woman with post-it on mouth which reads: I care

We’ve also been campaigning about social care this year. Our Britain Cares campaign asked people to send in a photo to show that they care about social care for disabled people. Thousands of you have sent in photos, shared the campaign on Facebook and Twitter, and our YouTube video has now had over 180,000 views.

In October, with the Care Bill going through Parliament, we joined with other charities in the Care and Support Alliance to ask “What do you do with yours?” and raise awareness for the importance of social care.

Challenging attitudes towards disabled people

The #HeardWhilstDisabled hashtag is used to share some of the things said to, or overheard by, disabled people. BBC Ouch wrote an excellent story about the hashtag with some of the worst examples such as “Isn’t it lovely to see them out and about?”.

This tweet was sent following the Panorama expose on the Work Programme. Panorama reported that disabled people were referred to as LTBs – lying, thieving bastards. We spoke out about how completely unacceptable this was. Read our full response to Panorama.

In February we were outraged when Councillor Collin Brewer said that “disabled children cost the council too much money and should be put down.” Hundreds of you shared the news, commented on the story and were pleased when we shared the news of his resignation shortly afterwards.

Raising awareness

We’ve also been using Facebook and Twitter to increase awareness for impairments and conditions such as Down Syndrome, Autism and Cerebral Palsy.

For World Down Syndrome Day in March our post sharing Sarah and Phillip’s story on Facebook reached nearly 35,500 people.

For World Autism Awareness day in April we shared a post from Ambitious about Autism asking people to share what ‘Autism is’ to them. Thanks to the support of Keith Duffy, we potentially reached almost 300,000 people on Twitter. 

And for World Cerebral Palsy Day in October we asked you what you thought everyone should know about Cerebral Palsy and summarised your responses in a blog which has been read over 7,000 times.

Thank you for all your support in 2013. If you don’t already you can follow us on Twitter, subscribe to us on YouTube and like us on Facebook.

6 things everyone should know about Cerebral Palsy

Today is World Cerebral Palsy Day. Yesterday we asked you “what should everyone know about Cerebral Palsy?”.  Thank you to everyone who sent us a message, you can read more of the messages on Facebook.

Here are our favourites:

Cerebral Palsy does not define a person

Young adult using a wheelchair and man talking
Jamie wants to be an actor when he leaves college.
  • “People with cerebral palsy are exactly that. People. Just like everybody else. They love, laugh, cry and live. Just like everybody else. My four year old daughter is not defined by her CP. We are bringing her up so that SHE will define IT.” – Ellen on Facebook
  • “CP is a part of [my daughter] but she is and will not ever be defined by it.” – Cheryl on Facebook
  • “CP is a condition that needs attention but it’s not the person. If people could just spend some time to get to know him their lives would be enriched, as ours have been.” – Robyn on Facebook
  • “My son lives with CP, but it does not define him.” – Mrboosmum on the blog

Cerebral Palsy is not an illness

  • “People do not ‘suffer with CP’ as the Daily Mail would put it. It is not an illness.” – Catherine on Facebook
  • “It’s not a disease and you can’t catch it!” – Kerryanne on Facebook
  • “They should know that you can’t catch CP and that people with CP do – contrary to popular belief – have pride in their appearances.” – Rachel on Facebook
  • “You can’t catch cerebral palsy, you can talk to me x” – Lesley on Facebook

Talk to a person with Cerebral Palsy the same as you would to anyone else

  • “Just because the body might not work, don’t think that the brain don’t work either!” – Suzanne on Facebook
  • “People should respect you, it’s not our fault we have it.” – Deborah on Facebook
  • “Just because someone has CP, it doesn’t mean they are deaf or don’t understand what you say. Speak directly to someone, not about them, and not to their carer as if they aren’t present.” – Nadine on the blog

Cerebral Palsy affects people differently

  • “Each child is individual and should be treated as such. CP is a label but affects all differently xx” – Michele on Facebook
  • “Every disability is different and affects each individual person in a unique way this does not affect the way this person thinks and has they have the same feelings and thoughts as any other person.” – Juliette on Facebook
  • “Cerebral palsy can affect people differently my daughter has cerebral palsy but you wouldn’t know to look at her but she still has difficulties, people need to see past the disability my daughter is amazing and a true inspiration as are many children with CP.” – Chloe on Facebook
  • “People with cerebral palsy aren’t necessarily in a wheelchair and you can’t tell whether they have it just because they can walk.” – Victoria on Facebook
  • “It affects everyone differently and it impacts on the whole family , still wouldn’t be without her- every achievement brings a smile!” – Daniele on Facebook
  • “Even two people with the same clinical diagnosis can have very different challenges and opportunities.” – Mrbooksmum on the blog

People with Cerebral Palsy achieve things

Man with cerebral palsy piloting a plane
Nathan has cerebral palsy and is a qualified pilot.
  • “My son has quadraplegic CP and is in a wheelchair. This however has not stopped him climbing mountains, canoeing down rivers and raising money for his school. He goes to football, cricket, the theatre and lots of other events. Disability does not stop you achieving your dreams, it just changes the way you get there.” – Debby on the blog
  • “My daughter was born 23 years ago, and after a difficult birth, and 3 months down the line we were told she had cerebral palsy.  At 18 months she walked, she went to nursery, she went to primary, then secondary, then college, then university, and passed with honours. After taking a little longer, this summer she got a teaching job and moved to Birmingham with her supporting boyfriend who works at P.G.A golf. We are very happy and proud of our daughter. And thank you Scope.” – Marcella on Facebook
  • “Everyday I am humbled and privileged to be here to tell the tale, we all have individual journeys and challenges to face, but I for one am very proud of the progress myself and my family have made over the years!” – Liz on Facebook
  • “I’ve got Cerebral Palsy and I live an independent life. I work part time, I cook and I’ve been married to my husband for three years. My left side doesn’t work but I make the most out of life and try to keep smiling.” – Tracy on Facebook

People with Cerebral Palsy are loved

Girl with parents baking a cake
Molly with her parents.
  • “My little boy has CP and I wouldn’t change him for the world!” – Shelly on Facebook
  • “My son is 15 months old and was diagnosed with CP the day after his 1st birthday. Since then we’ve had another diagnosis of Semilobar Holoprosencephaly which means he should be a lot worse than he is, but he a super star!!! He can’t sit or crawl but he loves a good old wriggle. He babbles like mad and laughs like a drain! He makes everyone around him smile and I’m so glad he’s mine x” – Samantha on Facebook
  • “Hi there, my son is now nince, and only a year ago was finally diagnosed with unilateral hemiplegic CP , he also just recently was diagnosed with ASD. He lets nothing get him down, he does have learning disabilities but he is the most loving boy I could have asked god for.” – David on Facebook
  • “My son is 6.5 and has quad CP, visually impaired, gastro fed & seizures. He faces challenges on a daily basis that most of us never encounter in a lifetime but through it all he continues to give us the most amazing smiles. He’s truly special and the world would be much duller without him in it xx” – Kerry on Facebook

Do you agree? Did we miss something? Let us know in the comments below.

At Scope our wide range of services and activities are on offer to all disabled people. However, our history is based around cerebral palsy and we retain a particular specialism in this area. Scope offers home visits for parents of children newly diagnosed with cerebral palsy and lots of detailed information about the condition.