Anna, Harry’s mum, talks about how they came up with the idea for Harry’s cards, and the benefits he has found using them.
“After chatting with him about what to do, we came up with the idea of a set of small cards designed just for him, about him. Each card would have a question and a simple answer to that question. To make them personal we picked a photograph or picture that meant something to Harry.”
In Harry’s own words…
“I came up with the idea when people started asking me “why do you talk funny?” and “what is epilepsy?” so instead of trying to explain it I made these cards and gave them one. It has the question on the front and the answer on the back. They are my very own as they are about me and have a photograph of me on them as well. They help me.”
Anna continues, “We had them designed and sets printed. They are business-card size and a set of them can be kept in a little plastic box. Now when Harry is asked or even if he wants to volunteer the information, he can simply hand over a set and let people read. They also act as a good ice breaker and support in other discussions on cerebral palsy.
“He has presented them in his class and sets of them are available at his school, they are small enough to carry around in his bag or even his pocket. They can over time be added to and changed as Harry grows and develops.
“A simple idea but one which has proved to be very useful in removing the ‘elephant in the room’ (discussing his condition).”
The Trendsetters group of young disabled people spent the day with a team from Advocreate sharing ideas using mime, sound, speeches, poems and even a bit of rapping! They were given the task of helping a wannabe actor ‘Dayo’ overcome different obstacles on his way to an audition.
- He has no money to buy a costume
- He has a problem with his dad
- He doesn’t believe he’s good enough to audition
- He’s nervous about joining a drama class in his community
- He gets told the drama class is full because someone is worried he’ll be better than them
- Someone at the drama class suggests he’s ‘different’
Scope has been working with Manchester Metropolitan University to think about the kinds of things, like people and experiences, that can help you lead the life you want to lead. It’s great to be assertive, but you don’t have to always rely on just yourself. Advocreate took some of these ideas and turned the workshop into a few hours of fun ‘creative advocacy’.
So much was talked about on the day, the Trendsetters thought we could share some of the discussion in a short guide on this website. We’ll use photos to explain some of the ideas about what can help someone lead the life they want to lead and you’ll find out whether Dayo made it to the audition…
If you would like to come to next year’s workshop, you need to be a Trendsetter .Find out how to join Trendsetters here.
Guest post from Jhon Bateman
On Tuesday 3 July, in Loughborough, I carried the London 2012 Olympic Torch for 440 metres as part of its 70–day relay across Great Britain before arriving at the Olympic Stadium on 27 July. I was runner 34 of the day, which meant that I was quite early on in the day – I had to be at the Collection Point for 8:00 ready to carry the torch at 10:42! The experience was amazing but over so quickly – the road was packed with people watching me go past, cheering me on and taking lots of photos. I loved it – I felt like a celebrity! I saw people I haven’t seen in years who had turned out to see me and young schoolchildren from the surrounding area all out ready to cheer me on.
After my leg of the relay, I got on to shuttle bus 2 at the back of the second convoy with all of the torchbearers who had already carried the torch. We were all so excited! Our bus was full of torchbearers waiting their turn but I was only the third on the bus, so I had a long wait afterwards. After travelling through three more towns after finishing Loughborough, we headed back to Loughborough University where our torches were decommissioned (this is where the gas canister is taken out) and given back to us.
I was quite a lucky torchbearer, as I was selected through the Coca-Cola selection campaign called Future Flames. Coca-Cola is one of the 3 presenting partners of the London 2012 Olympic Torchbearers alongside Samsung and Lloyds TSB/RBS. Future Flames are “exceptional young people who have been nominated by their communities”. As a Coca-Cola Future Flame, the Olympic Torch was purchased for you, you were given 2 VIP tickets to one of the Coca-Cola Special City Celebration events and photos are purchased for you!
Overall, I have really enjoyed the whole experience of being a London 2012 Olympic Torchbearer and will remember my Moment to Shine forever.
Guest post from Bradley Roper, aged 12.
The day after Kayne and I appeared in the BBC1 programme, Racing with the Hamiltons, I was a bit late for school so my Nan said, “Let’s catch the bus.”
The first Bus Driver wouldn’t let us on and wagged his finger at us. We are used to this and I had discussed my experience of bus drivers’ attitudes with Nic Hamilton on the TV programme the night before.
My Nan stormed away with steam coming out of her ears. Then a bus hooted behind and pulled up beside us. The bus was ‘out of service’ and the Bus Driver called out to us: “Where are you going?”
I said, “To school.”
He said, “OK, I’ll drop you off – I am going to change your opinion of bus drivers.”
Although the bus stop is near the school, he drove right down to literally outside the school gates – he had obviously seen the programme!!
The Trendsetters team is really excited to report that the filming Bradley and Kayne took part in with Nic Hamilton made it onto the TV!
Last night’s BBC1 documentary, Racing with the Hamiltons: Nic in the driving seat showed Nic visiting Scope offices in London where he met Kayne and Bradley and was interviewed by them. The documentary is very interesting and well worth a viewing, so have a look at it – you can find it on BBC I-Player.
Well done Trendsetters, you made it!
Scope’s Trendsetters were the worthy winners of a Scope award for Working Together… well done, Trendsetters!
This award shows how much Scope appreciates the hard work the Trendsetters are putting in to the project, and how well they are working together with Scope staff and each other to produce information and resources for young disabled people.
The award was presented at a meeting in London, and Bradley and Vanique were there to accept the award on behalf of the whole Trendsetters group. Bradley said, “We were nervous when we got there because we saw loads of people and my Nan said ‘Oh, that’s Linford Christie’ then they said that Trendsetters had won.”
Bradley and Vanique went up on stage to collect the award and have their photo taken, and they talked to Linford after the presentation and told him all about the Trendsetters project and all the different things they were doing. Vanique said, “We both felt shy but Linford talked to us about Trendsetters and Bradley told him about the video he is going to make about how difficult it is to use London buses.”
Congratulations to all the Trendsetters for winning this award, and thank you to Bradley and Vanique who made it to the venue at very short notice and did a fantastic job.
This project is just getting better and better! If you want to get involved please contact us at firstname.lastname@example.org
Well what a fabulous week we’ve had, with our first Trendsetters workshop, all about dealing with bullying. Way back last year our Trendsetters told us that they wanted information about bullying, as many of them had been affected by bullying behaviour. It’s taken a while to get it organised but with the help of Kidscape we held a workshop at our London offices last week, where eight of our Trendsetters learnt about bullying behaviour and how to deal with it, including some useful practical strategies.
The Kidscape trainer got all of us involved in the role play, and everyone took an active part in sharing their stories and their experiences. Feedback from the Trendsetters at the end of the day was very positive and we are all looking forward to sharing what we’ve learnt on the Scope young people’s web pages soon, so that other disabled young people can learn the same strategies.
Workshops like these mean that we are much closer to being able to give young disabled people the information they want, about the subjects that matter to them, and in a format they can access.
Well done everyone who took part… and watch this space for updates on other parts of the project.